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50th birthday today. Good day off. Done loads. But - I made sure I went to see a Main man in John Mills to show him we made the local paper @rotherhamtiser about @MainMaltby’s awareness and fundraising for @lbsorg. maltbymainfc.co.uk/news/1002…

More connections at the International Lewy Body Dementia Conference #Amsterdam. Thank you to Rachel Thompson, Alison Killen and Allison Bentley - our Community of Practice. And Sylvia White and Maggie - who both have lived experience of Lewy Body Dementia. #ILBDC2025

Want to join our research group? If you are a carer for someone with #dementia or live with #dementia, and live in the North West of England, join our #Equadem network as 1 of 2 Public Advisor Researchers for 4 years! my.corehr.com/pls/ulivrecrui…

Our Lewy List is calling on the Government to recognise our four priorities: ➡️The right for all people living with dementia to be treated with dignity and respect ➡️The right to early and accurate diagnosis ➡️The right for Lewy body dementia to be recognised as a distinct form of dementia with unique symptoms and challenges, different from Alzheimer’s ➡️The right not to be denied care home admittance on account of a Lewy body dementia diagnosis Please do sign: change.org/p/sign-the-lewy-l… #Lewybodydementia #dementia

Lovely to see our colleague Dr Maria Cecilia Fernandez from @LewyBodyArg at the International Lewy Body Dementia Conference in Amsterdam today. We are exhibiting posters today on the 18 years of Lewy Body Society impact by our CEO Jacqui Cannon and our founder Ashley Bayston's Lewy Body International: A coalition of Lewy body voices and action. Come over and see us! #Lewybodydementia #ILBDC2025 #Amsterdam @lewybodyint

Prof Ian McKeith, LBD superstar legend and great friend to LBS, on the progress of knowledge in the field over the past 30 years. His Lifetime Achievement Award is well deserved. #ILBDC2025 #LewyBodyDementia #dementia

Prof Evelien Lemstra of VUMC opens the International Lewy Body Dementia Conference. #ILDMC2025 #lewybodydementia

Good morning from the International Lewy Body Dementia Conference 2025 in Amsterdam. Our founder Ashley Bayston and CEO Jacqui Cannon are raring to go. Great to see so many of our friends here. #ilbdc2025 #lewybodydementia #dementia

What do you know about Lewy Body Dementia? This #WorldLewyBodyDay find out more about a common - but under-discussed - disease youtube.com/watch?v=zKRGBKPK…

As the second World Lewy Body Day draws to a close for us in the UK, we are handing over to our sister organisations around the world. Thank you to everyone who has supported us and amplified our message. Together we will work to improve lives for people living with Lewy body dementia and their families. Please lend your support by signing, if you haven't already and if you have then share, our Lewy List petition to demand four basic rights: change.org/p/sign-the-lewy-l… #WorldLewyBodyDay #LewyList #Lewybodydementia #Dementia

Lewy body dementia consultant Admiral Nurse Rachel Thompson, funded by LBS, explains the key symptoms of #Lewybodydementia. They can be quite different from other dementias. Contact the Admiral Nurses on 0800 888 6678 or helpline@dementiauk.org #WorldLewyBodyDay #WLBD2025 #dementia youtube.com/watch?v=Nirn9X1i…

Today is National Lewy Body Dementia Day—and unlike many "National Days," this is not one anyone wants to celebrate. Lewy Body Dementia is a little-understood yet common form of dementia. It often affects younger people but can strike at any age. Tragically, its symptoms progress more rapidly than other forms of dementia, making it a particularly devastating diagnosis for those affected and their families. If you’ve encountered Lewy Body Dementia, you’ll know just how life-changing it can be. My father-in-law Jon, is currently suffering from LBD. It's been a difficult time for everyone. No more so than for Jon. Currently, there is no cure. However, there is hope. There is a community offering vital support, and at the forefront is @lbsorg. Last week, the Society delivered a petition to Parliament urging the government to provide greater support for families navigating this incredibly challenging journey. Based on my own experience, I can’t stress enough the importance of early diagnosis and equipping yourself with as much information as possible. A book that particularly helped me understand the illness better was 'Living With Lewy Body Dementia' (linked below), and I highly recommend it for anyone seeking understanding and practical advice. Supporting the charity was one of three reasons behind my December 2025 ocean rowing challenge: 3,000 miles across the Atlantic in an attempt raise £100,000 for The Lewy Body Society. It’s a tough journey, but one that pales in comparison to the daily battles faced by those living with this condition and their loved ones. We’ve made a start, but there’s still a way to go. If you’d like to support this cause, you can find my GiveStar link in the comments. Finally, if you or someone you know is struggling, please know that help is available. Reach out to The Lewy Body Society—they’re there to guide you and offer the support you need. Together, let’s raise awareness, offer hope, and make a difference.