Improving the quality of life for the Wisconsin bleeding disorders community
Joined March 2009
- Tweets 2,280
- Following 699
- Followers 1,034
- Likes 219
262 Photos and videos
8 Sep 2024
RT @CollinRugg: JUST IN: The mother of Apalachee school sh**ter Colt Gray called the school on the morning of the sh**ting, warning them of…
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GreatLakesHemophilia retweeted
6 Sep 2024
BREAKING: In a stunning moment, Donald Trump just incoherently rambled about someone accusing him of sexual assault. Trump is senile, disgusting, and cannot be allowed back in the White House. Retweet to make sure all Americans see this.
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22 Jun 2023
Today, GLHF along with our partners in the national #AllCopaysCount Coalition, met with the offices of Michigan Senator @GaryPeters to highlight the damaging effects of copay accumulator adjusters on access to treatment for people living with bleeding disorders. #helpcopaysact
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22 Jun 2023
Today, GLHF along with our partners in the national #AllCopaysCount Coalition, met with the offices of @SenatorBaldwin to highlight the damaging effects of copay accumulator adjusters on access to treatment for people living with bleeding disorders. #helpcopaysact
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3 Apr 2023
April 17, 2023 is #WorldHemophiliaDay! We celebrate #WHD2023 in order to raise awareness for inherited bleeding disorders across the globe. We invite you to advocate with your local policy makers for improved access to treatment and care with an emphasis prevention of bleeds.
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28 Mar 2023
Madison's Best Bloody is SOLD OUT! Cheers to those who purchased tickets! 🍻 We look forward to Sunday-funday with you on April 16 at @garverfeedmill ! #madisonwi #bestbloody
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28 Mar 2023
We were honored to have @GovEvers sign a proclamation officially making March #BleedingDisordersAwarenessMonth in #Wisconsin helping to widen our range of awareness.
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28 Mar 2023
This #bleedingdisordersawarenessmonth we were able to talk with 29 state and 6 federal legislators about access to care, #AllCopaysCount legislation and life with a bleeding disorder.
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28 Mar 2023
We are coming to the end of Bleeding Disorders Awareness Month, but we all know education and advocacy is something to celebrate and carry on throughout the year. #glhfadvocacy
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GreatLakesHemophilia retweeted
24 Mar 2023
The dozens of members of our coalition including @TheAACU @ACSCAN @AmDiabetesAssn all agree that Wisconsin needs a law to make sure #AllCopaysCount. Make your voice heard today! wi4patients.com/take-action
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GreatLakesHemophilia retweeted
During BDAM, NHF is encouraging all members of the community to start the conversation. One of the best ways to do so is to join CVR. Learn more here:
hemophilia.org/research/comm…
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GreatLakesHemophilia retweeted
Join us this Wednesday for Hablando Contigo to meet and chat as part of the Latino and #bleedingdisorders community. Share stories and coping techniques to help us stay connected virtually. Register now: bit.ly/HablandoContigo23. #HFA #community
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GreatLakesHemophilia retweeted
27 Mar 2023
According to a 2022 @AIDSAdvocacy report, 8 out of 13 commercially available insurance plans in Wisconsin are implementing copay accumulator policies. Urge your legislators to ensure #AllCopaysCount wi4patients.com/take-action
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GreatLakesHemophilia retweeted
23 Mar 2023
59,000 is a great place to start but we need to do more to provide #access to #healthcare for girls, women and people with the potential to menstruate @NHF_Hemophilia #healthequity
22 Mar 2023
Health Tip: #DYK women can have #hemophilia? According to the Sept 2022 Community Counts data report, more than 59,000 women and girls receive care at a US hemophilia treatment center (HTC). Providers: Learn more about HTC patients:
bit.ly/3Wnzmlb
#BDAM
ALT Girls Friendship Togetherness Community Concept
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GreatLakesHemophilia retweeted
Rewatch February's educational #webinar, Advances in Diagnosis & Management of #vWD. Dr. Veronica Flood discusses advances in diagnosis & management of #vonWillebranddisease while highlighting current and forthcoming therapeutic options 👉 bit.ly/42mGaDB. #HFA
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