This year’s edition of the @ChildrensPhila ACR reunion was a big success! Over 20 years of fellows celebrating with laughs, stories, and shuffleboard! #ACR25#pedsrheum
⏰ It's time to apply for the CARRA-@ArthritisFdn Intramural grants! Jan. 15th is the deadline for Letters of Intent (LOIs) for Registry and Biobank-related RFAs for the CARRA-AF grants.
✅ Check out all the grant opportunities and the RFAs here 👉🏼 tinyurl.com/yck2s968
I'm proud to be a member of @carrainc and to donate on #GivingTuesday to support this incredible organization conducting #pedsrheum research
Join me in donating! This year, your donation will be doubled thanks to the McGrath Family Match!
Donate here: ➡️bit.ly/4fOq6kf
Approx. 50% of patients with pediatric-onset rheumatic disease are lost to follow-up as they transfer to adult care. What can we do? A lot! A few suggestions and resources in the comments. @ACRheum@GotTransition
It was so great to see all the great work presented by @carrainc members at #ACR24. I feel so fortunate to be part of this community and this organization!
🙌🏽 Thank you to everyone who helped make #ACR24 a great success! It was an honor to connect with our CARRA members, as well as many other rheumatologists, researchers, industry partners, advocates, and families from around the world. 💙
🗨️ Improving JIA outcomes and reducing disparities is challenging, yet we demonstrate that it is feasible using an equity-driven approach"
Healio talked with @DrDNAbel about what her group has learned at @ChildrensPhila👇
healio.com/news/rheumatology…
So grateful for this opportunity from @AcademyHealth and @MooreFound to improve diagnosis for kiddos with rheumatic diseases (and excited to learn more from @UCSF_CoDEx)!!
🙌 Congratulations to @Annatomiga of @ChildrensPhila! Dr. Costello is the winner of a CARRA-@ArthritisFdn Mentored Career Development Award for her research entitled “Defining and Characterizing Diagnostic Delay in Juvenile Idiopathic Arthritis.”🌟#kidsgetarthritistoo#pedsrheum
So grateful to @carrainc and @ArthritisFdn for this opportunity to study diagnostic delay in JIA and to start figuring out how to get kiddos with arthritis to diagnosis and treatment more quickly!
Another absolutely fabulous @ChildrensPhila#pedsrheum and @PennRheum Fellow Research Day capped off with an invigorating keynote by @MACattackLab.
So much impressive work being done by our fellows!
Are you in #meded#hpe & looking for qualitative research training? Specifically on reflexive thematic analysis and narrative analysis?
Yes?
Come join @dorenebalmer@AKonopasky, Emiko Blalock & I @ChildrensPhila on 4/15 for a full day workshop
Register: bit.ly/3TFaK7V
CARRA Early Investigators and Fellows:
Looking for a way to fit more focused academic writing time into your week? Sign up for a slot in a #carra Writing Accountability Group (WAG) here: redcap.link/3eeungi6
Groups of #pedsrheum writers will start meeting this spring!
Ahead of the@SLEuroSociety this week I was asked by a trainee to share 10 papers that will help junior clinicians when managing #SLE for the first time & thought I'd share the list here too
Please add your 'go to' papers that give an overview of managing the disease clinically
ALT Learn The More You Know GIF by @InvestInAccess
Agree, great job @DrDNAbel! She def pulled some punches. This is a big issue that #PBMs have fought to silence - ppl should be livid, esp in #RareDisease community.
Why do PBM exist? ...
Ever been curious about what "Immune Dysregulation" means?
Join the most interesting man in rheumatology, Ed Behrens, as he demystifies it in this great episode with @drkatielockwood
🦓#RareDiseaseDay is close to our heart because CARRA was founded by peds rheumatologists who realized that the only way to advance research in rare pediatric rheumatic diseases was to create a collaborative network and work together. 💙
#Showyourstripes@RareDiseases
Check out "The Future Looks Bright: Managing PsO and PsA in Youth" episode of the Psound Bytes Podcast, as #ClinicalFutures' Associate Director of Clinical Trials, Dr. Pamela Weiss, discusses the latest research surrounding #psoriaticdisease: apple.co/4bF1ybV