Well done presentation by OHSU’s Dr Sarah Lindsey! Thanks to @nwsarcoma funding. Sounds like there is work needed to report sarcoma dx more accurately. #CTOS2022
100’s of patient advocates, providers, industry reps, researchers and leaders from the FDA and NIH gathered to improve care for people with rare diseases/disorders. It was great to be among them and connect with the rare cancer folks.
Today is the first day of Childhood Cancer Awareness Month. Approximately 47 kids in the US will be diagnosed with cancer today. Be Bold With Gold this month and let kids know we are working on a better future for childhood cancer treatment. #childhoodcancerawareness#iamsam
Ty recently completed treatment for Ewing Sarcoma and now he wants to help make a difference for other kids. It is a terribly difficult treatment protocol. Let’s change that. interland3.donorperfect.net/…
Quote from Sam Day on July 4th, 2016 “America is a great country that is a bit of trouble and I hope we can find a way out of it.” We’re still working on it Sam, and still hopeful. #hopejunkie#onedaysamday
Listening to "Lorna Day will talk about her son Sam who passed away after a long and difficult battle with Ewing's Sarcoma in 2016, and the Foundation she set up in his honor to fund research for the most difficult forms of Pediatric Cancer." at buzzsprout.com/1218635/10783…
I am going to say this full-throated thing- parents of children being treated for cancer are in a particular, singular hell. I have met many parents of children with many diseases. Ped cancer is exqusitely cruel for how it forces suffering as the only path to life. I am so sorry.
These three students received a Sam Day Memorial Scholarship because if how they choose to live through a chronic illness or physical disability. Apoorva is our first cancer survivor to receive the award. Excellence and resilience!
The SDF scholarship for @SHS_Apollos is available on the site! If you know a student with a chronic illness or physical disability, take a peek. samdayfoundation.org/sam-day…