Director of Policy & Influencing @PSPAssociation | formerly @mariecurieuk | Views my own |

Joined May 2020
8 Photos and videos
Mark Jackson retweeted
Only 1 in 5 people get #NHS Continuing Healthcare (CHC) funding, with postcode lotteries making access unfair. We’re supporting Dementia UK's call to #FIXCHC for fairer assessments and funding. Sign @DementiaUK petition: ow.ly/S90x50Z6CJ9 #healthcare
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Mark Jackson retweeted
Last week’s Budget was a missed opportunity to address huge gaps in funding, care and support for people living with PSP & CBD, who are impacted by every decision not to invest in social care.
26 Nov 2025
This week we urged the Chancellor to remember the real #FiguresThatMatter in her Budget. Yet, today’s announcement failed to address the huge barriers to care and support, and the serious funding shortfall. Read our full response here: careandsupportalliance.com/r…
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Mark Jackson retweeted
Welcome to see funding for 250 new Neighbourhood Health Centres in the Budget last week. But as @NeuroAlliance highlights, too many people with conditions like PSP & CBD are still waiting too long for care and support. #ActNowForThe1in6 #TheBudget
Our Statement on the Budget: 26 November 2025 linkedin.com/pulse/our-state… #ActNowForThe1in6
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Mark Jackson retweeted
Stephen and Susan were declined CHC Funding earlier this year. Stephen believes they weren’t eligible because they’re managing by themselves, despite the stress and financial burden. Read their story pspassociation.org.uk/pspand… and how you can help #FixCHC by writing to your MP
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We know that too often, people living with PSP & CBD don’t get the care they need. I’d encourage everybody in the #PSP & #CBD community to take a few minutes out of your day to take this year’s My Neuro Survey and share their experiences, to help us campaign for better support👇
Everyone needs access to the right care at the right time, no matter who you are or where you live. Share your experiences and celebrate excellent care or highlight areas for improvement. Fill out My Neuro Survey here. bit.ly/4cN4Dqk Thank you
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Mark Jackson retweeted
At our recent Leeds Friends & Family Day, Laura explained how Occupational Therapists can help and how day-to-day activities are assessed to maximise independence for people living with PSP & CBD. #OccupationalTherapy #FriendsAndFamilyDay #OccupationalTherapist #PSPASupport
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Mark Jackson retweeted
PSPA CEO Rebecca Packwood introduces the launch of the #MyNeuroSurvey from @NeuroAlliance . Fill the survey in as someone living with PSP/CBD or as a carer. Take the survey here: revealingreality.welcomesyou… #PSPA #NeurologicalConditions #MedicalSurvey #ShareExperiences #PSP #CBD
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Mark Jackson retweeted
AWARENESS GRANTS DEADLINE APPROACHING! The deadline for the PSPA Awareness Grants is fast approaching on 31st July & there is £8,000 to award for 2024. Apply here: pspassociation.org.uk/awaren… #PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA
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Mark Jackson retweeted
Challenges and priorities for the #PSP and #CBD community: Insights from Mark Jackson from @PSPAssociation. Read at bit.ly/4cSTXWO #PressRelease
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Mark Jackson retweeted
Last year we launched our Awareness Raising Grants. This year we have £8,000 to award and the deadline for applications is 31 July. For more information and how to apply: pspassociation.org.uk/awaren… #PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA
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Mark Jackson retweeted
A quick reminder of our #WeCare campaign. We are calling for a better deal for unpaid carers. Share your experiences with your local MPs, on social media and beyond! Resources: pspassociation.org.uk/awaren… #progressivesupranuclearpalsy #corticobasaldegeneration #supportforcarers
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Mark Jackson retweeted
Today marks the first day of Carer’s Week 2024. There are six million plus unpaid family and friend carers in the UK. PSPA will highlight our useful services and resources available to carers. #CarersWeek #Carers #PSPASupport #PSP #CBD
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Mark Jackson retweeted
On Monday, Mark Jackson, our Director of Policy and Influencing, spoke to BBC Three Counties Radio about our #WeCare campaign which launched on 3 June. Listen top Mark talk about PSPA, PSP & CBD and how people can get involved at 2:38 into the show. bbc.co.uk/sounds/play/p0hycn…

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Mark Jackson retweeted
Thank you @RareRevolutionM for sharing our #WeCare campaign and spreading the word.
PSPA, the UK charity dedicated to supporting people living with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) has launched a new awareness campaign called #WeCare, backing calls to improve the support available for unpaid carers. rarerevolutionmagazine.com/u…
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Mark Jackson retweeted
Great to see @MKCitizen promoting our #WeCare campaign. Have a read to learn how you can help show #Wecare in your area by writing to you local election candidates and asking them to support the campaign if they are elected in July. miltonkeynes.co.uk/community…
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Mark Jackson retweeted
New Podcast. In this special Volunteers Awareness Week episode we’re speaking to Sally Reynolds. Sally runs the Hampshire Support Group and is also a Link Volunteer. Listen: pspassociation.org.uk/wp-con… #PSPAPodcast #Podcast #VolunteerAwarenessWeek #Volunteers #PSP #CBD
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Great to launch our #WeCare campaign today @PSPAssociation Since joining PSPA I've been struck by the incredible work PSP & CBD carers do - and by the difficulties they face. We're asking supporters to write to their #GeneralElection candidates to back a new deal for carers 👇
Our #WeCare campaign calls for a better deal for the family and friends who care for people living with PSP & CBD You can show #WeCare by writing to your local Election candidates and asking them to support #WeCare campaign if they’re elected this July. pspassociation.org.uk/awaren…
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Mark Jackson retweeted
Our #WeCare campaign calls for a better deal for the family and friends who care for people living with PSP & CBD You can show #WeCare by writing to your local Election candidates and asking them to support #WeCare campaign if they’re elected this July. pspassociation.org.uk/awaren…
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Mark Jackson retweeted
There is still time to register for our free Family and Friends Day in Leeds. During the day you can connect with other families affected by PSP & CBD, hear updates from Dr Tim Rittman and take part in a Royal Ballet seated exercise class. eventbrite.co.uk/e/pspa-fami…
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Mark Jackson retweeted
We're looking for a creative and ambitious individual to join us as the Corporate and Community Fundraising Manager. If you enjoy building relationships, looking for new opportunities and working as part of a supportive team, we want to hear from you! pspassociation.org.uk/about-…
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