AHC is a rare medical condition that causes transient weakness of either or both, sides of the body & affects less than #1inaMillion | Reg UK Charity No 1192701
Joined April 2016
- Tweets 324
- Following 87
- Followers 209
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72 Photos and videos
What is AHC?
#1inamillion #AHCawareness
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Living with AHC: "What is it like to live with AHC? Over the next few days you'll get a tiny glimpse of what it's like through stories about how AHC families celebrate birthdays.
#1inamillion #ahcawareness
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"🎧Make your own 1-minute version of the AHC Song!
Scan the QR code for instructions on how to participate in the AHC Song Challenge.
#1inamillion #ahcawareness
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AHC SONG CHALLENGE 1. Download the materials here/from the link in bio:
bit.ly/ahc-chords
AUDIO KARAOKE
AUDIO ORIGINAL
CHORDS & LYRICS SHEET
MELODY NOTES
VIDEO KARAOKE & LYRICS
VIDEO ORIGINAL & LYRICS
2. Record your version
3. Upload your song!
#1inamillion #AHCawareness
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"Just a few days to go until International AHC Day. Stay tuned and take part in AHC Awareness Week next week"!
#1inamillion #ahcawareness
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Alternating Hemiplegia of Childhood UK retweeted
14 Nov 2022
That's a good move especially for very small organisations like @SupportAHCUK will make a massive difference.
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Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community ahcuk.org/final-day-3-theme-… #10yearsatp1a3 #1inamillion #ahcawareness
Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases ahcuk.org/day-2-photo-collag… #10yearsatp1a3 #1inamillion #ahcawareness
Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 ahcuk.org/day-1-picture-coll…
Alternating Hemiplegia of Childhood UK retweeted
3 Nov 2022
Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases ahcuk.org/day-2-photo-collag…
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Alternating Hemiplegia of Childhood UK retweeted
3 Nov 2022
Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 ahcuk.org/day-1-picture-coll…
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Alternating Hemiplegia of Childhood UK retweeted
23 Sep 2022
Just awesome and cannot wait for the symposium to start #10YearsATP1A3 #AhcAwareness #1inaMillion #raredisease cc: @SupportAHCUK @aesha_ahcspain @AHCFE_ @olliesmission @kewdoc @RCPEdin @SigurdurJohann4 @PsychDrJo @bridget_vranckx @lyndseyamorton @_adriankowal @AHCkids
170 and counting....
#10yearsatp1a3 #ahcawareness
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Alternating Hemiplegia of Childhood UK retweeted
19 Oct 2022
What a great 1st day we have had on the 10th year since the gene discovery: Defining the future for AHC & ATP1A3 Diseases. The venue was great @RCPEdin @RCPEVenue with captivating talks from speakers . #10yearsATP1A3
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Alternating Hemiplegia of Childhood UK retweeted
19 Oct 2022
Viewing the posters at the @10yearsatp1a3 - amazing research being done and nice to see new things happening #10yearsATP1A3
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Alternating Hemiplegia of Childhood UK retweeted
3 Nov 2022
Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community ahcuk.org/final-day-3-theme-… #10yearsATP1A3 #ahcawareness #1inamillion
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Join us in Edinburgh or online 19th-21th Oct22 for a 3day unique hybrid event incorporating: 10yrs anniversary conference to recognise the discovery of the ATP1A3 gene for AHC & ATP1A3 diseases, & the 10th Symposium on ATP1A3 in disease #10yearsATP1A3 #ahcawareness #1inamillion
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Alternating Hemiplegia of Childhood UK retweeted
19 Mar 2022
Access no areas: the day wheelchair activists stopped the traffic theguardian.com/society/2022…
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Alternating Hemiplegia of Childhood UK retweeted
8 Mar 2022
To mark #InternationalWomensDay, we’re celebrating the extensive contribution of women to epilepsy research. And when it comes to that contribution, few have had an impact greater than that of our very own President, Professor J Helen Cross OBE. epilepsyresearch.org.uk/inte… #IWD2022
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Today 8th March 2022 #InternationalWomenDay we stand & salute all the women involved with an AHC Champions' life. It may be the champion's grandmother, their mother, their sister and all their aunts. Thank you ladies for being that support #AHCAwareness #1inaMillion #IWD2022
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On #InternationalWomensDay #IWD2022 we salute our AHC UK women researchers Prof. Cross & Drs Balestrini & Vezyroglou - thank you for your ongoing work on AHC with all its various complications & making us believe one day we may have a breakthrough. Our AHC Champions thank you all
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