Chairman of the Usher Syndrome Coalition
Joined August 2015
- Tweets 679
- Following 129
- Followers 203
- Likes 4
78 Photos and videos
16 Sep 2017
Gonna finish my Melbourne mile then have a beer to celebrate. Happy Usher Syndrome Awareness Day! #USHEQX
1
3
16 Sep 2017
We own the equinox, do the impossible, make the day last more than 24 hours. There is lots of time to support @UsherCoalition today. #USHEQX
1
1
16 Sep 2017
The @UsherCoalition is often called the heart of the USH community. If you want that heart to continue to exist we need your support #USHEQX
3
3
16 Sep 2017
There is still time to donate to @UsherCoalition. We need your help desperately. Without it we won't be here. #USHEQX
1
16 Sep 2017
And for the second year in a row I will walk my last mile on Usher Syndrome Awareness Day in Melbourne Australia! #USHEQX
1
3
16 Sep 2017
In the last 26 days I have walked a mile in Hyannis, Wellfleet, and Sandwich on Cape Cod. #USHEQX
1
1
16 Sep 2017
Walked a mile a day (at least) for 26 days. Save for one. Took 24 hours to fly here. Missed that day. #USHEQX
1
31 Aug 2017
If you find Connections Conferences, International Symposiums, and USHTalks valuable, you need @UsherCoalition #USHEQX
3
1
31 Aug 2017
If you think creating a pool of candidates to complete clinical trials for #ushersyndrome is important, you need @UsherCoalition #USHEQX
3
2