A patient advocacy group in the areas of Thrombotic Thrombocytopenic Purpura (TTP) with interest in Sickle Cell Disease&Lupus SLE. UK&Wales Regd.Charity
Joined January 2014
- Tweets 480
- Following 202
- Followers 93
- Likes 657
348 Photos and videos
Pinned Tweet
21 Aug 2022
At the AOFAC Foundation’s Thrombotic Thrombocytopenic Purpura (TTP ) Awareness;
We had a medical student branched at our table;This is what she had to say on the awareness of TTP as a medical student currently in a medical school
#TTPAwarenessEverywhere #TTP
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Jun 9
It is 2weeks from today! Register here if you haven’t done so:
aofacfoundation.org/relapse-…
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Jun 5
❤️ Volunteers’ Week ❤️
A huge thank you to all our amazing volunteers at AOFAC Foundation.
Your time, kindness, and support make a real difference in the communities we serve. We truly appreciate you — this week & always
#ThankYouVolunteers #TTPAwarenessEveryWhere
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Jun 1
🩸 International TTP Webinar
Relapse Prevention & Long-Term Monitoring in TTP
🇬🇧 🇺🇸 🇳🇬 Expert perspectives from:
Prof. Marie Scully MBE
Dr Spero Cataland
Prof. A.O. Awodu
🗓 23 June 2026
⏰ 7PM UK/Nigeria
Register:
aofacfoundation.org/relapse-…
#TTP #TTPAwarenessEverywhere #AOFAC
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May 18
Celebrating Louise on her 20th Anniversary of surviving TTP.
Thank you for your continued support to the AOFAC Foundation and for inspiring others through your journey of strength and resilience.
#TTPAwarenessEverywhere #AOFAC #STMB #TTPSurvivor
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May 18
AOFAC Foundation attended the ACM in London organised by Prof. Marie Scully.
Honoured to present on relapse prevention & long-term monitoring in TTP from the patient perspective.
Great joining teams working to improve TTP care across England.
#TTPAwarenessEverywhere
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May 17
TTP affects mental wellbeing too.
Rest. Stay connected. Ask for help. Check in on others.
TTP patients in England may access psychological support through their specialist centre.
We are here to support you.
#MentalHealthAwarenessWeek #TTPSurvivor #TTPAwarenessEverywhere
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Apr 21
“TTP may be rare, but awareness can save lives. Early recognition, timely diagnosis, and prompt treatment make all the difference.”
Help us spread the word — awareness is key.
#TTPAwarenessEverywhere #TTP #RareDisease #AwarenessMatters #AskMeAboutTTP
#Chelmsfordessex
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Mar 27
“TTP may be rare, but awareness can save lives. Early recognition, timely diagnosis, and prompt treatment make all the difference.”
Help us spread the word — awareness is key.
#TTPAwarenessEverywhere #TTP #TTPSurvivors #AOFACFoundation #AwarenessMatters #AskMeAboutTTP
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Mar 13
We are here for you — and with you.
If you have questions about TTP or need support, please reach out. Together, we raise awareness and support those affected.
#AskMeAboutTTP
#TTPAwarenessEverywhere
#TTP
#AOFACFoundation
#AwarenessIsKey
#AwarenessSavesLives
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📅 It’s almost time! Join us March 12 at 16:00 UTC for our TTP Guidelines Webinar on the management of congenital TTP (cTTP).
Spots are filling quickly, register today: bit.ly/4bSObr8
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Feb 28
Rare Disease Day 2026 reminds us that rare diseases affect 1 in 17 people in the UK.
TTP is rare, life-threatening, and often misunderstood.
Rare can mean delayed or missed diagnosis.
Awareness save lives.
Equity in diagnosis, specialist care and treatment must be the standard
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Feb 28
Today is Rare Disease Day focusing on #EquityforRare, we envision a world where every person affected by TTP receives equitable, timely, and accurate diagnoses, compassionate care, and an improved quality of life.
Equity in care, awareness, and support is the path forward.
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Feb 17
TTP patients & survivors — your NHS experience matters.
Please take 10 minutes to complete this Patient Experience Survey and help improve care for the TTP community.
Share your voice here:
patients-association.org.uk/…
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Jan 14
At our TTP awareness event in Chelmsford, Essex, we learned that many people—including some medical professionals—have never heard of TTP. That’s why awareness matters. Awareness saves lives.
#TTPAwarenessEverywhere #TTP #AOFACFoundation
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Jan 1
Happy New Year from AOFAC Foundation
We honour our TTP survivors, patients, carers, and families. Your strength inspires us, and we remain committed to supporting you. Wishing you a healthy, peaceful year ahead.
#TTPAwarenessEverywhere #TTP #Healthy #2026
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24 Dec 2025
🎄 Season’s Greetings from AOFAC Foundation!
This Christmas, we celebrate the strength and unity of our TTP community and thank everyone who continues to support and inspire positive change.
Wishing you peace, joy, and a hopeful New Year. ✨
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19 Nov 2025
📣 Our “What is TTP?” poster is now up at Orsett Hospital in the Haematology Day Unit and MAU! 🙌
Huge thanks to the teams for helping raise awareness. 💛
#TTP #OrsettHospital #Awareness #PatientSupport
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