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#CDDAwareness Getting the diagnosis is devastating but comfort comes from knowing what you are dealing with as a family.
Natalie Ladly of @CDKL5Cad shares her family’s experience when hearing her daughter Brynn’s #CDKL5 diagnosis: “Receiving the diagnosis at nine months was devastating at first but we managed to get through it, push forward and take the disease one day at a time as a family.”
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