Addressing research inequities & supporting patient engagement in clinical trials -🧑🏻⚕️💼 @AsiaCritical 🎓 @UBC 🙋🏻🎬 @GHFilm #pragmatictrials #criticalcare
Joined September 2016
- Tweets 613
- Following 610
- Followers 294
- Likes 1,870
144 Photos and videos
Timo Tolppa retweeted
13 Mar 2025
How can uptake of research into policy be strengthened?
Join the next Mesh webinar on Advisory Groups for Research in 🇮🇳🇵🇰 & 🇻🇳. Experts will share how advisory groups have been valuable in improving research in their fields.
🗓️27 March
Register now: zoom.us/webinar/register/941…
4
6
489
18 Nov 2024
Huge thanks to @remap_cap for being a champion for patient and public involvement and engagement in #criticalcare
7 Nov 2024
Keeping patients, their families and the public engaged is a strength of REMAP-CAP.
🇵🇰 The Pakistani Patient & Public Involvement & Engagement group's 2024 summit gained national news coverage and presented networking opportunities.
👉 youtube.com/watch?v=3Lsgedtz…
#10YearsREMAPCAP
1
3
206
16 Nov 2024
Thanks to @ISARIC1 for highlighting our public engagement summit in Pakistan in this blog post as well as supporting our activities to bring the patient voice into clinical research
Read more here: isaric.org/isaric-researcher…
#PPIE #communityengagement
68
27 Oct 2024
A compelling opinion piece shared by my friend and colleague @bharathkumartv: undark.org/2024/10/25/opinio…
"To make global health truly participatory, the world’s health institutions must adopt a radical approach to listening to everyday people"
2
112
17 Oct 2024
Today - Register here: bit.ly/4eIejUd
@drarishay and I will share our journey in public engagement in Pakistan with researchers in Brazil. Excited for this South-to-South collaboration and mutual learning with @bricnetbr @SBPPC2016 @Insper and others
1
88
16 Oct 2024
Great to end my day reading messages of hope from leading individuals working on health #equity - A field which can often seem like a long list of issues that haven't been solved
15 Oct 2024
For @sciam's solutions to health equity package, we asked a handful of experts what is giving them hope for health equity
Here's what @paimadhu @seyeabimbola @RRHDr @BarneyGrahamMD @DrAlethaMaybank & Wafaa El-Sadr had to say
1
96
15 Oct 2024
Great to see UK regulators creating guidance to support the design of more inclusive trials! The challenge will be in the uptake, particularly by those who don't already consider diversity
Will contribute to this consultation with @drarishay & encourage others to do the same
14 Oct 2024
The UK's Health Research Authority (HRA) plus Medicines and Healthcare products Regulatory Agency (MHRA) have just launched a consultation on plans for Inclusion and Diversity Plans to be part of approvals submissions.
See hra.nhs.uk/about-us/news-upd…
Consultation closes 9/12/2024
ALT Screenshot of the HRA and MHRA webpage on their Inclusion and Diversity Plans.
1
3
234
14 Oct 2024
Just registered for this! Really excited to learn more, particularly about the patient and public engagement component of this exciting project
Might be of interest to @drarishay and colleagues in the @africacritical network
80
Timo Tolppa retweeted
11 Oct 2024
An absolute pinch me moment to have the main ROSHNI2 paper published in @TheLancet . This marks a shift in the years of conversations around 'hard to reach' communities.
24
58
226
21,389
10 Oct 2024
Looks like a great event! Unfortunately I won't be in Europe, but would encourage others to attend
✨Join us to celebrate a decade of #impact of #trialsmethodology research in Ireland via the @hrbtmrn.
🛣️Our journey began in 2014 & it's time to reflect on the past & look forward to exciting future innovations.
💻Register: hrb-tmrn.ie/training-educati…
2
103
10 Oct 2024
Last week I attended @ictmc2024 where @drarishay and I had the privilege of sharing our work with three posters and two oral presentations
Highlights from our work on pragmatic trials, consent redesign, public engagement and representativeness in trials in South Asia below 🧵
2
10
201
10 Oct 2024
Empowering Patients - Revising Informed Consent Processes for Critical Care Trials in Pakistan
Our public group has worked with us to make informed consent for @MegaROXtrial and @remap_cap more culturally sensitive and relevant in the Pakistani context
1
2
5
270
10 Oct 2024
All these pieces of work are hopefully contributing to a more efficient, ethical and socially responsible conduct of trials in South Asia
We hope to publish much of this work soon. Stay tuned and follow me and @drarishay if you'd like to keep up to date
33
9 Oct 2024
Attended the first ECHO learning platform for trialists organised by @CANTAPTALENT
A clear informative talk by @lmbuagbaw on pilot & feasibility studies. This interesting @PLOSONE article came up when discussing how such studies may prevent research waste - Worth a read
3
6
359
Timo Tolppa retweeted
3 Oct 2024
@ictmc2024's final keynote speaker @kamleshkhunti is guest editor with @ShobaDawson of a new Trials journal article collection called 'Improving equity, diversity, and inclusion in randomised trials'
biomedcentral.com/collection…
Submission deadline 30th June 2025.
#ICTMC2024
ALT Picture of call text, which is also available via the link in the tweet.
1
18
42
3,077
Timo Tolppa retweeted
3 Oct 2024
.@TimoTolppa giving a fab talk by telling us a story about the complex cultural problems in the consent process for an ICU RCT in Pakistan. So important to hear of the work being done in low resource settings & think about which lessons may be overarching
#ICTMC2024
3
9
384