The #RAREsummit25 agenda is now live!
Packed with diverse voices, patient-driven insights & bold innovation.
camraredisease.org/raresummi…
The countdown is on - grab your ticket to join us on 6 Nov to be part of the conversation.
And don't forget to book your dinner spot!
ALT An abstract image formed of an array of triangles in the shape of a forward facing arrow. Some of the triangles contain pictures from the previous summits, illustrating the talks, exhibitions and conversations. Text: Thurs 6 November at Hinxton Hall, Wellcome Genome Campus.
We're co-hosting this family friendly 5k in Great Shelford (in the heart of rare research country!) on 21 Sept!
A great opportunity to enjoy the villages car free and support our CamRARE community activities at the same time. Book in advance: shelfordfunrun.co.uk
🙋 Hands up if you’re as excited as we are about this years Shelford 5k Fun Run!
🎟 Have you booked your place yet?
shelfordfunrun.co.uk
📣 Big shout out to our amazing sponsors, we couldn’t do this without them!
ALT Photo of the warm up last year with everyone stretching their arms up.
🙋 Hands up if you’re as excited as we are about this years Shelford 5k Fun Run!
🎟 Have you booked your place yet?
shelfordfunrun.co.uk
📣 Big shout out to our amazing sponsors, we couldn’t do this without them!
ALT Photo of the warm up last year with everyone stretching their arms up.
We’ve just launched ‘Friends of RAREfest24’ 🚀
An opportunity for local businesses to support CamRARE’s incredible community festival in Cambridge on Nov 22&23!
Help us create a weekend filled with hands-on science, tech, art, talks & more!
Details here: ow.ly/wUcm50TFC7c
ALT Sponsorship invitation letter - click the link the text for unflattened version
ALT Sponsorship benefit packages - click the link the text for unflattened version
Only 1 week to go!
We still have spaces left for the 5k - make sure to grab your spot before we sell out or close online registration on Fri 27 Sept!
We can't take on the day sign ups.
For more info on what's on, and to sign up, pop over to our website:
shelfordfunrun.co.uk
ALT Grid of 4 photos: 2 photos of people running to the finish line, people running on the closed road, people warming up
Not long until #ShelfordFunRun 2024!
🗓️ 29 Sept
📍 Gt Shelford, Cambs
🏃 5k Race
And more!
👁️ Super Sensory 1k
🏰 Bouncy castles
🐤 Duck race
🍰 Refreshments
More info and book places here: shelfordfunrun.co.uk
Supporting your rare community with every step. Join the Shelford 5k Fun Run on Sunday 29 September to beat your personal best, have a great active day out with the family and raise funds for CamRARE to boot! shelfordfunrun.co.uk/🏃👩🦽🏃♀️mailchi.mp/camraredisease.or…
Woo hoo, it's all go at #ShelfordFunRun HQ!
Exciting to see the medal proofs and all the final preparations coming together!
We sold out nearly a week before the event last year so don't leave it too late to book your spot to join us on 29 Sept: shelfordfunrun.co.uk
ALT Mock up image of medal proof. Silhouettes of a man, woman & child running on an orange background. Sporting-medals.co.uk branding below
Happy bank holiday!
Have you signed up to join us on 29 Sept for some family friendly fun!?
Run, jog or walk 5k through Great & Little Shelford in aid of Shelford Playscape and Cambridge Rare Disease Network
For more info and to sign up visit our website:
shelfordfunrun.co.uk
ALT Grid of 4 photos from previous fun runs. Cambridge City FC panda mascot, people at an ice cream van, two children running to the finish line, the fun run warm up with 3 children in the foreground
Fancy an autumn challenge?
Why not sign up to the family friendly Shelford Fun Run 5k?
shelfordfunrun.co.uk
Hosted by CamRARE & @GSPlayscape plus:
• Super Sensory 1k by @Power2InspireUK
• opening of the #ShelfordWheelzone
• duck race on the river
• mini golf
• & more...!
ALT Grid of 4 photos from the 2023 shelford fun run: 1) family with a small girl, 2 woman running with a guide wearing a tabard saying 'visually impared runner', 3 person wearing a vest saying deaf blind runner, doing a strong arm post in front of the CamRARE stand, 4 man pushing a girl in an off road wheelchair over the finish line.
We have 99 entries so far.... will you be number 100!?
We're delighted to announce that (in only 2 weeks!) the #ShelfordFunRun has sold 20% of runner places!
If you want to run/walk the 5k with us on 29 Sept 2024, don't delay in booking your spot!
shelfordfunrun.co.uk
ALT The number 100 in a cartoon style with the Shelford Fun Run logo in the bottom corner
Registration for the #ShelfordFunRun 2024 is now OPEN!
Early bird prices are available until the end of school term so don't miss a bargain!
Read the latest newsletter: mailchi.mp/455d11ab9363/fun-…
One of our charity partners at @camraredisease have just launched a new report, which may be of most interest to around 1 in 17 of you (the no of people affected by a rare disease!)…