Jun 15
Didn't sleep much but my son sat and watched his show while I napped a bit after hubby left for work. Now if I could do something about this pain 😫 #stage4needsmore #chronicpain
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💔 - Heartbroken
Amy was my friend, my 🍷 buddy, fellow science nerd, early a.m. text partner, & one of the kindest, smartest people I’ve ever known.
Over the past 5 years we shared conferences, adventures, laughs, & a friendship I will always treasure.
The world feels a little smaller & much sadder without her in it.
I’ll miss you terribly, Amy ❤️🩹
#Stage4NeedsMore
#bcsm
#MetastaticBreastCancer
@metavivor
@The_Right_Dose
#FundMBCResearch
Jun 5
METAvivor is devastated to report the death of Amy Beumer, former board member, from metastatic breast cancer. We will miss her brilliance, wit, and friendship. In Amy's honor, we remain committed to ending deaths from MBC. Our condolences to her family and loved ones.
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May 30
Love it when my family calls, I get off the couch to go into a quiet room and my aunt says 'so how you feeling besides the exhaustion and being out of breath that I can hear?' #stage4needsmore
Gee 😞
@ThanksCancer @CancerisanASS
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May 22
I have to get better to go with Masen to bowling tonight he's counting on me to be there. He's so uncomfortable and sad if I stay home. I'm in so much pain nothing is working this morning 😭😭😭 #chronicpain #stage4needsmore
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May 8
#cancerfam we are headed back onto the hard heavy shit it seems 😭 growth in a spot in my liver but we are not giving up! #cancersucks #stage4needsmore
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May 6
Four years ago today, I received the phone call that changed the trajectory of my life.
I was told I wasn’t cancer free after all, and that my breast cancer had metastasised to my liver, lungs, lymph nodes and pelvic bone, as well as a new grade 2 BC tumour on my skin. I was given three years and beyond devastated.
After a weekend of shock and fear, I refused to accept his prognosis. I chose not to see that oncologist again and instead went looking for thrivers. Someone told me early on that living in fear isn’t living and I knew I had to hold onto that.
A week later, Maya (who’d just turned 15) and I got on a plane to Paris, the first place she chose, and that became the start of our many adventures, a way of saying yes to life ❤️
Knowing time is limited has meant fast forwarding a living list full of hopes and dreams, something to focus and look forward to between scans, results and treatments
It’s been four years of navigating the many side effects, some really debilitating, and uncertainty, whilst somehow finding a way to live alongside it all, and I’m beyond so grateful for how I’ve responded to treatment so far.
It’s also brought so many new and unexpected things into my life.
I never imagined campaigning would become such a big part of it, from being a patient advocate, fighting for access to life extending drugs like Enhertu, better care for MBC, and the right for terminally ill adults to have choice at the end of life. I’d never been in Parliament before my diagnosis but now I’ve lost count!
I co founded Brighton & Hove Secondary Sisters (thanks to Secondary Sisters) which is a wonderfully supportive group and now even has its own exercise classes!
I’ve met so many incredible, inspiring women in the community, but have heartbreaking lost far too many before their time 💔
Life feels more heightened, the small things brighter and moments more meaningful. My family and friends have embraced it all with me, having adventures and making memories I’ll treasure forever. I’ve found more joy than I ever thought possible living with this diagnosis.
Thank you for all the love and support, from friends old and new, to total strangers, it’s means the world❤️
So four years on I’m still here, and hoping to have many more adventures from my ever growing living list! #cancerversary #LivingWithCancer #Stage4NeedsMore
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May 6
I don't know how much longer I can handle all of this without more help without judgement or a break 😭😭😭😭 #chronicpain #stage4needsmore
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Apr 27
"What my medical file won’t tell you..." A stellar, must-read response to a writing prompt from @AMJohnston1315 #stage4needsmore nohalfmeasures.blog/2026/04/…
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Apr 23
Labs and the provider I do not like today for a check up. Back is screaming I haven't even moved much yet....fuck 😣 #chronicpain #stage4needsmore
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Apr 7
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Mar 15
Well I ordered a big ice pack the size of my whole back as well as a back brace. Should both be here tonight, let's see how they fly. My Chiro says the scan is stable but damn doesn't feel like it 😞 #cancersucks #stage4needsmore
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Mar 12
I see onco this morning for labs and chemo, interested to see what he says about the recommendations from Cleveland Clinic. My dad and step mom are ready to jump in the car and take me now #stage4needsmore
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Mar 9
Checking off that bucket list one at a time. Visiting Wrigley and coming to my first ever @Cubs game this coming year, gimmie the best place to sit to see the action that's not going to break the bank, cancer does that enough. #ChicagoCubs #cubsfan #cancersucks #stage4needsmore
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