UK Primary Immunodeficiency Patient Support. Message us to show your support. Brand New Website Just Launched. Show Your Support!
Joined February 2012
- Tweets 2,547
- Following 342
- Followers 396
- Likes 779
5 Photos and videos
UKPIPS retweeted
30 Nov 2015
@UKPIPS llandoverycollege.com/old-ll…
Interview with the inspiring Rebecca Griffiths! A huge supporter and fundraiser of UKPIPS #RaiseAwareness
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UKPIPS retweeted
26 Nov 2015
We've responded to the consultation on the NHS mandate for 2016/17. You can read this here: ow.ly/V6Oyq
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UKPIPS retweeted
26 Nov 2015
The UK strategy for #raredisease commits to improve education and awareness of rare diseases across the healthcare professions
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UKPIPS retweeted
25 Nov 2015
"Following our earlier announcements on Facebook and via the Newsletter, UKPIPS Christmas Cards are now available... fb.me/4cxKAPdYI
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UKPIPS retweeted
24 Nov 2015
24 Nov 2015
Families living with rare disease feel alone but have a lot in common says Lara Theoret @CHEOhospital
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UKPIPS retweeted
24 Nov 2015
UKPIPS is so grateful to our Medical Advisory Panel for the advice and support that they give us. It is a... fb.me/4jqPxpXlx
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UKPIPS retweeted
24 Nov 2015
You have until Monday 7th December to nominate yourself for our management committee: bit.ly/1jfBk3X #raredisease
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UKPIPS retweeted
24 Nov 2015
Congratulations to Emily Carne for winning the RCN "Nurse of the Year". Raising the voice of immunology nursing at national level 👏
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UKPIPS retweeted
22 Nov 2015
@UKPIPS @GeneticAll_UK @LlandoveryColl @accentureukjobs I've finally updated my blog after 2 years . rebeccacjg.blogspot.com😃
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UKPIPS retweeted
22 Nov 2015
Two weeks left to apply to be a member of our management committee: raredisease.org.uk/managemen…
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UKPIPS retweeted
22 Nov 2015
Help create the first children's Rare Diseases Centre in the UK @Bham_Childrens bit.ly/1jd9Lcs #raredisease
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UKPIPS retweeted
21 Nov 2015
RT @CDC_tweets: Our new rights based toolkit is here so young people know what support they should be getting bit.ly/1l9cqnW #YRYF
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UKPIPS retweeted
19 Nov 2015
@INGID_Tweets @primaryimmuneuk @UKPIPS Great! Managing time spent at hospital helps PID people get on with life
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UKPIPS retweeted
21 Nov 2015
This Mandate is the document which the Government tells NHS England the minimum standards it expects it to reach... fb.me/3C2GEfolJ
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UKPIPS retweeted
20 Nov 2015
"Patients help companies grow a passion for disease, not just for science". Read our #ODWC #pharmaintegrates blog ow.ly/USh4o
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UKPIPS retweeted
20 Nov 2015
Patient Solidarity Day is on 5 December @PatientSolDay @IAPOvoice. More info: ow.ly/UBai0 #patient #RareDisease
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UKPIPS retweeted
20 Nov 2015
It's #CarersRightsDay.
@CarersUK are ensuring carers get the support they're entitled to carersuk.org/news-and-campai…
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UKPIPS retweeted
20 Nov 2015
@UKPIPS had a lovely day filming with @Baxalta on Monday! They are such a fab team! 😃 #spark #patientsmatter #MD&Me
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