Music major. Mezzo soprano, PAO warrior, THR warrior, animal lover, and slightly obsessed with Pokemon and Fire Emblem
Joined July 2020
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- Followers 34
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3 Photos and videos
25 Nov 2020
Sitting and waiting to see the neurologist about my weird right leg numbness and pain. I've had it for longer than I've had fibromyalgia, so I know it's not related, but I'm scared this new doctor won't believe me. Need some good vibes sent my way please.
#neisvoid
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New fun for me. My periods no longer happen thanks to the Nexplanon implant, but I still get the mind-numbingly painful cramps that used to go with the periods. Heat doesn't work. NSAIDs don't work. Exercise makes the sciatica that comes with the cramps worse.
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My OB/GYN doesn't take me seriously and says I'm exaggerating, so I am going to be asking for a referral to a different one. My primary care doctor left the practice and I have to see her replacement, which I am not excited about.
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My primary care doctor was literally the only doctor in this town who took me seriously, so her leaving makes me feel terrible. I just find myself hoping her replacement will give me the referrals I ask for when I go see her on Thursday... I need a doctor to take me seriously...
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31 Oct 2020
Right now, I'm watching the pre-recorded concert that I took part in. Surprising that I am still experiencing crippling anxiety despite the fact I am not actually performing tonight. Weird how the mind works....
21 Oct 2020
I feel like I've accomplished something. Today, my orthopedic called me a clinical conundrum because I have very specific nerve symptoms and no proof of activated nerves on my MRI. He's sending me to a neurologist for further testing.
#neisvoid
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22 Oct 2020
Just realized I cut surgeon out of the orthopedic surgeon. But for real, I just thought it was good on him for referring me elsewhere when he couldn't find a reason for my weird nerve symptoms that very possibly might be related to my #fibromyalgia.
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I went to a new gastroenterologist today and the first thing she said after I described all of my symptoms to her was, "you're only 27, so you must be exaggerating. Your CT and MRI are normal except for the giant hemangioma and you aren't symptomatic there." #neisvoid
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She ordered no tests, told me I would be fine with miralax, and sent me on my way. I'm still crying. I've been experiencing serious GI symptoms since July 2019 and I've seen 5 gastroenterologists and all but one have completely brushed me off.
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This has been a terrifying and painful journey and the doctors in my town have completely destroyed me emotionally. I don't even know what to do anymore and it's stressing me out...
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Really not loving the flare-up that came with the stress of being just miles away from the #GlassFire. Sure, I can't physically see the flames, but the smoke is triggering my #ptsd from the #partrickfire 3 years ago... Napa and Sonoma just can't seem to catch a break...
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13 Aug 2020
I honestly forgot what my schedule for the fall semester was until today when all of my professors started sending out the syllabi. Definitely proud of myself for not signing myself up for any classes before noon.
#brainfog
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13 Aug 2020
I honestly don't know what I would have done with myself if I had to wake up early and remember how my computer works to attend the Zoom classes... I have a hard time remembering how electronics work in the morning/evening. I am just grateful I took that into account this time.
#neisvoid Feel like my abdomen is just going to keep expanding... Ugh, why does eating make me so bloated? Literally every food makes my GI system feel gross and burn-y. I always feel like my insides are on fire. It's been like this for over a year...
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29 Jul 2020
I had an appointment to go over the results of the CT with contrast I had done last Monday... I have hepatomegaly and a 5.5cm hemangioma on my liver. Now I have to go in for an MRCP and extensive blood testing. 1/
#neisvoid
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29 Jul 2020
I don't drink, I don't do drugs, I don't have an infection that I know of, I don't take Tylenol, I don't eat excessively fatty foods (in fact, my appetite has been so off, I've lost 15lbs in 6 weeks), and I haven't been sick. 2/
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29 Jul 2020
Has anyone had an MRI with a pacemaker? I have yet to have any kind of MRI with mine and, while I know that my pacemaker is MRI safe, I find myself freaking out about it because I'm not just facing the MRCP, I am also facing an MRI of my right hip and lumbar spine.
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22 Jul 2020
Friends playing D&D last night: Okay, so are we all in agreement? Should we surrender to these bad guys?
Me: What agreement? What bad guys? My brain died an hour ago!
Friends: *explain everything back to me so I could remember what we were doing*
Best friends ever
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22 Jul 2020
Our group consists of a few people in the #neisvoid which is so helpful and fun. Our brain fog makes playing hard, but our other group members always help us when we get lost. They are never condescending. It's great to have a group of friends who support me in the struggle.
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