UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.
Joined April 2009
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Just 48 hours until #MitoMed 2026! Today, Andy Dearth, UMDF’s Director of Marketing, Communications, and Advocacy, shares what he's most looking forward to at this year's conference. Tag someone you're excited to reconnect with at MitoMed!
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We're grateful to BPG Bio for their continued support of #MitoMed. We look forward to partnering once again as we bring together patients, families, clinicians, and researchers at the Mitochondrial Medicine Conference 2026 in Orlando.
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You don’t have to navigate #mitochondrialdisease alone. Connect with patients and families through UMDF’s weekly virtual Support Meetings. Check our events calendar for login details and join us. umdf.org/events-calendar/
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Attention #MitoMed attendees! A favorite with conference attendees, the Doctor Is In offers patients & families the opportunity to meet with some of the top specialists in #mitochondrialmedicine one-on-one. Download the MitoMed app to get started! umdfconference.org/app/
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Our UMDF team is ready for #MitoMed 2026 and can’t wait to see the #mito community in Orlando, June 17–20.
Here’s what our staff is most looking forward to at this year’s conference.
To register, visit: umdfconference.org
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If you’re joining us at #MitoMed 2026, this month’s newsletter is a must-read. From family and clinician session details to how to download the Mito Med app, it’s your guide to getting conference-ready. To read the newsletter: umdf.org/june26_newsletter/
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In collaboration with @ucb_news, UMDF has developed the TK2d Early Symptom Reflection Tool to help patients and their caregivers prepare for meaningful conversations with their clinical care team about #TK2d. Learn more at umdf.org/tk2d/#reflectiontoo… #mitochondrialdisease
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We’re excited to once again have the @ChildrensPhila as a sponsor at this year’s #MitoMed Conference 2026. Thank you for partnering with UMDF and supporting the #mitochondrialdisease community.
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Help support #mitochondrialdisease research by joining UMDF’s Biorepository – a joint project with COMBINEDBrain – at this year’s #MitoMedicine Conference.
For questions, email registry@umdf.org.
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A community that understands your journey starts here. Connect with patients and families through weekly Virtual Support Meetings hosted by UMDF to share experiences and find encouragement in the #mitochondrialdisease community. umdf.org/events-calendar/
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For families navigating a CPEO/KSS diagnosis, this year’s #MitoMed 2026 has programming just for you. The CPEO/KSS programming will connect you with fellow families and give you the opportunity to network with the leading clinicians and researchers. umdfconference.org/cpeo-kss-…
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If you missed our last Ask the Mito Doc webinar that was full of helpful information for our upcoming #MitoMed conference taking place later this month, you can now watch the replay.
To watch the replay visit: youtube.com/playlist?list=PL…
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Help researchers at the University of Cambridge and the University of Bologna learn more about the clinical progression of #MNGIE (#Mitochondrial Neuro-Gastro-Intestinal Encephalomyopathy) by participating in a natural history study. umdf.org/studiesandsurveys/
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Save the date for UMDF’s next Energy for Life Walk taking place at Wolfe Park in St. Louis Park, MN on Saturday, August 15 at 9 AM CST. Be the energy with every step you take to raise awareness and funding for the #mito community. energyforlifewalk.org/minnes…
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Interested in volunteering with UMDF and getting involved with the #mito community? Join the next virtual Volunteer Interest Meeting on Wednesday, June 3 at 12 PM ET where you can find out more about available #volunteer opportunities. umdf.secure.nonprofitsoapbox…
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Find your support circle at one of UMDF's weekly Virtual Support Meetings. Check our events calendar for log in details and to connect with patients and families in the #mitochondrialdisease community. umdf.org/events-calendar/
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When you support UMDF’s Spring Appeal, you’re shining a light on #mitochondrialdisease. Now through June 1, all gifts are matched, doubling your impact for the #mito community.
umdf.donordrive.com/SpringAp…
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Attention, teens! Our #MitoMed 2026 Conference has something just for you. On Friday, June 19 at 2 PM, join us for a Teen Session featuring art and music therapy, adaptive sports, and time to unwind with therapy dogs. umdfconference.org/patient-f…
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