Involving people with learning disabilities in end-of-life care planning. Working together to develop a toolkit and resources. Led by @TuffreyWijne (NIHR202963)
Joined March 2022
- Tweets 350
- Following 208
- Followers 627
- Likes 263
109 Photos and videos
Pinned Tweet
3 Mar 2025
We have moved to BlueSkyš¦The project is over but we are working on new follow-up projects. Follow us there instead: bsky.app/profile/victstuprojā¦.
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7 Nov 2024
Join our session tomorrow! #MacmillanProfessionals
7 Nov 2024
On my way to the @macmillancancer Professionals Conference in Walesā”ļø I am talking about health inequalities, learning disability, and The Victoria & Stuart Project on Friday in the āGetting It Right at End of Lifeā session (11.25-12.00) chaired by @drol007. Canāt wait!
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4 Nov 2024
Join our session at 12.15 on Wednesday š¢
4 Nov 2024
On Wednesday, I am presenting at the Learning Disability and Autism Conference hosted by @NHS_ELFT āØI am excited to be talking about end-of-life care planning with people with learning disabilities and @VictStuProject. More info: elft.nhs.uk/news/national-onā¦
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The Victoria & Stuart Project retweeted
23 Oct 2024
PCPLD National Conference āWhatās new in palliative care for people with a learning disability?ā. š£Call for abstracts š£ Come and share your story, project or research! Details below ā¬ļø
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23 Oct 2024
Save the date šļø
21 Oct 2024
EXCITING NEWS šļø ā¼ļøSave the date for our next #PCPLD conference ā¼ļø āWhatās new in palliative care for people with a learning disabilityā. Date: 19th June 2025 , where: @KingstonUni, Surrey. Further information to follow soonā¦.spread the word!
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The Victoria & Stuart Project retweeted
3 Oct 2024
Brilliant ways to support advance care planing discussions: @VictStuProject @NoBarriersHere
Check them out! Co-produced by people with learning disabilities!
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Just one day till our annual conference! Excited to see all our lovely members and learn from brilliant speakers @olivia_warnes, Dr Andrea Bruun @VictStuProject and Professor Kish Bhatti-Sinclair.
Birmingham here we come! āŗļø
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11 Sep 2024
End of life care planning...
How would YOU feel if a nurse came into your bedroom at home?
Listen to Richard, Leon and Amanda pondering this question, and more:
youtube.com/watch?v=oEc3f34Vā¦
Download WHEN I'M ILL cards:
victoriaandstuart.com/when-iā¦
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4 Sep 2024
We are back at the @APCSW1 annual confernece, this time with @AndreaBruun as one of the keynote speakersš¢ We are excited to talk about end-of-life care planning with people with learning disabilities and learn from the audience and the other speakers. See you on 27 September!
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2 Sep 2024
On Friday, @AndreaBruun did a workshop with @mariecurieuk on our end-of-life care planning toolkit. Attendees tried the resources we have developed and discussed how they could implement the toolkit in their work and services. The room was buzzing - a great Friday afternoon!
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31 Aug 2024
Today is officially the last day of our amazing project. Here is our final report in accessible format (7 min video)
THANK YOU everyone! Please share!
youtube.com/watch?v=FgKS1tnuā¦
@NIHRinvolvement @KingstonUni @DimensionsUK @MeetMacIntyre @VODGmembership @MSHospice
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29 Aug 2024
After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections
youtu.be/8P-6Z6rRlm8?si=9N_8ā¦
Leon, youāve been wonderful!!!
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29 Aug 2024
Look what just came in the post? Our Let's Talk About Funerals @uk_beyondwords resource, beautifully printed by @weareimpress, all ready for a workshop with @MarieCurieEOLC tomorrow. We are excited to share our toolkit with and learn from Marie Curie staff!
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Spaces available for our 2024 conference - exploring equitable access to palliative and end-of-life care.
September 27th, Birmingham.
Speakers include Olivia Warnes from @hospiceuk Dr Andrea Bruun @VictStuProject and Prof Kish Bhatti-Sinclair.
Book here: apcsw.org.uk/dates-for-the-dā¦
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9 Aug 2024
Playing the hat game all over the world šš©šŖ Put on your hat if you went to the @IASSIDD world congress.
We had a great time presenting our work and meeting new people at the conference. Soon itās time to get ready to leave Chicago and go back home.
8 Aug 2024
Weāve won the Best Photo Competition! Kingston University London at the closing ceremony of @iassidd #iassidd2024
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8 Aug 2024
We have published an academic article about the work we did with the All Together Group!āØ Thank you to our fantastic All Together Group members - we couldnāt have done The Victoria & Stuart Project without you!
Check it out here:
onlinelibrary.wiley.com/doi/ā¦
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6 Aug 2024
Weāre at the 17th @IASSIDD world congress in Chicago this week! We are doing several presentations throughout the conference. Come say hi to the team if youāre here too! #IASSIDD2024
6 Aug 2024
We gave 4 talks, sat on a panel discussion, recorded 2 podcasts (& edited one), made this videoā¦ and were thrilled to meet loads of old and new friends from the international intellectual disability research family @IASSIDD #iassidd2024 @yonalunsky @AliveLeder @VictStuProject
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The Victoria & Stuart Project retweeted
5 Aug 2024
Really enjoying Chicago! The serious work starts tomorrow @IASSIDD #iassidd2024
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The Victoria & Stuart Project retweeted
2 Aug 2024
Very excited to be speaking about the @VictStuProject at the @NHS_ELFT National Online Learning Disability and Autism Conference later this year š»
Check out this year's themes and sign up here: elft.nhs.uk/news/national-onā¦
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