554 Photos and videos
Pinned Tweet
20 Jan 2021
Proud nasty woman. LIZIBERAL. Progressive. Atheist. No Bitcoin. Married. 98% straight 100% #NOH8 #nobullying My god is walking around Savannah, Georgia dressed as a pharaoh.
11
10
80
This is a really accurate and important description for people who are new to #POTS. I’ve had these symptoms for 5yrs and got a diagnosis about 3yrs ago but I STILL haven’t fully processed that ALL of what he’s saying happens to me, and ONLY if I PACE can I avoid SOME of this.
Jun 12
Symptoms of chronic illness are hard.
What those symptoms force us to do can be even harder.
-Having to leave a full shopping cart behind because your vision is starting to go dark.
-Crouching down in public because you’re about to pass out.
-Being too sick to make it to the doctor’s appointment you’ve been waiting months for.
-Putting off picking up a medication because you don’t have the energy to leave the house.
-Having to lie down after a shower and not getting dressed for hours.
-Stopping halfway up a flight of stairs to catch your breath.
Most people hear the diagnosis.
Very few understand how those symptoms affect daily life.
1
3
179
For all the #CPPs #spoonies #disabled who are lost in a sea of gaslighting, patient harm and darkness, this is a shining light to make you all visible. Keep believing yourself & you’ll get a Dr. who believes you!❤️🩹✊
BREAKING: The @AmerMedicalAssn has adopted the following policies at its 2026 #AMAmtg:
"The AMA [will] convene a meeting with the National Association of Boards of Pharmacy and other national pharmacy organizations to identify ways to improve communications between physicians and pharmacists about physicians’ and pharmacists’ corresponding responsibility and related areas" about physicians' plenary prescriptive authority (including controlled medications), providing a report in June 2027....
The "AMA [will] work with pharmacies subject to the national opioid litigation settlements to provide data on refusals to fill and dispense medications, including the reasons for such refusals."
26
Emily Ullrich✊🏾✊🏼✊🏽✊🏿 retweeted
May 28
I am trying to schedule interviews of family members or friends of both Petra Ray and Scot Ruby, who both recently passed as a direct result of losing access to their pain medications. If you are a friend or family member who knows the details of either of these cases and feel that you would like to share what you know in an interview on Uncle David's TALES of the FORGOTTEN: The U.S. Government's Inexcusable War on Pain Patients, please contact me at
thepainlawsuit@proton.me
so that we can get you scheduled. You can remain on audio only for anonymity if you desire.
2
17
40
459
THIS! It’s not only EXTREMELY uncomfortable, but it’s also confusing in the moment…I know logically that I have POTS, but it feels like I have a fever and might pass out.
May 21
One of the most annoying parts of POTS is never feeling physically comfortable because my body can’t regulate temperature properly.
I’m either freezing, overheating, sweating, shivering, or somehow all of them at once.
3
129
If you are experiencing a forced taper of #opioids here are 17 studies to take to your doctor to ensure that they see they are committing torte harm. #chronipain c#spoonies #CPP #IPP
May 20
Forced Opioid Tapering Is Always Harmful
There are 17 recent studies to support this
1
2
2
74
We sent FBI Director on a DATE w/THE PEOPLE’s PJ w/his girlfriend (we also pay a 4 person personal SWAT security $1M for HER). WE brought a $50k private suite at the concert and paid FBI & Patel’s security were OVERTIME—ALL on TAXPAYERS’ DIME. But we can’t do M4A or decent wages?
2
2
39
Emily Ullrich✊🏾✊🏼✊🏽✊🏿 retweeted
The KKK is alive and well in Tennessee. The Sargeant of Arms blocks Representative Justin Pearson from entering a committee meeting about redrawing the map specifically for the district he represents.
FUCKING SHAMEFUL!
9,666
19,085
64,597
4,492,436
We WILL NOT go back. Just imagine if this were a white Representative! This is WRONG on SO MANY LEVELS. #BlackVotersMatter & Black Reps matter!
10
Emily Ullrich✊🏾✊🏼✊🏽✊🏿 retweeted
Apr 29
I’m
Still have a long do I need to go? Cancer is expensive.
I truly do appreciate prayers cause of thoughts and energy. Also, your kind words have touched my heart. Thank Lu
gofund.me/05465dfb0
2
11
11
2,037
#CivilRights #RICO #DEA #Lawyers who want to leave a legacy of giving a voice to the voiceless, anyone out there? x.com/davidesmitty/status/20…
30
Our puritanical “morals” are killing people! Hundreds who depend on this plug as a reliable source of street pharma (FAR LESS JUDGEMENTAL & CHEAPER) than traditional medicine) will now be subject to a wave of poisonings/accidental #overdose The #WarOnDrugs is a war on people.
110
1/3 THREE THINGS PATIENTS WANT FROM Drs:1) BELIEVE US! No, really. Why TF would I subject myself to this when I could be traveling, reading, working, loving…I’m happy to see you, but I’d rather be in the Bahamas as much as you would! 2) We know you’re the medical expert…
2
1
3
82
THAT’s WHY WE’RE HERE! Instead of telling us the same thing as “Dr. Google,” IMPRESS US: ADMIT YOU DONT KNOW & SAY “WE’LL FIGURE IT OUT TOGETHER! “ OR REFER US TO SOMEONE WHO DOES!
1
1
19
This was supposed to be #2 of my 3 things…I can never get this right!!
10
3/3 If we are chronically ill, we hate this more than you. On THIS ONE THING, WE ARE THE EXPERTS. The Dr./Patient relationship can be a BEAUTIFUL THING! But lately, it feels more like cop/perp. We REALLY TRULY appreciate you…when you’re kind & treat us with compassion& dignity😘
1
15
I find it interesting and odd that doctors in the US who are Specialists (or not Specialists, and still aren’t interested) would want to know more about how what they do (or don’t do) effects different people differently and why #PatientOutcomes aren’t THE metric.
14 Oct 2021
Excellent article. Sometimes entities do a better job at dressing up #Tokenism #PatientAdvocacy #PatientVoice #PatientCentered harlan-krumholz.medium.com/p…
1
45
Emily Ullrich✊🏾✊🏼✊🏽✊🏿 retweeted
This!! 👇🏼💯
May 4
She wasn’t misdiagnosed because it was complicated.
She was misdiagnosed because people stopped looking.
“It's in your head” shouldn’t be the end of the conversation—it should be the beginning of deeper investigation.
Patients aren’t the problem. The lens is.
#MedicalGaslighting #PatientAdvocacy
4
12
25
644
Emily Ullrich✊🏾✊🏼✊🏽✊🏿 retweeted
6 Oct 2025
In a speech yesterday, Pete Hegseth told service-members that “diversity is not your strength.” This is Thomas Begay, one of the two living Navajo Code Talkers from World War II, who Hegseth previously removed from DOD websites.
RETWEET if you stand with Begay against Hegseth!
655
12,065
33,648
412,288
Pain patients are coming together to advocate for their RIGHT to LIFESAVING medication. They need to cover travel, lodging, and supplies during this crucial time. Please consider contributing or sharing their story to make a difference. gofund.me/4e905faf0
2
5
7
59
April Fools as Groundhog day when you live with #ChronicPain
1
38