We are here to support girls with Turner Syndrome and to get awareness out about it as well!
Joined December 2009
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Turner Syndrome Fact of the Day: Turner Syndrome patients can and do lead full and happy lives!
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Turner Syndrome Fact of the Day: Significant individual variations of particular cognitive strengths and weaknesses exists among females with Turner Syndrome.
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Turner Syndrome Fact of the Day: Anxiety is common for individuals with Turner Syndrome.
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Turner Syndrome Fact of the Day: for those with Turner Syndrome, swelling from Lymphedema can be present at birth and if it doesn't recede by age four it will likely be a chronic condition.
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Turner Syndrome Fact of the Day: Many individuals with Turner Syndrome have relatively large hands and feet.
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Turner Syndrome Fact of the Day: Visual- spatial deficits may lead to learning difficulties especially in math, driving and directions.
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Turner Syndrome Fact of the Day: A short or webbed neck is common with Turner Syndrome, occurring in about 40% of patients.
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Turner Syndrome Fact of the Day: Individuals with Turner Syndrome are at higher risk of developing keloids. This should be taken into consideration before elective surgery, piercing, or tattoos.
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Turner Syndrome fact of the day: Lack of estrogen is the most important factor contributing to low bone density in women with Turner Syndrome.
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Turner Syndrome fact of the day: High Cholesterol levels occur in 50% of woman with Turner Syndrome, a higher rate then observed in the general public.
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Turner Syndrome fact of the day: There are an estimated 80,000 girls and women with Turner Syndrome in the United States.
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Turner Syndrome fact of the day: Girls and women with Turner syndrome are at higher risk of having a bicuspid aortic valve.
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Turner Syndrome fact of the day: The average age of diagnosis is 9 years of age, but there is still a percentage of individuals not diagnosed until adulthood.
I myself was diagnosed with TS at two weeks old.
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Turner Syndrome fact of the day: Nail Dysplasia is found in approximately 70% of Turner Syndrome patients.
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Turner Syndrome fact of the day: 10-20% of all first-trimester miscarriages are caused by Turner Syndrome.
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Turner Syndrome fact of the day: Only 1-2% of babies with Turner Syndrome will survive to birth.
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Turner Syndrome fact of the day: Other names for TS are Monosomy X and congenital ovarian hypoplasia syndrome.
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Turner Syndrome fact of the day: Inflammatory Bowel Disease is 2 to 3 times more likely to occur in individuals with TS.
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Turner Syndrome fact of the day:Some individuals with TS experience nonverbal learning disability (NVLD) or other learning disabilities that may require accommodations in school, particularly in math.
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