Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #Bluesky@soisfibroreal
Joined February 2017
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29 Aug 2017
Taking back our #POWER.."The - So Is #Fibromyalgia Real? What I Know Is Real - Blog" soisfibromyalgiareal.com/abo… …#fibrowarrior #WhatIKnowIsReal
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Fibromyalgia - What I Know Is Real retweeted
“When you have #Fibromyalgia, it’s a monthly, weekly—sometimes daily—thing, getting knocked down… Boom. A flare hits… immediately back to basic survival again… I’m suddenly just pushing through…struggling to do the day-to-day minimum.” buff.ly/aZa990h @SoIsFibroReal
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Fibromyalgia - What I Know Is Real retweeted
May 12
was literally just thinking about this the other day. i literally have to mentally will myself to get shit done. if you don’t know what that feels like, you can’t input.
"It feels callous, and it feels like my #fibromyalgia is not being taken seriously…I am usually looking for something more than being told, essentially, to have a little willpower, from my doctor!" #WhatIKnowIsReal soisfibromyalgiareal.com/its…
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"I often remember how, years ago, I’d seen a close family member who was wheelchair bound from MS having family members move & exercise her body. I now understand why…because her body still needed the movement…so I get my stiff aching body up & I move." soisfibromyalgiareal.com/dif…
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"It feels callous, and it feels like my #fibromyalgia is not being taken seriously…I am usually looking for something more than being told, essentially, to have a little willpower, from my doctor!" #WhatIKnowIsReal soisfibromyalgiareal.com/its…
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#Fibromyalgia "tries to make me feel I am at its unrelenting mercy, a victim of its every whim...that I just have to helplessly react, constantly adjust my life to its random & ever-changing barrage of symptoms & utter exhaustion...like I have no control." soisfibromyalgiareal.com/i-b…
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"Fibromyalgia lends itself to vicious circle after vicious circle; it often feels like there’s no rhyme or reason to any of it…”doing the opposite” has helped me to break those vicious circles and...to even avoid getting into them in the first place." soisfibromyalgiareal.com/in-…
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“Everything #fibromyalgia revolves around #sleep…got a bit…not enough…need more…need too much…can’t sleep…can’t stay awake…can’t wait to sleep…it’s never enough…” #WhatIKnowIsReal soisfibromyalgiareal.com/to-…
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"At some point I ended up with some definite thoughts on what things I thought were key things I should be trying to do to have the best quality of life I could have (with #fibromyalgia)." #WhatIKnowIsReal soisfibromyalgiareal.com/it-…
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“Try to be positive...is both RIDICULOUS advice and GREAT advice, all at once." #Fibromyalgia #WhatIKnowIsReal soisfibromyalgiareal.com/bei…
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"You are not alone. I know what you’re going through. All of us with #fibromyalgia, and there are many of us(!), know what you’re going through." #WhatIKnowIsReal soisfibromyalgiareal.com/sta…
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"...when I started out on this path, like everyone with #fibromyalgia I would imagine, I was just trying to be able to function in my every day busy life, to keep my head above water when I felt like I was drowning in the vicious circles of fibromyalgia." soisfibromyalgiareal.com/the…
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"…have I overdone it…lost control…pushed too far…can I “get back”?
This is my #fibromyalgia…at it’s worst…the “flare up” that everyone dreads…a really bad flare up." #WhatIKnowIsReal soisfibromyalgiareal.com/fig…
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"Many things will knock you out and make you #sleep but sleep experts will tell you (as in the book THE SLEEP SOLUTION that I just featured in my last book share post) that “Sedation and sleep are not always the same thing.”" #WhatIKnowIsReal soisfibromyalgiareal.com/is-…
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"And forget being excited about plans, about working on my life, the lofty plans and ideals are gone; I’m suddenly just pushing through life again…struggling to do the day-to-day minimum. Back to basics." #Fibromyalgia #Flare #WhatIKnowIsReal soisfibromyalgiareal.com/fib…
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"I pace myself…& I do listen to my body & heed the signals it is sending me…but I push it too. & I PUSH IT A LOT. After 15 years of trial & error living with fibromyalgia, I’ve found my fibromyalgia has some “give” to it & I take full advantage of it." soisfibromyalgiareal.com/im-…
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"Most nights I would be so exhausted, I would need to go through maybe a couple #sleep cycles on the couch, often around three hours, just to be able to get up and go to my own bed." #Fibromyalgia #WhatIKnowIsReal soisfibromyalgiareal.com/to-…
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#ChronicFatigue "For many of the fifteen years I’ve lived with #fibromyalgia, especially the early years, this tiredness wasn’t alleviated by any amount of sleep and rest…not any amount I was able to get anyways." #WhatIKnowIsReal soisfibromyalgiareal.com/i-c…
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"I realized with every photo I looked back on from the past 20 years, with each memory that flooded back, part of each memory was a #fibromyalgia memory...when I look at the photo, PART OF THE MEMORY IS HOW I WAS EXPERIENCING MY FIBROMYALGIA THAT DAY." soisfibromyalgiareal.com/fib…
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#Fibromyalgia "...like the athlete running the marathon, my mental game, my incredibly strong mind, IS getting me somewhere. And I won’t be quitting." #WhatIKnowIsReal soisfibromyalgiareal.com/its…
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"You know how you occasionally hear it reported..some celebrity who suffers from exhaustion goes to some facility to rest & relax & rehabilitate their body for about a month or two? Well I remember thinking, that's exactly what it felt like I needed to do" soisfibromyalgiareal.com/im-…
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