Mar 20
Delighted to share the final version of our Short Communication in @JournalCF. We show that upper airway samples do not reliably reflect lower airway microbiota in awCF- highlighting key challenges for microbial surveillance in the modulator era.
Link: tinyurl.com/y7cr34c9
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4 Jun 2020
sciencedirect.com/science/ar… would have been presenting this at #ecfs conference in Lyon this week, sad to miss such an opportunity, but at least it is still available to read in #JournalCF well done team @TeessideCF @pauline_sing @rajjayaraj @figgi12
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1 Jun 2020
.@CorbusPharma today announced publication of Phase 2b #cysticfibrosis study patient demographics and baseline disease characteristics in @JournalofCF. Details: ow.ly/NPzL30qLwIo #CF #JournalCF #ECFS2020 $CRBP
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15 Jan 2020
We are seeking an early career researcher to run this Twitter feed, promoting #JournalCF content and European #cysticfibrosis Society events/news. This is a voluntary role. To apply, please DM a CV and a letter of interest/qualifications by 31st January.
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9 Jan 2020
#JournalCF Letter to the Editor explores the utility of n-of-1 trials to expand access to CFTR modulators for rare #cysticfibrosis mutations.
ow.ly/NRS450xOcee
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9 Jan 2020
#openaccess publication in #JournalCF on how rescue of #cysticfibrosis W1282X-CFTR requires inhibition of nonsense mediated decay alongside corrector and potentiator therapy. ow.ly/PNNG50xObUz
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8 Jan 2020
Data from a recent #JournalCF manuscript finds strong toll-like receptor responses in #cysticfibrosis patients are associated with higher lung function.
ow.ly/dWVL50xObGQ
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8 Jan 2020
Read in #JournalCF an #openaccess review of intestinal organoid models for #cysticfibrosis research. ow.ly/e2ZL50xObzC
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7 Jan 2020
Also #openaccess in #JournalCF, alterations of bone microarchitecture and composition at birth in #cysticfibrosis pigs suggest bone defects may be a primary aspect of disease.
ow.ly/xFKF50xObrF
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7 Jan 2020
An #openaccess #JournalCF publication on use of ivacaftor in #cysticfibrosis with residual function: Lung function results from an N-of-1 study. ow.ly/d1pr50xOba3
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31 Dec 2019
Published in #JournalCF is new evidence demonstrating the utility of lung clearance index as an effective primary endpoint in #cysticfibrosis phase III clinical trial. ow.ly/BaLp50xCPYF
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31 Dec 2019
#JournalCF Letter to the Editor - positive clinical outcomes following ivacaftor treatment of #cysticfibrosis genotype 3272–26A > G/Q493X. ow.ly/lyYN50xCPPu
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30 Dec 2019
Read results from a survey of #cysticfibrosis community and clinicians about treatment withdrawal research to reduce treatment burden. #JournalCF ow.ly/y9pF50xCPNN
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30 Dec 2019
New evidence is emerging that has to be considered as an additional opportunistic pathogen in #cysticfibrosis. Read further in #JournalCF. ow.ly/WsQ950xCPM4
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28 Dec 2019
Read a review of the new insights gained into how small molecules for #cysticfibrosis can rescue CFTR structure and function. #JournalCF ow.ly/eCZI50xCPBe
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27 Dec 2019
New #JournalCF study asks - Can exercise replace airway clearance techniques in #cysticfibrosis? A survey of patients and healthcare professionals. ow.ly/fIwe50xCPxQ
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27 Dec 2019
#JournalCF study used a questionnaire to summarise the lived experience of #cysticfibrosis treatment burden and suggest research themes aimed at reducing burden. ow.ly/9ZhX50xCPwQ
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26 Dec 2019
Intestinal organoids function varied between #cysticfibrosis subjects with homozygous F508del, correlates with pulmonary and nutritional parameters and may underly clinical heterogeneity. #JournalCF ow.ly/9NzJ50xCPvV
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26 Dec 2019
Read a #JournalCF review of how genetic variation in CFTR and modifier loci may modulate #cysticfibrosis disease severity. ow.ly/vbXj50xCPuE
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25 Dec 2019
#JournalCF wishes a Merry Christmas to all our readers, authors and reviewers. Best wishes to those with #cysticfibrosis who are unwell during the holiday season.
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