We lost someone truly special this week, John Hudson.
John Hudson passed away at 23 after living with Epidermolysis Bullosa (EB).
Heroes aren’t measured by the size of their strength, but by the size of their heart.
And John had one of the biggest hearts we’ve ever known.
He faced EB with courage, always thinking about others, always finding a way to show up, especially for younger kids walking the same path. He believed, deeply, that his life could help change what comes next.
And it did.
John Hudson shared his story with millions. Not to be seen, but to help others feel seen. He carried himself with humor, warmth, and a presence that stayed with you long after you met him.
He loved cooking for his family, Japanese culture, Disney, the New York Rangers, and all things Marvel. He had a way of connecting with people that felt easy, real, and lasting.
Here’s a tribute from EBRP co-founder Eddie Vedder, who honored John Hudson on stage in Japan, one of John’s favorite places, and dedicated “I Won’t Back Down” to his memory.
Through Special Books by Special Kids, John Hudson reached millions, not just because of EB, but because of who he was. His friendship with Chris, the channel’s host, showed the world what real connection looks like and inspired all of us in ways we’ll carry forward.
A superhero, in every sense of the word.
In memoriam, John Hudson. We love you. Sending all our love to his mom, Faye, and the Dilgen family.