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Cystic Fibrosis Engagement Network @engagecf

The Cystic Fibrosis Engagement Network advocates for policies that further patient access to approved cystic fibrosis therapies.

Joined December 2016
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531 Photos and videos
Want to learn more about insurance barriers that can impact patient access to treatment? Read AfPA's position statement on co-pay accumulator adjustment programs. bit.ly/2E5xbji
A video from the Patient Access Collaborative explains how step therapy can impact patients with cystic fibrosis. Watch here: bit.ly/2TkzmUJ
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Co-pay accumulator adjustment programs leave patients with two options: pay up or get sick. Learn more about the access barrier leaving patients with a co-pay surprise in this infographic by CFEN. bit.ly/2IvHNcI
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When prior authorization delays treatment, patients can see their symptoms worsen and their relationship with their physician erode. Learn more about the access barrier and how it harms cystic fibrosis patients: bit.ly/33pxBvr
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People living with cystic fibrosis need access to patient-centered care. Find out how policymakers can help in this short video by AfPA. bit.ly/35nScQu
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In this video, CFEN explains how FDA's fast track process benefits patients with cystic fibrosis and other rare diseases. Watch here. bit.ly/36kTsG9
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What began as a safeguard against unnecessary drug spending has become a significant barrier to patient access, especially for cystic fibrosis patients. Learn more: bit.ly/3p3Iryq
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Sometimes insurers require health care providers to go through lengthy prior authorization processes before patients can access treatment. Learn more: bit.ly/38kb6ZZ
Prior authorization means insurance companies must approve a physician-prescribed medicine, procedure or test before a patient can get coverage. Learn more in this one-pager: bit.ly/33eYsu8
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When insurers require patients "fail first" before accessing their prescribed treatment, patients can suffer. Watch this short video to learn more: bit.ly/2TkzmUJ
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CFEN’s video explains how prior authorization is affecting patients with cystic fibrosis. Watch here. bit.ly/36rZbJg
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What can policymakers do to protect patients from co-pay accumulator adjustment programs? Find out here: bit.ly/2n556gq
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Prior authorization can be frustrating, leading some patients to abandon treatment altogether. Read more here: bit.ly/33eYsu8
Learn about the prior authorization process that delays care for cystic fibrosis patients in this infographic by CFEN. bit.ly/38kb6ZZ
Patients can be denied access to their medicine for days, even weeks because of prior authorization. To learn more, read AfPA’s position statement: bit.ly/33eYsu8
When insurers require that patients "fail first" before accessing their prescribed treatment, patients can suffer. bit.ly/2TkzmUJ
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CFEN explains how the FDA's fast track process benefits patients with cystic fibrosis and other rare diseases in this video. bit.ly/36kTsG9
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Medicaid work requirements can hurt cystic fibrosis patients. Learn how in this infographic: bit.ly/2F5GMqk
Eliminating barriers is integral to access for cystic fibrosis patients. Read more. bit.ly/2IVT5GL
CF patient Emily Schaller explains how the lifestyle she’s adopted has improved her health, and how her insurer's cost-cutting tactics needlessly delay medications, derailing her efforts. bit.ly/2SPrcS6
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