ECHO’s mission is to provide support for children and young people with heart conditions and their families, at every stage of their heart journey.
Joined October 2013
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1,140 Photos and videos
Jun 1
Ever wondered what goes on inside ECHO?
For 43 years, we’ve worked alongside parents, patients and stakeholders to shape support that truly reflects the needs of our community.
Every decision we make is co-produced with the people who matter most.
#InsideECHO #43YearsOfECHO
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May 6
The new GALAXY clinic at Evelina London will soon officially open and it’s out of this world! Over 100 children shared their brilliant ideas, and now every clinic area has planets and space-themed names, making the space fun, welcoming, and designed with kids at the heart.
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May 5
We were lucky to have two wonderful volunteers in the office with us in April – Gemma and Ruby❤️
We truly couldn’t do our work without the dedication and kindness of our volunteers. We are so grateful for everything you do ✨
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Apr 30
3D printed hearts making a real difference 🫀
In February half term, our ECHO teens and their parents came together for an ECHO x Health Tech Research Centre event, they were amazing at learning and talking about research and seeing 3D heart printing up close
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Apr 29
Having a sibling with CHD can be incredibly special, but it can also be tough sometimes.
We’re creating a storybook for younger children to help them feel seen, supported, and understood and we need YOUR help to create it!
sign up now via this link - echo-uk.org/event/help-us-wr…
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Apr 28
A huge THANK YOU to our incredible 2026 ECHO running team! 🏃♀️🏃♂️
If you’re feeling inspired… the London Marathon ballot for 2027 is now open! londonmarathonevents.co.uk/b…
and you can pre register your interest for the LLHM here -llhm.co.uk/pre-register-half
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Apr 12
Good luck to our amazing team of 14 runners taking on the London Landmarks Half Marathon today! 🏃♂️🏃♀️
If you’d still like to support the team and donate, you can do so here: justgiving.com/campaign/echo…
Good luck everyone!
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Apr 9
Important DLA Update
If your child has congenital heart disease, the DWP is reviewing DLA decisions made between Feb 2017 – Oct 2020.
What this means:
-You may be entitled to back payments
-Your child’s award could increase
-Reviews will NOT reduce your current award
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Apr 7
For families of children with complex heart conditions, hospital stays can be long, exhausting and overwhelming. That’s why small changes matter.
By supporting the parents’ room, whether it’s providing a microwave or simply making time for a cup of tea - ECHO can help.
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Apr 5
Happy Easter from all of the ECHO team! 🐣🌷
Thank you to @fenchurchinsure , phlhydraulics, BMXLife & @KKB_Group for their generous donations of Easter eggs. A special thank you as well to Tommy from @statomgroupuk for giving up his time on Thursday to help deliver the eggs!
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Mar 27
Just 1 month to go until the London Marathon! 🏃♀️
A huge thank you to @statomgroupuk for sponsoring this year’s marathon-Money raised will make a huge impact. Wishing all our incredible runners the very best of luck as they head into the final stretch of training.
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Mar 27
If you’d like to support the team and be part of their journey, you can donate here: 2026tcslondonmarathon.enthus… Let’s get behind them all the way to the finish line! 🎉
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Mar 18
It’s the little things that often make a big difference – like our friend Pru the bee! Working with the Princess Royal Hospital (PRUH) an unmet need was identified and fulfilled through the Getting ready for clinic animation echo-uk.org/getting-ready-fo…
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Mar 17
A huge thank you to our amazing volunteers from Mace for giving their time and energy to support us this week 💙
With their help, we were able to put together beautiful Mother’s Day gift bags & Eid hampers
Finally, Eid Mubarak to everyone celebrating this Thursday/Friday 🌙✨
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Feb 9
Wear Red This February ❤️
National Heart Month is here, and we’re inviting everyone to wear red and shine a spotlight on children’s heart conditions! A massive high-five to young Dylan, whose family is supported by ECHO, for presenting to his whole school!
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Feb 9
He shared his story, inspired his classmates, and showed exactly what it means to be a superhero - absolute legend! Want to join in? Schools, workplaces, and everyone can take part by wearing red, fundraising, or donating. Show us your superhero style! Email hello@echo-uk.org!
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Feb 6
Huge THANK YOU to Isaac, our real-life superhero 💙
On his 16th birthday, Isaac took on an incredible challenge running a half-marathon to raise money and awareness for ECHO. Living with a heart condition himself, Isaac wanted to give something back.
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Feb 6
You can channel your own inner superhero, take on a challenge, and help change lives! If you feel inspired, we have lots of ideas. Simply get in touch with us – Thank you, ISAAC - You can also still support Isaac and ECHO here 👉 gofund.me/bbc457c3f
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Feb 6
He ran around the Evelina Hospital and has already raised such an amazing amount… what an absolute hero! Isaac’s story shows that young people affected by heart disease have the power to make a difference.
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