Amazing write up in the @elcourier for our recent special recognition award. I've lost count of the articles through the years, but this one is up there. Thank you 🦓 #netawareness eastlothiancourier.com/news/…

What an incredible day at the Neuroendocrine Cancer Patient Conference in Atlanta, with over 100 incredibly engaged guests! We are so grateful to @UGrewalMD, our speakers, patients, caregivers, clinicians, advocates and sponsors for coming together to learn, connect, and support one another. Seeing such a strong turnout reminds us of the power and resilience of this incredible community. A special thank you to our outstanding speakers from Emory, Vanderbilt, and UAB, as well as our generous sponsors, for helping make this event possible. 💚 #neuroendocrinecancer #netcancer #netawareness

A return to video blogs in the original landscape mode. Going over a poor run of health & Ellie's upcoming skydive. Not long now! £3750 raised so far👀 The link to donate is in the video desc /Johnnie 🦓 #NETawareness youtu.be/_OJDlWdYK88?si=YW7v…

Johnnie at the reigns today! The support for this event has been incredible, thank you. With it being delayed due to weather, there's still time to help 🙏. 👉 gofund.me/2000f2808 🦓🪂 #netawareness

Today, we honor a 60-year legacy — and look ahead with purpose. After nearly 60 years of service, the @CarcinoidNETs (CCF), founded by Dr. Richard R.P. Warner, has announced it is closing operations. We are honored that the Neuroendocrine Cancer Foundation (NCF) was chosen as CCF’s successor organization. Over the past two years, NCF has worked closely alongside CCF to ensure continuity of support. 💙What This Means for Our Community: 🧡A new, unified Neuroendocrine Cancer Provider Directory — developed in partnership with the Neuroendocrine Tumor Research Foundation (NETRF) — will launch later this year to help patients connect with experienced providers 🧡The Patient Support Line will continue 🧡Luncheon with the Experts (LWTE) webinars will continue 🧡Stories of Hope will continue to amplify patient and caregiver voices We are deeply grateful to CCF and to Keith Warner and @GraceGoldstein for their decades of leadership, service, and unwavering dedication to the NET community. Their confidence in NCF is something we do not take lightly. Our commitment remains clear: no one facing neuroendocrine cancer should feel alone. We will continue building on this legacy with trusted education, compassionate support, and meaningful connection. — The NCF Team #NeuroendocrineCancer #NETCancer #ContinuingTheLegacy #PatientSupport #cancercommunity #NeuroendocrineTumor #netawareness

Our 2nd giftcard giveaway is live. Congratz to Sonya Mac who won the first one. Same as before, to enter you need to give this a RT, Like and reply. Will draw this at random this coming Friday 19th Dec 🦓 #netawareness #LetsTalkAboutNets

This ends tonight 19:00 via the random wheel. Still time to enter. Remember to like, RT, and of course follow. There's another giveaway going live tomorrow, and a new voucher giveaway going up on Sunday 🦓🎅 #NETawareness #Giveaway

Tonight on #YaleCancerAnswers, @PamelaKunzMD joins to discuss the exciting progress being made for patients with #neuroendocrinetumors, including groundbreaking research and innovative treatments. 🦓 ▪️ Listen live @wnpr ▪️ Download @ApplePodcasts ▪️ Watch @YouTube @SmilowCancer @YaleGICancers #NETawareness

Nearly 7 in 100,000 people are diagnosed with NETs each year. Awareness and education are vital to improving detection and treatment. Support the cause and help drive progress: 🔗 nanets.net/donate #NETAwareness #NETResearch #NANETS #CancerEducation #MedicalCommunity

Each year, more than 22,000 people are diagnosed with neuroendocrine tumors (NETs). Expanding education and research is vital to drive earlier detection, better treatments, and stronger outcomes. Donate today: nanets.net/donate #NETAwareness #NETResearch #NANETS

Willie's phone died, so we were in the dark for a wee bit. Thankfully one of the team cycling today, Jason has kindly sent some photos with an update. They're approximately 70 miles away from the finish line. Doing brilliantly 👏🦓 #NETawareness

Johnnie taking over X for a bit! 147km ✅️. They're smashing it! It of course Gets tougher as they progress. We've raised over £2300 now. Still time to help and support #NETawareness bit.ly/jjtdb5 🦓🤍🖤

#NETAwareness #NETCancerDay #NETs #NANETS @NANETS1 @World_WNCD @Neuroendocrine @NECancerAus

Today is #NETAwareness day. Neuroendocrine tumors or NETS are considered rare but the incidence of people diagnosed with this type of cancer is going up. Dana-Farber's Jennifer Chan, MD, MPH, discusses ongoing research aimed at improving outcomes for patients.

Let's not forget !!! Thursday we have a wonderful charity stream with some fantastic streamer friends joining. NET Awareness Day - Merch and Charity PayPal Fundraiser links live and in comments. #netawareness #netcancer #Cancer #love @netcancerday thanks for the follow btw.

Presenting some important information on Neuroendocrine Tumors. Also sharing some lethal justifications for NET awareness. #netcancerday #letstalkaboutnets #knowthesymptoms #neuroendocrinetumors #neuroendocrinetumours #netawareness #petscan #prrt #nanets #drswagatdash #shrc

Just 1 hour to go!!!! DM for the link to join us. #research #collaboration @LACNETS @NANETS1 @CarcinoidNETs @CureNETs @NETawareness #letstalkaboutnets #NeuroendocrineCancer #patients #doctors #scientists

2 days to go until our 2nd NET Cancer Virtual Research Conference beginning at 5pm UK time on Friday 20th May. Please send us a message for the link. #letstalkaboutnets #NeuroendocrineCancer @NETawareness @CureNETs @CarcinoidNETs @NANETs @LACNETs

Netchatter tonight at 6pm UK time with our guest speaker @ilamarinoni . We look forward to seeing you join us. Please message or email for the Zoom link. contact@netcancerfoundation.com #patients #research #letstalkaboutnets #NeuroendocrineCancer @netcancerfound @NETawareness

Functional NETs release excess hormones into the body; this hormonal imbalance can cause various syndromes and symptoms. Nonfunctional NETs release very small amounts of hormone or none; however, it is rare that they become functional. #NETawareness