Crohns and Ulcerative Colitis patient advocate •@crohnsandcolitisuk Research Champion•#IBD•#MODULATE trial
Joined September 2021
- Tweets 330
- Following 237
- Followers 121
- Likes 522
1 Photos and videos
Emma Pryde retweeted
5 Jun 2025
Interested in learning complex IBD management? Join us for 6 months in this exciting IBD fellowship. Leeds has a fabulous IBD team and the city is exciting.
jobs.nhs.uk/candidate/jobadv…
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Emma Pryde retweeted
Very proud of our CCUK Research Champion @emmapryde7 in this month's Connect. You've been amazing! #IBD #PPIE
crohnsandcolitis.org.uk/get-…
A picture paints a thousand words!
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Emma Pryde retweeted
16 Apr 2025
Our patients analysed 415 patients' views about their IBD using thematic analysis through the lens of their own 'lived experience' with 100% freedom.
#IBD #Crohns #livedexperience #PPIE
Audio format is now available on our webpage!👇
musicstudy.uk/patients-takin…
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Emma Pryde retweeted
16 Apr 2025
Thanks @halligan_molly @emmapryde7 @Patricia_EKelly @AerinET and Destiny. And @HelmsleyTrust for funding the MUSIC study.
We hope the audio format will make this work more accessible to many especially our patients. Please share ! @propelacure @CrohnsColitisR @CrohnsColitisC3
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Emma Pryde retweeted
9 Apr 2025
Researchers at King's College London are looking to talk to people from a South Asian background who live with IBD to help shape a new research study.
Find out more 👉crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
27 Mar 2025
Very proud of our #PPIE IBD patient group. I have learnt a lot from them and definitely have shaped my practice and research.
It's a great read 👇 #ibd #crohns #Colitis
23 Mar 2025
What happens if patients take the lead in an IBD project?
Result: A wholly patient-led paper on ''What it means to live with IBD'.
🧵on how our patient-public involvement (PPI) #IBD came about....
#Crohns #colitis #PPIE #patientinvolvement
medrxiv.org/content/10.1101/…
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Emma Pryde retweeted
23 Mar 2025
What happens if patients take the lead in an IBD project?
Result: A wholly patient-led paper on ''What it means to live with IBD'.
🧵on how our patient-public involvement (PPI) #IBD came about....
#Crohns #colitis #PPIE #patientinvolvement
medrxiv.org/content/10.1101/…
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Emma Pryde retweeted
1 Mar 2025
Take a look at this new Taking Part in Research opportunity from University of Cambridge!
They are looking for adults living with IBD to take part in an online survey to understand more about how hormones can impact health @kuhu777
Learn more👇
crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
17 Feb 2025
Are you interested in how patient and public involvement (PPI) plays a role in research?
Our PPI in Action webinar series showcases various examples of how PPI enhances the relevance and quality of research.
Explore the series on our YouTube channel ⬇️youtube.com/playlist?list=PL…
ALT Watch our PPI in Action Webinar Series
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Emma Pryde retweeted
14 Feb 2025
A good week for our study. We recruited 4 (!) into MARVEL including our 1st from #Manchester! Big thanks to Prof Limdi and his team. Mitochondria antioxidants in UC marvelstudy.uk #ulcerativecolitis #mitochondria #ibd @Edin_IBDScience
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Emma Pryde retweeted
7 Feb 2025
There's still time to apply for our 2025 Grant Round!
We're looking for applications which address areas of unmet need as set out in the JLA Top 10 in IBD.
Outline application deadline: 17 March 2025
Find out more about how to apply 👇
crohnsandcolitis.org.uk/our-…
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Emma Pryde retweeted
27 Jan 2025
📢Crohn's & Colitis UK 2025 Grant Round NOW OPEN! 📢
We are excited to welcome applications which address areas of unmet need as set out in the JLA Top 10 in IBD.
Outline application deadline: 17 March 2025
Click the link for details on how to apply👇
crohnsandcolitis.org.uk/our-…
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Emma Pryde retweeted
20 Jan 2025
Check out this new Taking Part in Research opportunity at King's College London!
Researchers want to learn more about people's experience of food with Crohn's and Colitis.
crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
8 Jan 2025
After working in A&E for just a little over a month, I thought I'd share my experiences as one of the front line doctors facing the current/ongoing crisis happening across our country.
A quarter through my placement, I already feel burned out and morally fatigued.
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Emma Pryde retweeted
20 Dec 2024
Are you living with an ileostomy? Researchers at Ulster University are looking at hydration and fluid intake and want you to complete an online survey!
If you're interested in completing the online survey find out more here: crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
29 Nov 2024
Are you aged between 18-30 and living with IBD?
Researchers at Sheffield Hallam University are looking for people to take part in online interviews to talk about quality of life.
Find out more and sign up below 👇
crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
19 Nov 2024
It’s #WorldToiletDay. We hear every day from people living with Crohn’s and Colitis about the challenges they face accessing toilets and how it impacts their day to day lives. We are continuing to advocate for better toilet provision across the UK: ow.ly/kzpu50U9Oyu
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Emma Pryde retweeted
11 Nov 2024
Would you like to take part in a focus group with researchers from University of Birmingham?
If you're over 18 and living with Crohn's or Colitis, take a look at this new opportunity here 👇
crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
28 Oct 2024
If you, or your child, or someone you care for, has perianal Crohn's, researchers at St Mark's want to know your thoughts on the priorities of future research!
They want people to complete a 5 minute survey.
Find out more below👇
crohnsandcolitis.org.uk/get-…
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Emma Pryde retweeted
21 Oct 2024
It’s taking too long for people with IBD to get diagnosed. That’s why as part of our open letter to the Health Secretary we’re calling for change to support GPs to refer people with symptoms for the right tests at the right time.
Sign Now📝ow.ly/GOyO50TPR3w
#CutTheWait
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