24 Sep 2024
The #UKHealthDataResearchAlliance supported 19 orgs to implement their Transparency Standards.
Two project leads, Katherine and Yvonne, explain the need and value of opportunities to improve #TransparentDataAccess.
โก๏ธ Explore the Transparency Standards: hubs.li/Q02QYZTn0
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18 Sep 2024
๐ค Why is #TransparentDataAccess important for building public trust?
Our Public Advisory Board reviewed #UKHealthDataResearchAlliance membersโ sites to suggest ways to improve transparency in data governance.
Explore the findings and recommendations:
hubs.li/Q02Qgtdv0
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25 Jun 2024
๐ข @ukfuturehealth have published their first data use register โ based on the #UKHealthDataResearchAlliance data use register standard โ to make it clear what data is being accessed, by whom and for what purpose
Learn more ๐ hubs.li/Q02D9GZ00
#TransparentDataAccess
ALT Raghib Ali: This is vital for the transparency of our research programme and an important step in communicating how our volunteers' data is being put to good use and will benefit public health.
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22 May 2024
๐ Congrats to @DatamindUK on receiving the #UKHealthDataResearchAlliance Transparency in Data Access Award!
They were supported to adopt Transparency Standards to improve #TransparentDataAccess, developing accessible materials such as a glossary, infographics and lay summaries.
ALT DATAMIND team with award.
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ICNARC are excited to be at the @HDR_UK Transparency Showcase today after receiving @The_MRC funding to adopt the Alliance Transparency Standards and improve #TransparentDataAccess for healthcare innovation!
22 May 2024
Check out the fantastic outputs of 19 funded orgs who were supported to implement the #UKHealthDataResearchAlliance Transparency Standards and improve #TransparentDataAccess through a variety of means, from animations to website updates.
Published in @IJPDS.
Take a look! ๐
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22 May 2024
๐ขExciting News, #ECHILD abstract now published. Implementing #UKHealthDataResearchAlliance Transparency Standards. Check it out here ijpds.org/article/view/2456
#TransparentDataAccess @HDR_UK @ADR_UK @Klharron
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22 May 2024
Sorry to miss the @HDR_UK Alliance Transparency Showcase today. Funding from this project has been instrumental in helping us to increase visibility and transparency of our health data research @CUH @CambridgeBRC @EoE_SDE
#transparentDataAccess
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22 May 2024
Read the research abstract published by SAIL Databank for the @HDR_UK's Data Transparency Showcase here ๐
lnkd.in/e8NbmkXV @IJPDS
We are proud to be one of the 19 organisations adopting the Alliance Transparency Standards โญ
#TransparentDataAccess
๐๐ฎ๐๐ฎ ๐ง๐ฟ๐ฎ๐ป๐๐ฝ๐ฎ๐ฟ๐ฒ๐ป๐ฐ๐ ๐ฆ๐ต๐ผ๐๐ฐ๐ฎ๐๐ฒ ๐๐ฏ๐๐๐ฟ๐ฎ๐ฐ๐๐ ๐ป๐ผ๐ ๐ฝ๐๐ฏ๐น๐ถ๐๐ต๐ฒ๐ฑ!
Adopting Alliance Transparency Standards - improving transparency of processes for accessing health relevant data for research
ijpds.org/issue/view/37
#UKHealthDataResearchAlliance
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22 May 2024
Check out the fantastic outputs of 19 funded orgs who were supported to implement the #UKHealthDataResearchAlliance Transparency Standards and improve #TransparentDataAccess through a variety of means, from animations to website updates.
Published in @IJPDS.
Take a look! ๐
๐๐ฎ๐๐ฎ ๐ง๐ฟ๐ฎ๐ป๐๐ฝ๐ฎ๐ฟ๐ฒ๐ป๐ฐ๐ ๐ฆ๐ต๐ผ๐๐ฐ๐ฎ๐๐ฒ ๐๐ฏ๐๐๐ฟ๐ฎ๐ฐ๐๐ ๐ป๐ผ๐ ๐ฝ๐๐ฏ๐น๐ถ๐๐ต๐ฒ๐ฑ!
Adopting Alliance Transparency Standards - improving transparency of processes for accessing health relevant data for research
ijpds.org/issue/view/37
#UKHealthDataResearchAlliance
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22 May 2024
Great to be at the @HDR_UK Alliance Transparency Showcase today. Fantastic to see a public led initiative leading to transparency standards and funded projects which have adopted them. #transparentDataAccess
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๐๐๐ฅ ๐จ๐ ๐๐ฎ๐๐ฎ ๐ง๐ฟ๐ฎ๐ป๐๐ฝ๐ฎ๐ฟ๐ฒ๐ป๐ฐ๐ ๐ฆ๐ต๐ผ๐๐ฐ๐ฎ๐๐ฒ ๐๐ฏ๐๐๐ฟ๐ฎ๐ฐ๐๐ ๐ป๐ผ๐ ๐ฝ๐๐ฏ๐น๐ถ๐๐ต๐ฒ๐ฑ!
Learn how improvements in clarity and accessibility of info about data access processes benefit the public and researchers ijpds.org/issue/view/37
#TransparentDataAccess
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๐ฃ๐ฟ๐ผ๐ฐ๐ฒ๐ฒ๐ฑ๐ถ๐ป๐ด๐ ๐ณ๐ฟ๐ผ๐บ ๐๐ต๐ฒ ๐๐๐ฅ ๐จ๐ ๐๐ฎ๐๐ฎ ๐ง๐ฟ๐ฎ๐ป๐๐ฝ๐ฎ๐ฟ๐ฒ๐ป๐ฐ๐ ๐ฆ๐ต๐ผ๐๐ฐ๐ฎ๐๐ฒ ๐ฎ๐ฟ๐ฒ ๐ป๐ผ๐ ๐ฝ๐๐ฏ๐น๐ถ๐๐ต๐ฒ๐ฑ!
IJPDS is honoured to work with HDR UK to share research abstracts from this important event
ijpds.org/alliance-transpareโฆ
#TransparentDataAccess
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22 May 2024
๐ฃ We're celebrating the outputs of 19 orgs who were supported to adopt the #UKHealthDataResearchAlliance Transparency Standards,
@ukfuturehealth used the funding to create an engaging, accessible video for all.
Find out more โฌ๏ธ
hubs.li/Q02y5BVl0
#TransparentDataAccess
ALT Spotlight on Our Future Health ahead of the Transparency Showcase.
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22 May 2024
#ECHILD is delighted to attend the @HDR_UK
Transparency Showcase event๐ฅtoday to present our efforts to improve #TransparentDataAccess on the new
@ucl_echild website: echild.ac.uk
#UKHealthDataResearchAlliance @klharron
16 May 2024
๐ 19 orgs were awarded funding in Oct 2023 to implement the #UKHealthDataResearchAlliance Transparency Standards and improve #TransparentDataAccess through a variety of means, from website updates to new animations.
View the list of funded orgs ๐
hubs.li/Q02wQzgs0
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21 May 2024
Iโm delighted to be attending the @HDR_UK Transparency Showcase tomorrow to present our work to improve #TransparentDataAccess on the new @ICNARC website: icnarc.org/data-services/
#UKHealthDataResearchAlliance
16 May 2024
๐ 19 orgs were awarded funding in Oct 2023 to implement the #UKHealthDataResearchAlliance Transparency Standards and improve #TransparentDataAccess through a variety of means, from website updates to new animations.
View the list of funded orgs ๐
hubs.li/Q02wQzgs0
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21 May 2024
๐ฃ @RDS_Scotland are one of 19 funded orgs supported to adopt the #UKHealthDataResearchAlliance Transparency Standards.
Through the funding, they've created 3 new animations for researchers and members of the public.
More info โฌ๏ธ
hubs.li/Q02xMc1W0 #TransparentDataAccess
ALT Transparency Showcase. Spotlight on Research Data Scotland
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20 May 2024
โจ @ucl_echild is one of 19 funded orgs supported to adopt the #UKHealthDataResearchAlliance Transparency Standards.
They've created a new website, including a visual animation of what ECHILD is, which is accessible to all.
๐ hubs.li/Q02xxh_g0 #TransparentDataAccess
ALT Transparency Showcase. Spotlight on ECHILD (Education and Child Health Insights from Linked Data)
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20 May 2024
@UKLLCollab were delighted to have been awarded this important funding and are excited to share the results of our work this week @HDR_UKโs Transparency Showcase Event.
#TransparentDataAccess
#UKHealthDataResearchAlliance
17 May 2024
๐ฃ On 22 May, weโre hosting an event where the 19 projects awarded funding to improve #TransparentDataAccess will be showcasing their hard work.
In the run-up, weโll be introducing some of the fantastic orgs so make sure to check back in next week!
#UKHealthDataResearchAlliance
ALT Stay tuned to explore the exciting project outputs of our 19 funded organisations, working to improve transparency in data access processes.
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17 May 2024
๐ฃ On 22 May, weโre hosting an event where the 19 projects awarded funding to improve #TransparentDataAccess will be showcasing their hard work.
In the run-up, weโll be introducing some of the fantastic orgs so make sure to check back in next week!
#UKHealthDataResearchAlliance
ALT Stay tuned to explore the exciting project outputs of our 19 funded organisations, working to improve transparency in data access processes.
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The RM BRIDgE TRE Team are celebrating @HDR_UKโs Transparency Impact Week! We were delighted to receive funding from @The_MRC to improve our website: cancerbrc.org/BRIDgE. See you at next weekโs HDR-UK Transparency Showcase! #TransparentDataAccess
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