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Joined June 2012
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Feb 4
Happy birthday! This year, SmithSolve celebrates 2️⃣0️⃣ years!
We’re grateful to our team, clients, and patient communities for working side-by-side to improve the lives of people with rare diseases through advocacy and communications.
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Jun 9
“Are we OK?”
The answer?
It depends on the day.
Read Chris Smith's perspective on how far we’ve come, barriers that stand in the way of progress, and what “OK” can one day mean for the people who need and deserve our collective support: linkedin.com/pulse/we-ok-chr…
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May 29
Research shows that mental health challenges are anything but rare within the rare disease community.
According to @rarepatientvoic, 82% of patients & caregivers experience frequent emotional distress, but access to mental health support continues to fall short.
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May 29
This #MentalHealthAwarenessMonth, we’re recognizing the distinct pressures patients & caregivers face, reinforcing that better mental health = better outcomes. ❤️🫶📈
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May 29
Learn how one rare disease community works to understand and address mental health challenges in this CheckRare podcast with Dr. Al Freedman, rare disease psychologist and rare dad. Listen here: xlhimpact.com/tools-and-reso…
#PatientAdvocacy #RareDisease
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May 27
𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬 𝐝𝐨𝐧’𝐭 𝐣𝐨𝐢𝐧 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐭𝐫𝐢𝐚𝐥𝐬 𝐭𝐨 𝐛𝐞 “𝐬𝐮𝐛𝐣𝐞𝐜𝐭𝐬.” 𝐓𝐡𝐞𝐲 𝐣𝐨𝐢𝐧 𝐟𝐨𝐫 𝐚 𝐩𝐮𝐫𝐩𝐨𝐬𝐞:
To access innovative therapies
To help build a better future
To move science forward
That’s impact. That’s courage. That’s community.
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May 27
The CISCRP’s Perceptions & Insights Study reinforces what rare disease families show us every day. Patients are more than participants. They are partners in progress. They’re advocates and changemakers. Read the study: bit.ly/3RzsdkG
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May 27
That’s why clinical trial communications need to be relevant and credible. Learn how we help our partners earn trust and rethink communications through a patient-inclusive lens: smithsolve.com/services/prod….
#PatientAdvocacy #ClinicalTrials #RareDisease #PatientEngagement
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May 15
Today, on International MPS Awareness Day, we’re proud to recognize the resilience and progress of the MPS & ML community. 💜
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May 15
For more than a decade, we’ve worked alongside people with MPS & ML, their families, advocates, and supporting organizations to advance drug development, design clinical trials, build awareness and disease education, elevate patient insights, and strengthen community capacity.
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May 15
It has been a privilege to see this community evolve, organize, and lead intentionally. We honor every family, advocate, and partner advancing understanding and hope for people living with MPS & ML.
#PatientAdvocacy #RareDisease #MPSAwarenessDay #MPS #ML
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Apr 13
20 years ago today, SmithSolve began with a bold goal: to elevate voices across the #RareDisease community.
A lot has changed since then. We’ve grown our team, expanded our capabilities, and deepened our impact. But what’s mattered most from the start are the relationships.
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Apr 13
🔹 “You’re credible because you’re involved. You show up at industry and community forums.”
🔹 “The work you put in makes a difference in the lives of these families.”
We’re proud of the progress we’ve made together – and even more energized for what’s ahead. 🎉
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Apr 13
📹 Watch a short video of our team and partners reflecting on the journey at SmithSolve.com.
#SmithSolve20 #PatientAdvocacy
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Mar 25
“I live inside the systems I’m working to change.”
Our team recently heard from Lilly Grossman, founder and CEO of Beyond The Box Advocacy, who was kind enough to share her insights and experience working in disability policy and advocacy.
ALT Photo of Lilly Grossman, the founder and CEO of Beyond The Box Advocacy. She is a white woman with long, straight dark blonde hair and she is smiling. Above her photo is a quote from her presentation, "I hope for a future where disability policy reflects real life, which is why we’re working to redesign disability systems enforced by systemic barriers. Disability systems can better support economic participation, stability, and community life. When we think beyond the box, we build systems that create opportunity."
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Mar 25
Lilly explained her work challenging systems that limit people with disabilities from fully succeeding, connecting dots between policy research and direct advocacy. These challenges are all too common for people with disabilities, rare disease, and other devastating conditions...
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Mar 25
... which is why we’re working every day to challenge conventional approaches when it comes to connecting patient communities, advocacy groups, industry, policy- and decision-makers, and other stakeholders.
#DisabilityPolicy #DisabilityAdvocacy #RareDisease #RareDiseaseDay
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Mar 24
2026 marks SmithSolve’s 20th anniversary, and is the perfect opportunity to recognize the lasting relationships we’ve built with clients, partners, and friends across dozens of patient communities.
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Mar 24
Most importantly, we’re working to fulfill our ultimate mission and measure of success: improving the lives of patients and their families.
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Mar 24
Learn more about our work, our commitment to patients and communities, and the insights and experience of our first 20 years at SmithSolve.com.
#SmithSolve20
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