Project FAVA: nonprofit working to drive medical research to treat the painful fibro adipose vascular anomaly, a rare disease connected to the PIK3CA mutation.
Joined July 2019
- Tweets 9
- Following 27
- Followers 76
- Likes 2
2 Photos and videos
Project FAVA retweeted
7 Apr 2022
Fantastic news today for patients with PIK3CA related disorders (PROS)! Alpelisib obtained FDA approval. This is for us a fantastic achievement. We started in 2016, identified alpelisib (BYL719) has a promising compound and developed a mouse model. 1/n
fda.gov/drugs/resources-info…
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28 Feb 2022
What do you know about FAVA? Click to find out what you should know from the real experts: those suffering from it.
#RareDisease #RareDiseaseDay @rarediseaseday @rarediseasesint @RareDiseases @GlobalGenes
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25 Feb 2022
proserarediseaseday.kudoboar… #RareDiseaseDay love for those living with FAVA and other PROS conditions
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Project FAVA retweeted
27 Nov 2021
Sirolimus Leads to Rapid Improvement in Fibroadipose Vascular Anomalies @ISSVA_org #FAVA
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Project FAVA retweeted
NORD is proud to announce the launch of the COVID-19 Critical Relief Program for #raredisease community impacted by #COVID19. The program supports patients & families facing financial challenges & helps with essential non-medical expenses. Read more: rarediseases.org/nord-launch…
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14 Jul 2019
We believe in a #PainFree future for all people living with FAVA. Do you? projectfava.org
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