Supporting and empowering Kansas City families affected by sickle cell disease. MY CAUSE MY CLEATS: mcmc.rayzeapp.com/adetomiwaa…
Joined April 2013
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Supporting someone with sickle cell isn't complicated. It starts with believing their pain is real. Be flexible, check in, and offer practical help. Your consistent compassion makes all the difference in their world. Learn how to be a better ally at sicklecellmidwest.org. #UEO
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Small acts of support make a huge impact for those living with sickle cell. Believe them when they share their pain, be flexible with plans, check in, and never minimize their experience. Your consistent compassion means everything. Learn more at sicklecellmidwest.org. #UEO
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Happy Birthday, Toriana! 🎂 We're so grateful to have you in the Sickle Cell Midwest family. Wishing you a beautiful day! sicklecellmidwest.org #UEO #UrielEOwens
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In sickle cell disease, a fever isn't just a fever—it can be a medical emergency. SCD compromises the immune system, making early action against infection critical. Know the sicklecellmidwest.org
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Your voice can create real change for the sickle cell community. Share a fact, start a conversation, wear red. Your support matters. Find resources & get involved: sicklecellmidwest.org #UEO
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Sickle cell affects the brain as much as the body. Mental and physical health are deeply connected, and treating the whole person matters. sicklecellmidwest.org #UEO #UrielEOwens
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Looking okay doesn't always mean feeling okay. People with sickle cell often mask their pain to get through the day. This Mental Health Awareness Month: believe people. sicklecellmidwest.org #UEO #UrielEOwens
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This Memorial Day, we remember everyone we've lost to sickle cell disease and stand with those still fighting. In memory. In action. sicklecellmidwest.org #UEO #UrielEOwens
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Sickle cell affects more than the body. Stress, worry, burnout, and isolation are part of this disease too. Whole-person care matters. Learn more at sicklecellmidwest.org #UEO #UrielEOwens
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Myth: Sickle cell is just pain.
Fact: It's a complex disease affecting the whole body.
Myth: There's no treatment.
Fact: Treatments exist & research offers real hope.
Know sicklecellmidwest.org
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MYTH: If you look healthy, you can't be in pain.
FACT: Sickle Cell causes severe, invisible symptoms like chronic pain and organ damage.
Let's believe patients and bust these myths: sicklecellmidwest.org
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Sickle Cell Disease is not just pain. It's chronic fatigue, anemia, vision problems, and a higher risk of infections. This complex condition affects the entire body. Awareness sicklecellmidwest.org
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Trait vs. Disease: What's the difference?
Trait = 1 sickle gene (carrier), usually no symptoms.
Disease = 2 sickle genes, can cause serious health issues.
Knowledge is power. sicklecellmidwest.org
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A sickle cell pain crisis isn't "just pain." It's a serious medical event caused by blocked blood flow, leading to severe pain, fatigue & more. It’s your body’s alarm. Listen to sicklecellmidwest.org
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Happy Birthday to our incredible Board Chair, Dr. James Birch! 🎉Thank you for your tireless dedication, leadership, and heart for the sickle cell community here in the Midwest.
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Sickle cell is more than pain. Symptoms like fever, chest pain & sudden vision changes can be emergencies. Don't brush them off. Trust your body and get checked out. Early care sicklecellmidwest.org
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Looking 'okay' doesn't mean feeling 'okay.' Sickle cell is an invisible illness. The silent struggle with extreme pain & constant fatigue is real. Choose compassion and be sicklecellmidwest.org #UEO
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Sickle cell disease isn't just pain. It's a complex, whole-body condition that can affect the brain, lungs, kidneys, and more. Awareness and early care lead to better outcomes. sicklecellmidwest.org
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Myth: Sickle Cell is just anemia and fatigue.
Fact: It's a complex disease with severe pain crises, frequent infections, and vision problems.
Know the real symptoms. Spread sicklecellmidwest.org
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Sickle cell pain is real, but so is your strength. A pain crisis plan is your power tool. Know your triggers, stay hydrated, and keep your care team close. Be prepared, not sicklecellmidwest.org #UEO
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