I've seen my world come crashing down from dysautonomia and am trying to build it back up again. #Dyslife is hard, but God brings purpose in all the pain.
Joined December 2018
- Tweets 44
- Following 85
- Followers 32
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8 Photos and videos
30 May 2019
Such a great project! Check it out!
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5 Mar 2019
It is great to see awareness being spread! Student organization raises awareness for individuals with rare diseases iowastatedaily.com/news/rare… via @iowastatedaily
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5 Mar 2019
Though I do not agree that those with Rare Diseases are victims.
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26 Feb 2019
Thank you @LisaBRochester and staff for meeting with us today to discuss Rare Disease and how it impacts 1 in 10 Americans, meaning over 96,000 Delawareans. Your support could potentially lead to a breakthrough in the Rare Disease Community! #RareDC2019
26 Feb 2019
Thank you @ChrisCoons staff for meeting with us today to discuss Rare Disease and how it impacts 1 in 10 Americans meaning over 96,000 Delawareans. Your support could potentially lead to a breakthrough in the Rare Disease Community! #RareDC2019
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26 Feb 2019
Thank you @SenatorCarper and staff for meeting with us today to discuss Rare Disease and how it impacts 1 in 10 Americans, meaning over 96,000 Delawareans. Your support could potentially lead to a breakthrough in the Rare Disease Community! #RareDC2019
24 Feb 2019
Headed to the start of Rare Disease Week with these lovely ladies! #RareDiseaseWeek #DSN
24 Feb 2019
So excited for #RareDiseaseDay!
ONE WEEK UNTIL #RareDiseaseDay! Retweet to raise awareness & visit rarediseaseday.us for ways to #ShowYourStripes on the biggest day of the year for the #raredisease community.
24 Feb 2019
Love this quote! Sums up my life perfectly. Just you wait!
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Leslie Kathryn RN BSN retweeted
22 Feb 2019
Which of the following topics would you most want to see as a workshop this year for #NCSummit19? #painmanagement #disability #IEP #copingmechanisms
62%
Managing pain
0%
Disability/SSI
0%
Education advocacy/IEPs
38%
Coping w/ chronic illness
8 votes • Final results
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21 Feb 2019
Trust the Process- life lessons from creating a beautiful masterpiece. thesojourningservicedog.word…
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5 Feb 2019
I support #RareDiseaseDay because of my good friend who has a rare disorder, spinocerebellar ataxia. Invisible no more! #ShowYourRare
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2 Feb 2019
I am so excited for the Neuroconnect Summit in May!! @NCSummit19
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1 Feb 2019
Broken Records: The Shards of Neurally Mediated Syncope- How I shattered my record and live with NCS. thesojourningservicedog.word…
24 Jan 2019
Suitcases- live lessons from the road traveling as a chronic illness warrior. thesojourningservicedog.word…
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