Supporting nurses and dietitians working with Neuroendocrine tumours throughout Europe. This account can not answer individual medical enquires.
Joined November 2019
- Tweets 274
- Following 80
- Followers 200
- Likes 260
10 Photos and videos
26 Apr 2023
Happy CNS day to all our NET clinical nurse Specialists! You all do an incredibly amazing job #NationalCancerCNSDay @UKONSmember @ncukcharity
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28 Feb 2023
4 weeks until the 20th Annual ENETS conference starts! Hybrid conference taking place in Vienna 22-24 March. Still time to register and join in with the nurses symposium! Register via ENETs website.
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ENETS N&D Group retweeted
27 Feb 2023
100% of attendees who completed last year's "Living with NETs" program found the program to be either 'extremely valuable' or 'very valuable'.
Registrations are now open
Register today: ow.ly/W9kI50MXLnB
#LetsTalkAboutNETs #NeuroendorineCancer #NeuroendocrineTumours
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ENETS N&D Group retweeted
30 Jan 2023
Lactose intolerance – the NET Effect - Read more on Ronny Allan - Living with #NeuroendocrineCancer buff.ly/3IMTppJ
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ENETS N&D Group retweeted
30 Jan 2023
#Pheo and #para most commonly affect people between the ages of 20 - 50. A lot of patients struggle with misdiagnosis for a long time.
Download our brand new #NETInfo on genetic and sporadic #pheo #para in your language: bit.ly/3XHHrlt #LetsTalkAboutNETs #EndoTwitter
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ENETS N&D Group retweeted
29 Jan 2023
This Saturday is #WorldCancerDay. All cancer patients should have the right to be seen, heard, supported with access to the best level of care, irrespective of which body part their disease appears. Equity of funding and focus across all cancers is needed to #CloseTheCareGap
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ENETS N&D Group retweeted
30 Jan 2023
#WorldCancerDay2023 is coming up on 4th Feb. For around 7 years now, I've had a #WCD event site here at this link (click GOING to see the feed) #NeuroendocrineCancer facebook.com/events/14566238…
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ENETS N&D Group retweeted
29 Jan 2023
Pancreatic and small intestinal NETs are among the most common ones. We can help #gastroenterologists to be more aware and suspect the disease. Download #NETInfo with a snapshot of symptoms, tests & treatments in 10 languages: incalliance.org/net-info-pac… #LetsTalkAboutNETs #GITwitter
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ENETS N&D Group retweeted
14 Jan 2023
Neuroendocrine cancer is still frequently misdiagnosed for more than 1 year. #GeneralPractitioners are the first who can suspect it. ✅Download #NETInfo on many types of NETs in your language: incalliance.org/net-info-pac… #LetsTalkAboutNETs #MedTwitter #MedEd #GITwitter #EndoTwitter
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10 Jan 2023
Exciting meeting tonight of the ENETs nurse and dietitian group as arrangements are finalised for our symposium 24/3/23 @ncukcharity @UKINETS @netfdn @NeuroEndoTalk @EndoOncology
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10 Jan 2023
ENETs annual conference 22nd-24th March Vienna with a short nurses symposium between 9.00 - 10.00am on Friday 24th. Join us! Or catch up via the ENETs website after the conference @UKINETS @NeuroEndoTalk @netfdn @ncukcharity
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ENETS N&D Group retweeted
9 Jan 2023
Pheochromocytoma and paraganglioma are rare slow-growing NETs arising from adrenal medulla and sympathetic or parasympathetic paraganglia. Up to 40% are the result of an inherited genetic mutation. ✅Download #NETInfo in your language: bit.ly/3UNm3cI #LetsTalkAboutNETs
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ENETS N&D Group retweeted
Neuroendocrine Cancer is now the 10th most prevalent cancer in England, after colorectal cancer - please vote! @ncukcharity
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ENETS N&D Group retweeted
9 Jan 2023
⚠️If you have #NeuroendocrineCancer and are at risk of #CarcinoidCrisis you can download our medical alert card here: neuroendocrine.org.au/wp-con…
🔗Download the Carcinoid Crisis factsheet for NET Patients and Health Care Professionals:
neuroendocrine.org.au/wp-con…
#LetsTalkAboutNETs
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5 Dec 2022
Dr Dina Pitsilludes (Sheffield UK) presents a clear and informative talk to UKINets on “Palliative and supportive care needs in patients with NENs.” @UKINETS @netfdn @ncukcharity @UKONSmember @EndoOncology
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5 Dec 2022
Very informative talk by Prof Rajesh Thaler (Oxford UK) on ‘Management of pancreatic NETs in patients with genetic syndromes’ as UKINETs annual conference starts @UKONSmember @ncukcharity @UKINETS @netfdn
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4 Dec 2022
Looking forward AAA UKI NETS Satellite Symposium, on ‘Improving Patient Outcomes by Optimising Referring Pathways’ later this afternoon. @UKINETS @UKONSmember @ncukcharity @netfdn
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ENETS N&D Group retweeted
23 Nov 2022
Our #NationalActionPlan is a strategy for better NETs education, treatment & support. Contact your local Member of Parliament and tell them why you believe they need to do more for NETs patients. 👉🏾We’ve created some templates to help get you started ow.ly/AjVY50LKpMb
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ENETS N&D Group retweeted
21 Nov 2022
Proper nutrition has a significant impact on the well-being of neuroendocrine cancer patients. Watch @netitalyonlus video with guidelines on balanced diet: ➡️incalliance.org/importance-o… #LetsTalkAboutNETs #tumorineuroendocrini
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