Raising a child with neurofibromatosis (NF) comes with challenges that can impact every part of family life—and you don’t have to navigate them alone. us02web.zoom.us/webinar/regi… #neurofibromatosis #NFdad

As summer heats up, let's reflect on NF Awareness Month! Throughout May, the NF community united to raise awareness, inspire connection, and strengthen our commitment to finding better treatments and a cure. Read more: nfnetwork.org/news/network-n…

We're thrilled to announce that SketchNF artwork will be showcased in the Rare Square exhibit! Enjoy a special preview starting July 7, and don't miss the official opening celebration on July 29. Admission is free! nfnetwork.org/pages-news/one…

I just registered for the virtual option since I will be at SpaceCon in San Antonio to see Gillian Anderson, David Duchovny & Mitch Pileggi 🤓 I think I’ll get 5K steps in? #TheXFiles raceroster.com/events/2026/1…

💙 The 2026 NF Strong 5K is next weekend! Join us as we stroll, roll, walk, or run to support the neurofibromatosis community. Register today: raceroster.com/events/2026/1… #NFStrong #WalkForNF #NFNetwork

Big thanks to Drs. Armstrong and Hirbe for an engaging discussion at #ASPHO2026! 📺 Missed it? Watch the replay: bit.ly/NF26-T Appreciation to @AlexionPharma, @AstraZeneca, and @SpringWorksTx for grant support, and @nfnetwork for collaboration. #CME #MedEd

ReiNForcing Care Pathways in NF1-PN: Improve patient outcomes with MEK inhibition and coordinated care. Join the #Neurofibromatosis experts, Drs. Armstrong & Hirbe, in person or virtually during #ASPHO2026 on 4/29 at 11:15 AM CDT. Produced with @nfnetwork 🔗 bit.ly/NF26-T #HemeOnc

Just DMd!!!

One person declined a prize so one more spin! I haven’t heard from Hannah F yet, either. If you know them or a Melanie D, ask them to DM me please. #ScullyCoffee4NF #TheXFiles 16/?

Join the #Neurofibromatosis experts on 4/29 at 11:15 AM CDT during #ASPHO2026 for an NF1-PN #MedEd event. Produced with @nfnetwork ➡️ bit.ly/NF26-T #HemeOnc

Este por favor

Haven’t heard from Anamin M or Kassidy N yet & the last two left are below: 4 or 10, please contact me with your address to claim one! #ScullyCoffee4NF #TheXFiles 15/?

Woohoo @CatherineGlins2

If you see your name, congrats! To claim prize, email scullycoffee4nf @ gmail. com with prizes 1-10 ranked by preference. Link in bio for prizes. Thx for supporting @nfnetwork! #ScullyCoffee4NF #TheXFiles #GillianAnderson 14/?

$797 raised for @nfnetwork on #ScullyCoffee4NF Day. If you entered, your odds of getting something are the best they’ve ever been 😅 I’ll get the drawing ready to go tomorrow! #TheXFiles 13/?

Thank you to Neurofibromatosis Network for stopping by my DC office this week! Neurofibromatosis is a genetic disorder that causes tumors to form on nerves throughout the body. For nearly three decades, @nfnetwork has built support for treatment and has worked toward finding a cure. I appreciate this group taking the time to share how Congress can support its mission of providing greater education, resources, and community for those living with NF and their families.

Our @nfnetwork contact is on the D.C. trip to advocate for NF research funding 🙌 That means you still have time to get in on #ScullyCoffee4NF today! Scroll up for details, and thanks to everyone who donated yesterday. We should have the total tomorrow. #TheXFiles 11/?

Only 55 issues of 55 exist & I don’t even have one! 🥺😅 Signed by creator Gary Yap & @GillianA. Check out the thread for details & please support @nfnetwork on #ScullyCoffee4NF day.

Sculllaayyy!!! help!!!! Someone put the whammy on me & now I’m stuck in this giant coffee mug on your birthday! Mulder, please explain to me the scientific nature of “the whammy.” Let’s see your #ScullyCoffee4NF photos! #TheXFiles, Whammy mug by @CeeDoubleUBee 10/?