An international network of thyroid cancer patient support organisations. Registered in The Netherlands.
Joined August 2017
- Tweets 134
- Following 126
- Followers 440
- Likes 103
Photos and videos
24 Sep 2023
Our member organisation @ThyroidTrust is hosting an online event tonight at 7pm U.K. time to mark thyroid cancer awareness month. Professor Kristien Boelaert president of the British Thyroid Association will be speaking. Book via the link in the Thyroid Trust message! #thyroid
23 Sep 2023
Join BTA President Professor Kristien Boelaert tomorrow night (Sunday 24th) at 7pm for an online talk and Q&A session on #thyroidcancer: symptoms, treatments, research and current guidelines
Register your place at: Thyroid-Cancer-Talk.eventbri…
#thyroidhealth #thyroiddisease
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TCA Thyroid Cancer retweeted
19 Jul 2023
Cribriform morular #thyroidcancer no longer considered a variant of PTC. Now listed as one of the “Thyroid tumors of uncertain histogenesis”. bit.ly/3Nb7WOh
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TCA Thyroid Cancer retweeted
18 Jul 2023
Fantastic to see this published, led by Profs Okosieme Chatterjee and Rees showing resistance to thyroid hormone appears to have adverse cardiac outcomes over a life-course - more research is urgently needed
authors.elsevier.com/a/1hR8c…
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TCA Thyroid Cancer retweeted
There may be a link between hyperparathyroidism and cardiovascular health. Scientists are studying how elevated parathyroid hormone levels might contribute to increased risk of heart disease
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TCA Thyroid Cancer retweeted
Parathyroidectomy, the surgical removal of overactive parathyroid glands, is the primary treatment for hyperparathyroidism. This restores normal calcium levels. High volume surgeons have the best rates of long-term cure: endocrinesurgery.org/find-a-…
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TCA Thyroid Cancer retweeted
Kidney stones, a complication of hyperparathyroidism, occur due to the increased calcium in the urine. High levels of calcium in the urine can form crystals that eventually grow into stones. These stones can cause severe pain and may require medical intervention for removal
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TCA Thyroid Cancer retweeted
Hyperparathyroidism can lead to the removal of calcium from bones, causing osteoporosis over time. If you have been diagnosed with hyperparathyroidism, a dual energy x-ray absorptiometry (DXA) bone density scan may be helpful to assess your risk of fracture.
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15 Jul 2023
It’s our 18th birthday today!! What a long way we’ve come since 2005 - and we’re not stopping yet. Big love and thanks to all our volunteers, members, advisors, partners and friends from all of us at Parathyroid UK. You’re all stars! 🌟
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11 Jul 2023
Exactly one week ago, the WECAN Academy 2023 concluded. 22 speakers trained ~100 advocates from 26 countries in 3 tracks over 24 sessions. Huge thanks to the Programme Committee, speakers, support team and sponsors for making this event a success! wecanadvocate.eu/featured/we…
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2 Oct 2022
Post-surgical hypopara more prevalent than previous estimates according to new Japanese study link.springer.com/article/10…
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28 Sep 2022
One Alpha is crucial for patients with post surgical hypopara (POSH). Shocking to learn that there is a shortage in the U.K. thankyou @ParathyroidUK and Prof Fraser for raising awareness.
27 Sep 2022
Our article in The Guardian’s Rare Disease section calling for action on the shortage of One Alpha is out today! Read it here parathyroiduk.org/news/parat…
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TCA Thyroid Cancer retweeted
12 Jun 2022
Poorly differentiated thyroid carcinoma: a clinician's perspective. An #ENDO2022 featured article by Zhiyan Liu et al., Shanghai Sixth People's Hospital, China. ow.ly/MTC530slQtJ
ALT Fig 1 - Poorly differentiated thyroid carcinoma: a clinician's perspective
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TCA Thyroid Cancer retweeted
26 Jan 2022
ETJ is has recently flipped to open-access! Making it the highest impact gold OA journal dedicated to thyroid research. Explore the latest issue (and take a look at our new cover and website design!): ow.ly/awXU50HEmVC
#openaccess @ETA_Thyroid
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TCA Thyroid Cancer retweeted
25 Apr 2022
In @NatureMedicine we're addressing challenges of #precisionOncology incl access to genomic tests & generating robust RWE. We call for involvement of advocates along dev, validation, clinical implementation, regulatory, design of service infrastructures rdcu.be/cLFzx
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23 Mar 2022
At least 6% of the Ukrainian population, including those currently migrating, are affected by a #RareDisease
Our #EuropeanReferenceNetworks are supporting people with rare diseases fleeing the war in Ukraine
#StandWithUkraine #ERNcare4Ua
More: europa.eu/!cx7jK3
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TCA Thyroid Cancer retweeted
15 Mar 2022
📢The #EuropeanReferenceNetworks have published an official website devoted to offering help for #Ukrainian 🇺🇦refugees suffering from rare diseases. Visit #ERNcare4Ua to know how to get support. ➡️erncare4ua.com/
➡️Website descriptive video:eurobloodnet.eu/media/upload…
#ERNeu
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TCA Thyroid Cancer retweeted
1 Jun 2022
This year #EWAC22 has dedicated days on each aspect of the cancer care continuum.
#AllCanGlobalSummit's 26 speakers will also have the full patient journey in mind when discussing actionable steps to #ImplementEfficiencyInCancerCare
You can still register bit.ly/3MLxfmN
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13 Jun 2022
"National guidance from NHS England is clear that T3 should be made available to these patients and yet local areas are simply not following this.”
- Our Head of Policy and Research @jacoblant on new insight from the @ThyroidTrust. bit.ly/3Qm3oUb
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