1st came Endo What?...then premiered Below The Belt, now we continue to mobilize for change as PROJECT ENDO.
Joined May 2014
- Tweets 3,871
- Following 955
- Followers 6,066
- Likes 3,485
822 Photos and videos
Jun 12
To everyone budgeting their energy just to experience one good day: we see you. 💛 😅 💛
Repost from @flareups_and-floofs
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Jun 11
More often than not, chronic illness forces us to reflect on the life we could have had, while simultaneously trying to grieve, adapt to, and survive the one we were given.
Thank you for sharing @becomingsomething_else
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Jun 10
Edyta Just, author of "The Space of In-Between: Illness, Medicine, and Horror" (2025), employs autoethnography and horror to explore what it means to inhabit a body that no longer feels trustworthy, predictable, or fully one's own.
Full article here- scirp.org/journal/paperinfor…
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Jun 9
When Below the Belt began screening internationally, Laura was one of the first people to host an event. Her passion is contagious, and seeing her mother and sister run a 20K in support of her after everything she has overcome absolutely warms our hearts. 💛
@endowithlau
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Jun 8
Researchers are beginning to explore whether endometriosis is better understood as a group of distinct disease subtypes, which may help explain why symptoms, progression, and treatment response can vary so dramatically from one patient to another.
@gabymoawad & @theendo.co
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Jun 5
2012 researchers really looked at endo patients and thought, “this is devastating… anyway, let's rate their looks.” 🫠
Send help. We are not okay.
Repost from @allirose819
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Jun 3
Researchers at Yale and collaborating institutions have published the largest genetic study of endometriosis to date, identifying 80 genomic regions associated with disease risk, including 37 new discoveries.
Full article here-medicalxpress.com/news/2026-…
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Jun 2
A decade of missed moments.
A decade of being told to wait, manage it, push through, or try another pill.
A decade where pain keeps moving forward while answers stand still.
The time for change is now. #thinkendo
Repost from @lilythompstone
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Jun 1
“The Invisible Hell. Endometriosis: The Loneliness of a Pain With No Name” by Marcello Ceccaroni brings that reality into the open.
Available in bookstores June 5, 2026. Pre-order online: amzn.eu/d/0jaZtSDl
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May 29
Girls learn early that pain is something to work around instead of something that deserves attention. By the time many realize something is wrong, they’ve already spent years hiding it, minimizing it, and performing wellness for everyone around them.
repost @theendogirlsclub
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May 28
Me: “I’m okay!”
Meanwhile my body has a 47 point presentation, three specialist updates, and at least one new symptom to report. 😅
Repost from @bloombeyonddiagnosis
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May 27
Rutgers University is seeking individuals with endometriosis to participate in an IRB-approved research study. If you would like more information or have questions, please contact the study coordinator, Dr. Allyson Bontempo, at: allyson.bontempo@rutgers.edu.
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May 26
When endometriosis tries to break us down, we rise stronger, fiercer, and more resilient than anyone realizes. Warriors in every sense of the word. 💛
Thank you for this inspiration @endowithlau
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May 25
The shift to P.M.O.S. (polyendocrine metabolic ovarian syndrome) is more than a name change. It’s an acknowledgment that this condition impacts the entire body and patients deserve a diagnosis that reflects what they’re experiencing.
Full article here- tinyurl.com/2bwaw57s
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May 22
For 17 years, Monica Thomas was accused of faking her pain. Today, she’s finally been diagnosed with thoracic endometriosis.
This is what medical misogyny looks like IRL. Delayed care, delayed treatment, and years taken from people who knew something was wrong all along.
@gmb
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May 20
Could it be endometriosis?
In this clip, Dr. Iris Orbuch breaks down some of the most common symptoms she sees every day in endometriosis patients. 💛
Repost from @eggwhisperer
#thinkendo #listentous
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May 19
Father-daughter rivalry, but make it endometriosis trivia. 😍
Who knows more? Who folds under pressure? And who’s about to get fact checked at the family dinner table? 👀
Thanks so much for sharing! @drliu_endometriosis_surgeon
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May 18
Making its international debut at this year's Edinburgh Festival Fringe is the award-winning musical - Endometriosis: The Musical!
Venue: Gilded Balloon Patter House, Downstairs Dates: 5–31 Aug 2026 (not 17, 24)
Tickets: £10 - £13.50
Website: endomusical.com
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May 15
There is something incredibly powerful about choosing to be seen in moments we’re often taught to hide. Sharing those vulnerable realities can be uncomfortable, but it's within this discomfort that we find connection and support. 💛
Thank you for sharing @growwithendo
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May 14
Living with endometriosis sometimes feels like being personally selected for a very specific and deeply unnecessary character-building experience.
Repost from @endometriosisandyap
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