Working to improve the quality of life for those impacted by encephalitis through research, awareness, and advocacy.
Joined February 2018
- Tweets 341
- Following 227
- Followers 173
- Likes 220
123 Photos and videos
Encephalitis411 retweeted
12 Nov 2025
Tune in to @HoustonPubMedia LIVE tomorrow morning at 9:40 to hear our interview on @HoustonMatters with Craig Cohen!
We'll talk about the film, how the journey inspired me to help others, & BIG announcement on when/where to watch the movie. Don't miss it!
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4 Oct 2025
encephalitis411.org/donate.h…
#FightingEncephalitisHeadOn#Encephalitis411#CureEncephalitis2025
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3 Oct 2025
encephalitis411.org/donate.h…
#FightingEncephalitisHeadOn#Encephalitis411#CureEncephalitis2025
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2 Oct 2025
encephalitis411.org/donate.h…
#FightingEncephalitisHeadOn#Encephalitis411#CureEncephalitis2025
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30 Sep 2025
Fighting Encephalitis Head On Virtual Walk & Fundraising Challenge
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12 Sep 2025
We enjoyed meeting new faces at the Houston event on Sept 6! Good turnout, great info shared, and many people who want to get involved to increase awareness! We’re grateful for Dr Rodrigo Hasbun and Dr Rajesh Gupta for sharing their insights and time with us.
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30 Aug 2025
Houston-area survivors and caregivers ... it's not too late to register for the Sept. 6th in-person meeting featuring Dr. Rodrigo Hasbun and Dr. Rajesh Gupta from UT Health
eventbrite.com/e/encephaliti…
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22 Aug 2025
Registration is now open for the Houston, TX survivor and caregiver event on Saturday, Sept. 6th from 1 to 4pm. Look forward to seeing you there!
This free event is for any survivor or caregiver who is impacted by any form of encephalitis!
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22 Aug 2025
Encephalitis411 and HESA - Hashimoto's Encephalopathy SREAT & Seronegative AE Alliance are co-hosting this event and we're excited to have speakers from UT Health.
eventbrite.com/e/encephaliti…
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Encephalitis411 retweeted
3 Feb 2025
Advancing Science is back for 2025.
For World Encephalitis Day we've invited @ShenYingZhang1 from @casanova_lab to speak to the HVTN @HelpEndHIV on 2/26.
Please dial in for: Genetic defects of brain immunity underlying childhood HSV encephalitis
herpescureadvocacy.com/2025/…
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Encephalitis411 retweeted
22 Feb 2025
🧠 World Encephalitis Day
Did you know HSV is a leading cause of herpes simplex encephalitis (HSE), a rare but life-threatening brain inflammation? Early diagnosis & treatment save lives!
Let’s raise awareness of HSV’s impact & advocate for better care.
#WorldEncephalitisDay
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Encephalitis411 retweeted
22 Feb 2025
It's February 22nd, and today is World Encephalitis Day. Encephalitis tried to take my life, but every day I am actively taking it back. I am managing autoimmune conditions, grand mal seizures, and the psych disorders that it left me with. #encephalitis #worldencephalitisday
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Encephalitis411 retweeted
23 Feb 2025
10 years post-encephalitis onset, 5 years post-diagnosis, 2 years post-remission… and now, I can also say I stuck it out long enough for a part of me to make it into @MayoClinic’s MS/autoimmune neurology biorepository🤓✈️🩸👩🔬🧪
🌎Happy #WorldEncephalitisDay 🧠 #Red4WED 🌉 #YEG
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13 Sep 2024
🚶♂️💚Join our Annual Encephalitis Awareness Walk! 💜🚶♂️
🗓️ Sept 14-28 🏞️ Walk locally or virtually 👕 Get a fun logo t-shirt!
Sign up and help support encephalitis survivors!
encephalitis411.org/nicoles-…
#WalkForEncephalitis #SupportSurvivors #AwarenessWalk
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27 Aug 2024
🌟 AE Community! 🌟
Help us by completing the "AE Journey Survey" by Sept 15. Your input will improve AE care and be shared at the Strides in AE event on Oct 26in Cleveland.
📝 docs.google.com/forms/d/e/1F…
#AEJourney
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Encephalitis411 retweeted
22 May 2024
Texas heat, who? This Memorial Day weekend, Tim Frame is taking on a monumental challenge - 3 marathons in 3 days for the Texas Triple!
Join us in cheering Tim on as he runs for @encephalitis411 and @Encephalitis!
runsignup.com/frameworxforen…
#TexasTriple #EncephalitisRecovery #NeverGiveUp
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