Determined that #epilepsy #seizures don’t define my wonderful son!

Joined June 2018
126 Photos and videos
She J🇺🇦 retweeted
People with #epilepsy don't need "motivational" critiques on our medical treatment choices. We need allies who listen, support our autonomy, and understand that our survival is already a major success. -- What is something else you need? #EpilepsyAwareness
4
10
27
486
She J🇺🇦 retweeted
Living with a neurological disorder means our brains work harder than usual. That’s why Brain Health is so important. 💜 #EpilepsyAwareness #NeurologicalDisorder #EpilepsyWarrior #Neurodiversity #EpilepsySupport #BrainHealth #SelfCareMatters #MindfulnessPractice
1
5
7
157
She J🇺🇦 retweeted
Defibrillators save lives. They might look scary, but they’re simple to use and give clear step-by-step instructions. Mark, one of our community first responders, is here to show us. If your community needs a defib, @NWAmbCharity can help. Email charity.office@nwas.nhs.uk.
1
9
10
1,392
She J🇺🇦 retweeted
Feb 25
You have to be very careful where your thoughts lead you. #Worrying, #anticipatoryanxiety, & #dwelling can lead you to #panic & even worse. For people who have #epilepsy, they know about thinking a lot about their next #seizure #chronicillnesswarrior #epileptic #socialanxiety
2
2
26
She J🇺🇦 retweeted
A neurological disorder isn’t just a medical diagnosis; it’s daily battles and a test of strength.  Beyond the visible symptoms lie the unseen complications: sensory overload, memory lapses, and the silent recovery.  #InvisibleIllness #BrainFog #HiddenDisability #ChronicIllness
1
2
47
She J🇺🇦 retweeted
While we really appreciate any and all the people with #Epilepsy and their carers that subscribe to our page, we need to reach people who don't know about seizures yet. -- Have any suggestions how we might reach people who are outside the Epilepsy community? #EpilepsyAwareness
5
7
15
336
She J🇺🇦 retweeted
Got questions about driving? 🚗 Use our online interactive guide to the driving regulations for people with #epilepsy in the UK to find out how the driving regulations apply to you 👉 bit.ly/49bbj28
5
8
425
She J🇺🇦 retweeted
Do you agree that the hardest part of #Epilepsy sometimes isn’t the seizure itself, but the relentless effort, meds, and appointments required just to exist between them? #EpilepsyAwareness
5
4
16
348
She J🇺🇦 retweeted
Many people believe that #disability is somehow caused by the person not "trying hard enough". Many in the #Epilepsy community know health isn't always something you "lose." Sometimes one's health is ripped away and one is completely powerless to stop it. #EpilepsyAwareness
4
6
17
555
She J🇺🇦 retweeted
Just because the ADA makes it illegal to discriminate against #Epilepsy in the workplace doesn’t mean it has vanished. Legal protection doesn't necessarily mean inclusion. -- Have your seizures ever led to your termination? #EpilepsyAwareness brainablaze.com/the-brain-ab…
1
2
8
194
She J🇺🇦 retweeted
Don't repeatedly press your friend #epilepsy for an excuse for why they didn't show up. It's terribly difficult to face the fact that we cannot control where or when a seizure will hit. #EpilepsyAwareness
6
22
319
She J🇺🇦 retweeted
How we spend our leisure time is important and individual to us all, whether or not we have epilepsy. Our information looks at some popular leisure activities and suggests how they might be made safer for people with #epilepsy. Learn more 👉 bit.ly/4ovZMPz
2
8
433
She J🇺🇦 retweeted
Epilepsy doesn’t just affect the brain—it affects the mind and emotions too. 💜 Prioritizing mental health is just as important as managing seizures. Let’s keep breaking the stigma and supporting the whole person. #EpilepsyAwareness #MentalHealthMatters
2
3
67
She J🇺🇦 retweeted
If you're struggling to manage your seizures even though you take your meds precisely how your doctor prescribes, you are not alone. Nearly 30% of people with #epilepsy are like you. We see your hard work regardless of your seizures. #EpilepsyAwareness
6
22
416
RT @BioMedCentral: Higher adherence to a (poly)phenol-rich diet, particularly from tea, coffee, red wine, onions, peppers, garlic, nuts, wh…
4
She J🇺🇦 retweeted
10
24
569
She J🇺🇦 retweeted
Although #epilepsy IS NOT a mental illness. Mental illness is still important to the community because ~30% of people who have #epilepsy also have a mood disorder (like #depression or #anxiety). -- Do you struggle with your mental health? #EpilepsyAwareness
9
7
34
1,151
She J🇺🇦 retweeted
Our video shows what someone may experience during a focal aware seizure (previously called simple partial seizures). bit.ly/4djoLl0 They're sometimes called ‘auras’ because, for some people, they develop into another type of seizure. Learn more bit.ly/3f5ckfS
3
4
980
She J🇺🇦 retweeted
Many people with #epilepsy have a steady feeling of unease, never fully trusting their own body because a seizure could happen at any moment. #EpilepsyAwareness
7
14
59
3,924
She J🇺🇦 retweeted
Seizures can be scary to witness, but staying calm and knowing what to do can make all the difference. Being prepared means you can help keep someone safe, supported, and cared for until the seizure passes. Please share this post.  #FirstAid #seizures #epilepsy
7
8
414