Joined March 2015
- Tweets 1,531
- Following 426
- Followers 1,104
- Likes 2,111
180 Photos and videos
Williams Syndrome UK retweeted
17 Nov 2025
Join Genetic Alliance UK for our free Rare Resources Scotland event in Aberdeen on 9 Dec 2025. Get vital info, connect with other people and find support for genetic, rare and undiagnosed conditions.
Book your free place eventbrite.co.uk/o/genetic-aā¦
@quarriers @fragilexuk
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Williams Syndrome UK retweeted
7 Nov 2025
7.11 - Williams Syndrome Day
Save the Date!!
Check out our CDLD 40 facts about WS to learn more, or explore our short course!
Facebook @williamssyndromefoundationuk
Instagram @WSF_UK
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Williams Syndrome UK retweeted
7 Nov 2025
š„° My Eva, who has #williamssyndrome.
What is Williams Syndrome, I hear you ask?
Few pics on it and to find out more about Williams Syndrome, visit williams-syndrome.org.uk @WSF_UK
#williamssyndromeday #wsf
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Williams Syndrome UK retweeted
23 Jun 2025
On Wednesday 25th July, @WSF_UK are holding a webinar on 'Upholding the legal rights of people with William Syndrome (and similar conditions)' - designed to support parents and carers of children and adults with Williams Syndrome.
Book your pace now: forms.office.com/pages/respoā¦
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20 Jun 2025
Participants needed!
@durhamuniversity require people with Williams Syndrome aged 12 - 25 and their parents, to take part in a study looking at the social world of people with WS. Watch the short video to find out more. youtube.com/watch?v=WL-Y4M50ā¦
email: grace.e.mccabe@durham.ac.uk
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19 Jun 2025
NEW WEBINAR!āļø
Wednesday 25th July - Upholding the legal rights of people with WS with Eliza Sharron and Imogen Jolley.
Our webinars are designed to support parents and carers of children and adults with WS. Email: enquiries@williams-syndrome.org.uk
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Williams Syndrome UK retweeted
17 Jun 2025
It's learning disability week. This year's theme is about being seen, heard and being valued. People over 14 with a learning disability should have a health check every year. youtu.be/ocU8XhD1kh8 Make sure you ask your GP for your health check youtu.be/TBZpaJbeg2g
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Williams Syndrome UK retweeted
11 Jun 2025
Proud to have contributed to Jamie Oliverās Dyslexia Revolution documentary on Channel 4 with The Jamie Oliver Group, which shines a spotlight on what needs to change in our education system for children with SEND (šš”
#SEND #EducationReform #Dyslexia #JamieOliver #ComeOnBridget
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Williams Syndrome UK retweeted
10 Jun 2025
This week is Carers Week. Thank you to all of the carers in the U.K. and all over the world.
#CarersWeek #CarersWeek2025 #Carers
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5 Jun 2025
Participants needed for research study! @durham_uni require young people with Williams Syndrome aged 12 - 25 and their parents, to take part in a study on the social world of people with WS. Please scan the QR codes or email: grace.e.mccabe@durham.ac.uk.
youtube.com/watch?v=WL-Y4M50ā¦
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29 May 2025
Please watch this wonderful video starring Ashlee and Isabel - two inspirational ladies with #WilliamsSyndrome and ambassadors for the WSF ā¤ļø
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Williams Syndrome UK retweeted
27 May 2025
See the plain English england.nhs.uk/long-read/heaā¦ and easy read england.nhs.uk/wp-content/upā¦ guidance on how to the complete the health and care passport template which is for people with a learning disability, autistic people, their families/carers.
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21 May 2025
Thank you to our wonderful WSF Patrons Elizabeth and Peter for helping to spread awareness of #WilliamsSyndrome for their niece Molly!ā¤ļø
Find out more about Williams Syndrome at williams-syndrome.org.uk
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#williamssyndromeawarenessmonth #williamssyndrome #shareyourheart #DrWho
21 May 2025
May is Williamās Syndrome Awareness month. Hereās a message from Peter and I, proud patrons and proud Aunty and Uncle of wonderful Molly who has Williams ā¤ļø. @WSF_UK @DrHeery
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Williams Syndrome UK retweeted
20 May 2025
We celebrate #WilliamsSyndrome Awareness Month in May. By raising awareness, we can improve early diagnosis and intervention, promote research as well as reduce feelings of isolation and discrimination. Join us and help spread the Williams Syndrome word in May!
@WSF_UK
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Williams Syndrome UK retweeted
20 May 2025
The @WSF_UK Family Convention provides excellent opportunities for everyone to make friends and share support. There are presentations and workshops hosted by professionals and experts in WS. Find out more about our conventions by watching this video: williams-syndrome.org.uk/wsfā¦
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Williams Syndrome UK retweeted
20 May 2025
Thank you for following our #TuesdayTakeover! If you would like to find out more about #WilliamsSyndrome or the @WSF_UK, please contact us at enquiries@williams-syndrome.org.uk or visit williams-syndrome.org.uk 0208 5671374 #Charity #Genetics #Rare #Awareness
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Williams Syndrome UK retweeted
20 May 2025
We are fortunate to have a fantastic Professional Advisory Panel (PAP) - a panel of professionals who have expertise in WS and/or a special interest in voluntarily supporting families with WS.
#WilliamsSyndrome #WilliamsSyndromeSupport @WSF_UK
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Williams Syndrome UK retweeted
20 May 2025
@WSF_UK supports individuals with WS and their families through research, resources, and events. Learn more: williams-syndrome.org.uk #RareDisease #WilliamsSyndrome #Charity #Genetics #Chromosome #Rare #Healthcare #NHS
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Williams Syndrome UK retweeted
20 May 2025
The @WSF_UK is a small UK charity, providing help and support for individuals with Williams Syndrome. We fund research, create resources and organise regional events to keep families connected. williams-syndrome.org.uk
#WilliamsSyndrome #Charity #Rare #Support
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Williams Syndrome UK retweeted
20 May 2025
Williams Syndrome is a rare genetic condition affecting around 1/18,000 people in the UK. Itās caused by a deletion on chromosome 7. It causes cardiac, physical and mental health problems as well as learning disabilities. williams-syndrome.org.uk
#WilliamsSyndrome @WSF_UK
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