Joined March 2020
6 Photos and videos
Pinned Tweet
14 Mar 2024
I wasn’t going to share this but here goes. I am the Daniel in this Article. Thank you to everyone who has reached out with their support. LC has been an incredibly eye opening experience, one that has completely changed how I view the world, how I see people and how they see me
13 Mar 2024
Over the past year, Daniel* has calculated he has racked up more than $100,000 in bills from hospital visits, medical tests, specialist appointments and medication — all because of Long COVID. | SBS News. Sounds mild. sbs.com.au/news/article/dani…
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2 Jun 2025
Sore throat has entered the chat 😭 I had been completely asymptomatic until I went for a walk in the cold air last night and instantly my throat started hurting and still does. This is still my only symptom at the moment. Plan to test again tomorrow.
31 May 2025
Very close call this week. Mum brought covid home. I moved to an Airbnb and so far managed to avoid it. This was at a cost equivalent to my fortnightly jobseekeer payment though. Really couldn’t afford to do this but also couldn’t afford not to. Extremely stressed
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31 May 2025
Very close call this week. Mum brought covid home. I moved to an Airbnb and so far managed to avoid it. This was at a cost equivalent to my fortnightly jobseekeer payment though. Really couldn’t afford to do this but also couldn’t afford not to. Extremely stressed
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15 Mar 2025
It’s been a year since this interview. I’m doing much better, but Long Covid still profoundly affects my life. Sending support to those also navigating this on Long Covid Awareness Day.
14 Mar 2024
I wasn’t going to share this but here goes. I am the Daniel in this Article. Thank you to everyone who has reached out with their support. LC has been an incredibly eye opening experience, one that has completely changed how I view the world, how I see people and how they see me
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14 Dec 2024
I hate weekends 😭😭 Just want my life back. Don’t think anything could prepare you for the isolation and abandonment that comes with this illness, it really gives you so much time to think and can send you to the darkest of places.
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5 Jul 2024
1/2 Dear health practitioners, please stop telling #LongCovid patients that this illness is so new that there is nothing you can do for them. We may not have a cure but we are not where we were three years ago. There are thousands of papers on Long Covid in peer reviewed journals
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5 Jul 2024
2/2 First step, start reading!!! This shouldn’t be up to your patients, there are things you can do today to help a large number of patients with symptom relief while we wait for ongoing research. There are far to many patients being left to suffer with no assistance whatsoever.
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Daniel B retweeted
27 Jun 2024
This is how a chronic illness can steal your life when it strikes at 27. In the first months after diagnosis, you're shocked by the new and terrifying symptoms, but you remain optimistic, trusting that doctors will help with various treatments. However, after several years pass without improvement, and even with progression, you cling to hope because, despite the lack of approved treatments, there are still options. Then, the government tells you that these options are not funded because they lack evidence-based medicine (EBM) approval. So, you work tirelessly to find ways to collect money. With that money, you buy treatments that help only about 10%. Meanwhile, you've virtually lost all your friends because, in reality, people don’t want to associate with someone who is always sick. As a man, you realize you'll probably never have a family of your own; no woman wants a sick partner, and no children either. So, when your parents pass away, you'll be completely alone. Today marks the 10th year of my illness. I am now 37 years old, and the future has never looked bleaker. For my condition, there are no promising drugs in development. And even if there were, I'm excluded from trials due to biased classifications. Here I am, 37 years old, still very sick and homebound, with no prospect of a better life. What would you do?
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Daniel B retweeted
The National Academy of Sciences have officially adopted the name Long Covid. The series of disease states, resulting from a Covid infection have gone by several names, but the national Academy of sciences has now adopted the name Long Covid as the official name.
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Daniel B retweeted
It’s so funny that some doctors think #LongCovid patients are pretending to be sick for sympathy. What sympathy? I have never been treated with more disdain and obvious dislike in my entire life.
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Daniel B retweeted
I diagnose #POTS every emergency shift, a condition that I didn’t know existed before two years ago. MDs/PAs/NPs: do orthostatic HR for everyone with unexplained tachycardia. #POTS #LongCOVID
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10 May 2024
The worst thing about this illness is watching the world go on without you, like you never existed or mattered to anyone, nothing could prepare you for this 😞
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10 May 2024
Honestly it’s like watching how the world goes on after you die but you’re alive and get to watch it all unfold.
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Daniel B retweeted
I’m depressed because i cant live life, not the other way around
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24 Apr 2024
Massive crowds at the dawn service this morning, watched safely from inside my car.
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Daniel B retweeted
We have a neurologist (me), a neuroradiologist, an interventional radiologist, and an emergency radiologist (my husband, who has 3 specialties) at home, yet we still can't manage the symptoms of a child with #longcovid #longcovidkids
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6 Apr 2024
I definitely haven’t recovered from #LongCovid but I’m grateful I’ve made enough progress to be able to enjoy some of the wonders of the world again. Before LC I would walk 10Km along here, while I can’t do that anymore I’m glad I was able to just sit and relax here today.
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