2 Oct 2024
👩🔬 Victoria Gabb's first blog (of many to come in the next year) highlights the importance of measuring meaningful outcomes in #MCI research. Follow the series to stay informed! #CoreOutcomes #Alzheimers @vickygracegabb
dementiaresearcher.nihr.ac.u…
ALT The image features a guest blog announcement for Victoria Gabb, a Senior Research Associate at the University of Bristol. The title of the blog is "Developing 'Core Outcomes' for Mild Cognitive Impairment Research," and it is part of a new series following the development of this work. The image shows a smiling elderly couple, one of whom is wearing a turban, sitting together and looking at a device, with a younger woman standing behind them, also smiling. This reflects a warm and supportive setting. The Dementia Researcher logo is displayed on the right. The text below the title reads: "A new series following the work as it develops."
5
475
12 Apr 2024
International consensus is needed on a core outcome set to advance the evidence of best practice in cancer prehabilitation services and research. New editorial by Myers et al #prehab #cancer #coreoutcomes
bjanaesthesia.org/article/S0…
6
8
1,839
13 Oct 2023
Congratulations, Roisin! It's incredible to see your valuable work being recognized and supported. Looking forward to following @HarrysHAT5 for updates on your impactful research! #Hydrocephalus #CoreOutcomes
1
1
50
5 Sep 2023
For us researchers, it is IMPERATIVE to ensure our #systematicreviews, #clinicaltrials, and other studies measure what matters to THE MOST IMPORTANT stakeholders - patient consumers.
#CochraneLondon #coreoutcomes @COMETinitiative @cochranecollab
Anything less just won’t do.
5 Sep 2023
@Maureenchats speaking with expertise about the importance of COS, co-produced with people with lived experience, to inform systematic review PICO structure. @hetbag @saldanha_ian @CochraneConsumr #CochraneLondon
11
21
5,502
25 Jul 2023
Determining #coreoutcomes for #preterm birth in Aotearoa #CarosikaCollaborative. We would love to hear from all healthcare professionals involved in pregnancy and newborn care. Join our online survey: auckland.au1.qualtrics.com/j…
2
3
1,239
23 Jun 2023
Is your family affected by paediatric #Hydrocephalus?
We want to understand the experiences of families after a diagnosis of paediatric hydrocephalus.
Your voice matters! Get in touch on: roisin@harrys-hat.org
#CoreOutcomes #Hydrocephalus
4
3
335
22 Jun 2023
Families, clinicians & researchers!
▶️ What paediatric hydrocephalus outcomes matter to you most?
▶️ What information should researchers collect as part of all paediatric hydrocephalus studies?
Your voice matters! Get in touch: roisin@harrys-hat.org
#CoreOutcomes #Hydrocephalus
5
5
1,872
3 May 2023
#omeract2023 Omeract Fellows absolutely nailed their 2min presentations on their #coreoutcomes for rheumatology
Congratulations!
3
14
2,268
11 Nov 2022
@sjciech has research in press (watch press, no tweets), probably using optimal study design methodology - focused on Core Outcome Sets (COS). @COMETinitiative will help, as will @CoreOutcomes. #OAA3dc2022
1
2
Welcome Eylul to #in4kids_ie team too! 🎉🎉👏👏#coreoutcomes #neonatalsepis
#childrensresearch #notjustsmalladults
The team is growing! Welcome to @NUIGalwayMed @n_gnursing HRB-TMRN team Dr Petek Eylul Taneri who joins joins the team to work on a #coreoutcomeset on #NeonatalSepsis together with our partners in @in4Kids_ie - We look forward to working with you Eylul! 👏
1
2
Thank you @ThrombosisCan for the opportunity to participate! Do current major #bleeding definitions for #anticoagulants capture patient-important & provider-relevant #outcomes? Should they be refined? Thoughts/feedback welcome!
#Thrombosis #CoreOutcomes #PatientInvolvement
5 Apr 2022
A new episode of CLOT Conversations the @thrombosiscan podcast has just been released. Listen to our conversation with @IMYanXu on the recent paper, Evaluation of definitions for oral anticoagulant-associated major bleeding: A population-based cohort study bit.ly/3DMAnvg
3
27
14 Feb 2022
Now published in @BMJ_Open. Protocol for the development of a core outcome set for stillbirth care research (@ichooseresearch). Much needed work led by @danyabakhbakhi and team. Congrats to all! bmjopen.bmj.com/content/12/2…
#StillbirthResearch #StillbirthCare #CoreOutcomes
5
15
20 Jan 2022
Excited to share our @BMJ_Open systematic review which discusses the need for a new paradigm of #digital #dermatology #caregiver #assessment to enhance #familyhealth outcomes. All RTs welcome
#PPI #coreoutcomes #RareDisease
@BamfordCentre @mmclaughlin14
bmjopen.bmj.com/content/12/1…
8
36
57
Long-term health conditions includes both #physical & #mental health conditions (examples mumpredict.org/79-health-con…)
Your views from this #Focus #Group will help shape future research studies for #pregnant women with multiple longterm #health #conditions
#mumpredict #coreoutcomes
✅Planning a #pregnancy/pregnant in last 5 years?
✅Have multiple long-term conditions?#MLTC
Join our #FocusGroup
#mumpredict wants to hear your view ❓what should researchers measure
➡️mumpredict.org/focus-group-w…
1
3
9 Nov 2021
We’re excited to announce that ACD has been awarded a $238,000 Eugene Washington Engagement Award by @PCORI. To learn more, read the news release here: bit.ly/3bSLmpE #CreatineInfo #ACDresearch #PatientEngagement #PCORI #precisionmedicine #coreoutcomes
1
3
7 Sep 2021
This is me for the next few days. @WSESurgery #edinburgh
Lots to see on the programme. Plus, @segun_lamidi poster on #coredescriptors of #ppu, @GIR_COS poster on #sbo #coreoutcomes and will be presenting the Indicates #nutrition #risk paper.
#emgensurg #conferencetime
1
7
39
22 Jun 2021
JUST PUBLISHED - Systematic overview of outcomes in current research and development of a Core Outcome Set for treatment studies of #PerinatalDepression. #coreoutcomeset #coreoutcome
@COMETinitiative
@CoreOutcomes
obgyn.onlinelibrary.wiley.co…
1
2
27 May 2021
This is a really important project aiming to harmonise adenomyosis research and make it more patient-focused. Please get involved and spread the word @tina_tellum @martinhirsch100 @DavorJurkovic @CoreOutcomes @TheBSGE @ESGEorg
27 May 2021
On June 1st we open the first Delphi survey that will determine what our core outcome set for Adenomyosis will be. We need researchers, clinicians and patients to do it so please spread the word to everyone you know with an interest in adenomyosis
COSAR.org
3
5
A snapshot into the #TrialsMethodology research in our Network by our #PhDScholars for #ICTD2021 -
@Fiona_Quirke_ and her study @COHESION_COS study
@n_gnursing - #CoreOutcomes in #Neonatal Encephalopathy cohesion.ie #TrialsMethodology
4
8