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World Primary Immunodeficiency Week @WorldPIWeek

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Joined January 2013
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We are deeply saddened by the passing of Jose Drabwell, a beloved leader, advocate, and friend to the Primary Immunodeficiency community. We extend our deepest condolences to Jose’s family and friends; her legacy will live on through the lives she changed around the world.
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📢The World PI Week Outcome Report is out! bit.ly/4btM8pk -From pages 1-26, discover the 2024 activities & main achievements. 📈 -Pages 27-97 feature snapshots & info on how 54 countries supported this year. 🌎 Every week we will highlight a different regional activity!
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❓Curious about how other countries celebrated #WorldPIWeek? 🌍 🔖Pages 27 - 97 of the 2024 outcome report will take you on an exciting journey across the globe and show how each country raised awareness on #primaryimmunodeficiency bit.ly/4btM8pk
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🌟Page 48 of the report highlights the efforts of the patient organization @EscudoAmor from El Salvador during #WorldPIWeek 2024! The organization had a strong social media presence during the week. bit.ly/WPIWOutcomeReport
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🌟Page 36 of the report highlights the efforts of the Belgian patient organization @infobubbleid during #WorldPIWeek 2024! Information stands were set up in various hospitals with doctors and specialists present to answer questions. bit.ly/WPIWOutcomeReport
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🌟Page 44 of the report highlights the efforts of the Chinese patient organization #PIDCareChina during #WorldPIWeek 2024! A public education campaign and exhibition was organized at the China Pharmaceutical University. bit.ly/WPIWOutcomeReport
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🌟Page 49 of the report highlights the efforts of the Estonian patient organization PIDESTONIA during #WorldPIWeek 2024! PIDESTONIA set up awareness-raising displays in various libraries, and held presentations at higher education institutions. bit.ly/WPIWOutcomeReport
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🌟Page 86 of the report highlights the efforts of the Ukrainian patient organization RID – Rare Immune Diseases during #WorldPIWeek 2024! An educational event was organized to spread information and raise awareness about PIDs. bit.ly/WPIWOutcomeReport
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🌟Page 83 of the report highlights the efforts of the Turkish patient organization @AllerjiDernegi during #WorldPIWeek 2024! Tree planting activities were organized to raise awareness on PIDs. bit.ly/WPIWOutcomeReport
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🌟Page 30 of the report highlights the efforts of the Argentinian patient organization @aapidp during #WorldPIWeek 2024! A virtual Congress was organized covering vaccination and access to care. bit.ly/WPIWOutcomeReport
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🌟 Page 65 of the report highlights the efforts of the Japanese patient organization @PID_Tsubasa during #WorldPIWeek 2024! A family day was organized, as well as a social media campaign to encourage blood and plasma donations. bit.ly/WPIWOutcomeReport
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🌟 Let us know your thoughts on this year’s #WorldPIWeek 2024 campaign by filling out the Feedback Form! Your feedback helps us shape future campaigns and ensure community voices are heard. bit.ly/WPIWFeedbackForm
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🌟 Page 91 of the report highlights the efforts of the Vietnamese patient organization for primary immunodeficiency (VIETPIPS) during #WorldPIWeek 2024! VIET PIPS actively participated in the World PI Week #PIctureAwareness Contest. bit.ly/WPIWOutcomeReport
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🌟 Reminder to fill out the #WorldPIWeek 2024 Feedback Form! Your feedback is crucial in shaping future campaigns and ensuring that the community's voice is heard. We'd love to hear your thoughts on this year's initiatives! bit.ly/WPIWFeedbackForm
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🌟 Page 55 of the report highlights the efforts of the primary immunodeficiency organization Lind Iceland during #WorldPIWeek 2024. They organized educational meetings for nurses, and published a comprehensive brochure on primary immunodeficiencies. bit.ly/WPIWOutcomeReport
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🌟 Page 72 of the report highlights the efforts of the Dutch Primary Immunodeficiency organization @StvAfweer, during #WorldPIWeek 2024! They organized a Family Day, offering an educational and fun-filled day for its members. bit.ly/WPIWOutcomeReport
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⭐️Page 35 of the report highlights the efforts of Спасем иммунитет – Save Immunity in Belarus! 🇧🇾 Their annual patient meeting united healthcare professionals, organization presidents, & patients and featured a master class on painting for children🎨 bit.ly/4btM8pk
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⭐️Page 90 of the report highlights the efforts of Immunodeficiencias Primarias Venezuela (IDP) Their team distributed vital campaign materials to medical students & hosted a conference specifically for healthcare professionals.🩺 bit.ly/4btM8pk
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💬We want to hear from you! What topics or issues related to #PrimaryImmunodeficiency do you think should be highlighted in our future campaign? Share your thoughts in comments and via the feedback survey and help us spread awareness! bit.ly/3xDBHBW

World Primary Immunodeficiency Week@WorldPIWeek
1 Jul 2024
📢Our feedback form for #WorldPIWeek is now live! 🌍✨ We want to hear how you celebrated and your thoughts for future campaigns. Share your views and suggestions with us by 30 July 2024. 👉bit.ly/3xDBHBW
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⭐️Page 37 of the report highlights the efforts of Belgian patient organisation for primary immunodeficiencies (BePopi) during #WorldPIWeek 2024! They piloted the first PID Café in Brussels, providing lectures & written materials to patients & families. ☕ bit.ly/4btM8pk
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⭐️Page 34 of the report highlights efforts from Primary Immunodeficiencey Patients Society of Bangladesh (PIDPSB) during #WorldPIWeek 2024! Their campaign included a tour of 52 hospitals, spreading awareness with over 3000 flyers and 1000 posters. 📋 bit.ly/4btM8pk
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⭐️Page 82 of the report highlights the efforts of @PIOriks during #WorldPIWeek 2024! Their #GoZebra campaign featured walking tours to raise awareness & funds, alongside hybrid lectures promoting valuable discussions among patients, families & experts. bit.ly/4btM8pk
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