@forebatten profile picture
ForeBatten Foundation @forebatten

Our mission is to fund rare disease medical research and compassionately support the Batten community.

Joined November 2017
  • Tweets 199
  • Following 85
  • Followers 299
91 Photos and videos
SweetSixteen.givesmart.com
38
To celebrate Amelia and Makenzie’s birthday, we have birthday presents when you make a donation at SweetSixteen.givesmart.com
57
The best auction in golf is LIVE! Bidding is open. Get yours in at SweetSixteen.givesmart.com
107
Where do you want to play next? Our Sweet 16 Auction has a course on your wish list! SweetSixteen.givesmart.com
0:10
67
One week until the 'best auction in golf' - Sweet 16 Edition #golfauction #golfforgood
0:05
1
3
659
SweetSixteen.givesmart.com

Sweet16

Help ForeBatten Foundation spread the word about Take a Swing Fore Batten - Sweet 16!

e.givesmart.com
287
Would you like to meet @DavidMcLayKidd and play the spectacular @BandonDunesGolf? We have an amazing auction item for you! e.givesmart.com/events/Nkt/i…
367
Check out this special limited edition @ScottyCameron in our Take A Swing Fore Batten Auction! #scottycameron #putter #golfauction e.givesmart.com/events/Nkt/i…
228
Just two more weeks! SweetSixteen.givesmart.com
0:10
115
As part of Rare Disease week, the FDA expanded on the Plausibility Mechanism Framework. This framework is seen as a positive advancement for rare disease. Our team of experts – including Amelia - are watching this action by the FDA closely and will adjust accordingly.
96
Check out this amazing custom truck available at the Scottsdale 2025 Barrett-Jackson show. 100% of hammer price to benefit the ForeBatten Foundation thanks to the generosity of Rick Steele and CARS By Constance #barrettjackson #carsbyconstance barrett-jackson.com/2026-sco…
163
What a way to end a special day at a special place. Thank you TR for your support and allowing this event to flourish.
Tobacco Road
@TobaccoRoadGolf
8 Oct 2025
This shot 👀 Last of 20 players in the tiebreaker of the “2025 Take A Swing Fore Batten” charity event @TobaccoRoadGolf. Walk Off 👊
0:37
240
David joins Joe Lagowski on his home course at 8:30 Eastern! youtube.com/live/tei12p-v9HQ…

LOT 15 Challenge! Let’s make some BIRDIES ForeBatten

In this video me and David will be playing LOT 15 as a scramble and...

youtube.com
1
186
Exciting news in ASO treatment for the CLN3 common mutation. We are proud that our years of research support have culminated in this development. Read the full announcements from ForeBatten and VCRDF forebatten.org/news-events
1
151
7 years ago, we had our 1st fundraiser. Many of you were there that night. And many have joined us since. This amazing community came together again to raise…drum roll… $1.6M from our 7th Take A Swing Fore Batten online auction, our live and simulator tournaments!
2
1
10
1,699
The ‘Best Silent Auction in Golf’ ends TONIGHT 10pm Eastern! Get your auto bids in now - it gets fast and furious at the end. ForeBatten2025.givesmart.com
171
Today is #RareDiseaseDay. We have been spreading awareness all week. Karen, David, & Project Butterfly team members presented at @UNCneurology Grand Rounds. Karen & Dr. Jill Wiemer spoke @skpharmteco rare disease event. To honor this day, consider donating $28 on our website.
1
3
164
Another great time for @CleGuardians fans #Guardians #clevelandguardians #memorabilia #mlbmemorabilia Bid here: e.givesmart.com/events/EbM/i…
98
Hey @CleGuardians fans, check out this amazing experience! #clevelandguardians #visitcleveland #mlb e.givesmart.com/events/EbM/i…
82
Golf Simulator Enthusiasts @TobaccoRoadGolf is an SGT tour event benefiting ForeBatten. And it is #free! simulatorgolftour.com/

Simulator Golf Tour | Sim Golf

Take your golf simulator experience to the next level. Join the Simulator Golf Tour today and compete against golfers from around the world!

simulatorgolftour.com
4
118
Load more