Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
Joined March 2021
- Tweets 2,889
- Following 453
- Followers 473
- Likes 2,822
Photos and videos
We are celebrating our incredible fundraisers this week.
Shout out today to Clare and the Bookham village ball organisers who raised over £600.
Amazing job all round and thankyou for the generous donations to the auction.
#endNF2 #NF2Schwannomatosis #schwannomatosis
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We are celebrating our incredible fundraisers this week.
Shout out today to Laura who ran the AJ Bell Manchester 10K raising funds for NF2 research in honour of her family who live with NF2
Amazing job Laura, thankyou so much for your support
#endNF2 #NF2awareness #NF2
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We are delighted to let you know that our charity trustee and NF2-SWN expert Prof. Gareth Evans has received an MBE in the King’s birthday honour list.
He established the UK highly specialised service for NF2-SWN. An incredible lifetime contribution
This is absolutely deserved
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Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness
#endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN
#NF2support
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Our message is simple. Amplifying our mission to:
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.
Donate here:
peoplesfundraising.com/donat…
or (USA/Canada/Europe)
curenf2.org/donate/
Fixing the Gene, change lives
#endNF2 #NF2awareness #NF2Schwannomatosis #nf2
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Congratulations to our PhD researcher Reygn & the team on his first publication - which you can dive into here....
T-cell-targeted immunotherapy in neurofibromatosis type 2-related vestibular schwannoma: current evidence and future direction
pubmed.ncbi.nlm.nih.gov/4227…
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We are celebrating our incredible fundraisers this week.
Shout out today to Jo who organised an Axe throwing event raising funds for NF2 research. Fellow NF2ers Ryan, Helen, Jade and Sally rose to the challenge as well.
Amazing job Jo, thankyou so much for your support
#endNF2
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Celebrating our incredible fundraisers this week.
Shout out today to Megan who tackled the Nine Edges challenge with Oscars Pediatric Brain Tumour Charity raising funds for NF2 research in honour of Immie who lives with NF2
Amazing job Megan, thankyou so much for your support
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We are celebrating our incredible fundraisers this week.
Shout out today to Mitchell who ran the Rob Burrows Leeds Marathon on 10th May 2026 raising funds for NF2 research in honour of his family who live with NF2
Amazing job Mitchell, thankyou so much for your support
#endNF2
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Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: 25th June 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/S7Yw1thhnhwJShmPA
Guest speaker - Judy Dyer - Pilates instructor
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Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness
#endNF2 #NF2awareness #NF2schwannomatosis #NF2SWN
#NF2support #nf2
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There really is no better time to support our charity
Research is key to developing new treatments and to finding a cure for those affected by NF2. With your help we can fund vital research and change lives
Donate via our website:
curenf2.org/uk-europe/
#endNF2 #NF2awareness
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Cure NF2 Foundation UK & Europe ambassador and volunteer Michael Archer has gained national attention and awareness for NF2 related schwannomatasis as he spoke to The Mirror newspaper to share his NF2 journey
Read Michael's story here:
mirror.co.uk/news/health/i-p…
#endNF2 #NF2
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Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness.
Donate here:
peoplesfundraising.com/donat…
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Living with NF2 brings unique challenges, but new strategies can help. Discover how psychological approaches and neuroscience-based tools empower individuals to manage stress and find meaning.
Watch the recording of our latest webinar here: buff.ly/Z4w9izb
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Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: 25th June 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/S7Yw1thhnhwJShmPA
Guest speaker - Judy Dyer - Pilates instructor
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Fancy getting your hands on one of our brand new Tshirts?
You can order from our shop here
peoplesfundraising.com/shop/…
£16 including 2nd class standard postage
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
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Comprehensive characterization of spinal ependymomas in NF2-Schwannomatosis pubmed.ncbi.nlm.nih.gov/4221…
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We are celebrating Volunteers week from Monday 1 to Sunday 7 June 2026.
We want to thank all our volunteers for their tireless commitment to our charity and to raising awareness of NF2-SWN, commitment to the NF2 community, connection, sharing stories to overcome the isolation.
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