A Canadian non-profit focused on a cure for #cavernousmalformation. Our Mission is to inform, support, advocate, & connect.

Joined May 2024
Photos and videos
Call out 📣 to Clinicians and Scientists! Abstract submissions are now open-details at the link or email us at admin@cavernousmalformation.ca #cavernousmalformation #cavernoma #cavernousangioma #cavernoushemangioma #ccm #cm #symposium #toronto #stroke
975
See the #cntower #shinealightoncaverousmalformation tonight! #Toronto has proclaimed June #cavernousmalforamtionawarenessmonth Proclamations 2026 – City of Toronto
Tonight the #CNTower will be lit red for International Cavernous Malformation Month Ce soir, la #TourCN sera illuminée en rouge pour le Mois international de la malformation caverneuse
1,270
June is Cavernous Malformation Awareness Month, officially declared by the Province of Alberta-forever! #shinealightoncavernousmalformation #cavernousmalformation #alberta #raredisease
513
Together, we raise awareness, demystify and share about #cavernousmalformation! Join in our events, contribute to our mission, wear your CM gear, and share CM information widely! Events | Cavernous Malformation Canada #raredisease
372
Camri graduated @WesternU with a BMSc with specialization in pathology and is at U of Calgary completing a MSc in Medicine and Immunology. Join us in welcoming Camri as our graduate student intern! #cavernousmalformation #cavernoma #childhealth #gradstudent #welcome #ccm
1
312
We celebrate physicians that make an impact to patients with #cavernousmalformation. Even in times of change, they provide high levels of care. From primary care to specialists involved in the care our our community, thank you! #cavernoma #NationalPhysiciansDay
310
#wednesdaywisdom Le seul courage qui compte est celui qui vous permet de passer d'un instant Ă  l'autre. ~Mignon McLaughlin #cavernoma #cavernousmalformation #courage
234
Taylor bravely voices her unique experience of being diagnosed with a sporadic #cavernousmalformation as she awaited the birth of her first child. To read her inspiring story of hope, faith and remembering to see the good tr.ee/199cFy9jqh #patientvoice #cavernoma
199
Today's #wednesdaywisdom Je fais toujours des choses que je ne sais pas faire. C'est comme ça que j'arrive à les faire. ~Pablo Picasso #cavernousmalformation #cavernoma #resilience #nevergiveup #picasso #raredisease
158
Simona's story is courageously told by her husband "It is my hope that by sharing Simona's story I can spread awareness about cavernous malformation and rare disease" To learn more Simona's Story | Cavernous Malformation Canada #RareDiseaseDay #cavernousmalformation
1
1
141
Kailley courageously shares her story of #spinalCM. As we lead up to #rarediseaseday, we think of patients that have a rare disease experience, like Kailley does. You are not alone. Kailley's Story | Cavernous Malformation Canada #cavernousmalformation #cavernoma
1
91
Join us for an educational event featuring expert speakers, and meaningful moments of connection with others impacted by #cavernousmalformation. Register at 2026 Conference | Cavernous Malformation Canada cavernousmalformation.ca
1
1
190
De la souffrance naissent les âmes les plus fortes ; les caractères les plus massifs sont marqués de cicatrices. ~Khalil Gibran #wednesdaywisdom #cavernousmalformation #cavernoma #strength
1
61
#rarediseaseday is a globally coordinated movement dedicated to rare diseases. #Cavernousmalformation is described as a rare disease by the National Organization for Rare Disorders. Access rare disease day materials rarediseaseday.org/ #cavernousmalformation #cavernoma
45
Today's #wednesdaywisdom Ce matin, au réveil, j'ai souri : 24 heures toutes neuves s'offrent à moi. Je fais le vœu de vivre cette journée en pleine conscience, avec un regard empli d'amour, de gratitude et de compassion. ~Thich Nhat Hanh #cavernousmalformation #cavernoma
72
Patients, with their real life experiences are vital contributors to scientific discovery. Take our Registry Enhancement Project survey today, at the link below forms.office.com/Pages/Respo… #cavernousmalformation #cavernoma
1
43
Open to patients and family members of patients 18 years of age or older. Your peer support facilitator takes the discussion into relevant topics as you share, listen or feel a bit less alone in your journey. Register at events.teams.microsoft.com/.…... #cavernousmalformation
36
Today's #wednesdaywisdom on The International Day of Persons with Disabilities. Aujourd'hui, Journée internationale des personnes handicapées. "Peu importe ce que vous voyez, je suis entier, j'ai de la valeur, je suis aimé." #cavernousmalformation #cavernoma #iamwhole
47
A #cavernousmalformation may be found in the spinal cord. This is referred to as Spinal CM. For more information about spinal CM, access the information on our website at cavernousmalformation.ca/spi… #cavernousmalformation #spinalcavernoma #spinalcavernousmalformation
26