Health & social care researcher. Associate member of @ICPHR. Ex #PPI lead of @ARC_EoE #Cat owner #Leukaemia survivor #Cricket lover #Rejoiner #Progressive.
Joined May 2013
- Tweets 17,516
- Following 11,432
- Followers 10,502
- Likes 396,086
594 Photos and videos
Pinned Tweet
A quick #leukaemia-related post: I started my final cycle of maintenance treatment on Monday, with my last iv chemo infusion. So, it's just one more intrathecal to go, along with daily & weekly chemo pills π til mid November, followed by 5 years of regular check-ups #Cancer
11
1
66
18,616
'Involving patient partners as appraisers of shared decision-making: an explanatory sequential mixed-methods study'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
2
5
132
'Partnering with a diabetes patient advisory group across the research continuum'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
3
75
'Tensions in patient involvement & engagement in health research: a qualitative interview study with key actors'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
3
99
'Reducing tokenism in patient & public involvement by integrating the Gothenburg person-centered care framework, relational bridges & impact log'. New commentary in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
2
57
'Patient & public involvement & engagement in Long COVID research: embedding inclusion in research'. New commentary in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
3
81
'Patient & public involvement throughout tic disorder research projects: lessons learned'. New commentary in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
56
'What are the characteristics & impacts of a patient-led conference? A qualitative study.' New paper in BMJ Open
bmjopen.bmj.com/content/16/6β¦
2
62
'A global multilingual co-creation of aphasia priority topics through patient & public involvement'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
3
110
'Triangulating patient & public involvement in clinical research: a cross-cohort qualitative study'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
86
'What is the added value of patient & public involvement in lab-based research? Reflections from researcher & public contributor perspectives'. New commentary in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
1
3
130
'Accessibility considerations for the engagement of people with lived experience & caregivers in mental health & substance use research'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
1
95
'Democratising health & social care research through long-term public involvement & engagement: a qualitative process evaluation of a research network'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
104
'Reflections on sustaining a Children, Young People & Parent Advisory Group to support a longitudinal mixed-methods research study'. New commentary in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
1
136
'Proposed guidelines for contextualist collaborative thematic analyses with co-researchers'. New paper in International Journal of Qualitative Studies on Health & Well-being
tandfonline.com/doi/full/10.β¦ open access!!
1
87
'Diverse youth perspectives on getting involved in mental health research'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
4
105
'Piloting a methodology for online co-produced research'. New paper in BMC Research Involvement & Engagement
link.springer.com/article/10β¦ open access!!
2
99
'Frameworks to evaluate the quality of public involvement in health & social care research: a scoping review'. New paper in Health Expectations
onlinelibrary.wiley.com/doi/β¦ open access!!
2
2
164
US presidents don't resign after bad mid-term election results. Why on earth should British prime ministers resign after bad local election results? #localelection
3
4
28
783
Truth ππππ
Brexit will kill every prime minister who doesn't kill Brexit
1
6
462
