Supporting patients and their families with Primary Sclerosing Cholangitis.#PSC is a rare, chronic autoimmune disease of the liver, specifically the bile ducts.
Joined July 2018
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19 Photos and videos
Pinned Tweet
23 Jul 2018
Primary Sclerosing Cholangitis (PSC) is an autoimmune Liver disease with no cure.
It causes the destruction of bile ducts resulting in cirrhosis. Its progression is different for each individual patient but most end up needing a liver transplant or risk an early death.
#PSC
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27 Jul 2019
Australian’s touched by PSC know how life changing Organ Donation can be. We encourage everyone to make their wishes known to their loved ones & register their decision donatelife.gov.au/register-d…
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10 May 2019
️BONUS OFFER! When you buy an @AUEntertain Membership from us, not only will you be supporting PSC Support Australia
but you will also receive a bonus $10 Woolworths WISH eGift Card!
Hurry, offer ends 11:59 May 12 AEST. Get yours today: entertainmentbook.com.au/ord…
1 May 2019
Give mum the VIP treatment with Entertainment! Packed with thousands of valuable offers across dining, retail, attractions and travel, an Entertainment Membership is the gift she can enjoy all year round.
entertainmentbook.com.au/ord…
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31 Mar 2019
Head over to our Facebook Page & check out our awesome competition; facebook.com/200282723991860…
#CompetitionTime #freebie #win #bargain
PSC Support Australia retweeted
15 Feb 2019
Get involved in the #ShowYourRare campaign for Rare Disease Day 2019! Are you feeling up to a challenge? Try painting the Rare Disease Day logo! Check out the other ways to Show Your Rare for #RareDiseaseDay rarediseaseday.org/article/s…
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7 Feb 2019
We hope every Transplant Hospital in Australia takes note how beneficial Telehealth can be for people with chronic illness.
- less travel time
- less cost
- less time off work
- greater accessibility
- patient centred
Yes please!
@GregHuntMP
EARLY BIRD rates for the Australian Telehealth Conference close this Friday 8 Feb - hurry to register! Discounts for healthcare group bookings. bit.ly/2Dk8rQC #ATC2019 Brisbane 3-4 April
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23 Jan 2019
We hope tonight’s screening of @dyingtolivedoco on @SBS inspires discussion in your household on the important and beautiful gift that is #organdonation #donatelife
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22 Jan 2019
Truely amazing 2018 Organ Donation rates here is Australia. Still so much work to be done to support recipients and donor families. #donatelife #makeitcount
22 Jan 2019
A record number of Australians are saving lives by saying ‘Yes’ to organ donation!
Register: donatelife.gov.au
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13 Jan 2019
Research is so important 🙌🏻
12 Jan 2019
#PSC is a difficult disease to treat - this phase 2 study looked at #simtuzumab for 96 weeks but unfortunately didn’t find any improvement in #fibrosis, progression to #cirrhosis or clinical events aasldpubs.onlinelibrary.wile…
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24 Dec 2018
Merry Christmas PSCers & Carers. Have a wonderful day with those closest to you & make beautiful memories.
🎅🏻🤶🏻🎄
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13 Dec 2018
Wonderful news out of @Austin_Health in Melbourne. Only possible because of the beautiful gift of organ donation. 🎁
Congratulations to the LTU Team! 👩🏻⚕️👨🏻⚕️🏥
@DonateLifeToday #havethechat #PSC
13 Dec 2018
A leading Melbourne hospital is quietly celebrating a remarkable medical milestone - a record 100 liver transplants this year. @EmilyRice28 #9News
19 Nov 2018
🧔🏻👱🏻♂️👴🏼👦🏻👨🏻👨🏻🦰👳🏾♂️🕵🏻♂️👮🏻♂️👨🏻🚀
Today is International Men‘s Day.
We’re sending a big shout out to all males affected by PSC 🙋🏼♂️
We see you 💚
#InternationalMensDay #psc #pscaware
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17 Nov 2018
Today is @DonateLifeToday Thank You day. A chance for Aussie organ and tissue recipients to collectively reflect on the amazing gift of life they have received, to share their own experience and discuss how donation can transform and save lives
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17 Nov 2018
So to the beautiful souls who have enriched so many lives and the gracious donor families, who in their time of heartbreak saw the hope organ donation can provide to others, we say THANK YOU ❤
#thankyouday #makeitcount #endthewait #PSC #PSCaware @DonateLifeToday
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16 Nov 2018
Mr Hunt! Australians with Primary Sclerosising Cholangitis are counting on you to help researchers work towards a cure! #PSC #PSCaware
15 Nov 2018
I’m proud to announce that the Government is taking more action to support people battling rare conditions by developing Australia’s first National Rare Diseases Framework and Action Plan.
bit.ly/2FpVCIE
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10 Nov 2018
We see you Lindsay. We’re all hoping for an effective treatment for #PSC one day soon!
youtube.com/watch?v=wQQ2FkR9…
Via @GileadSciences
Lindsey’s Story - Living with PSC
Lindsey's Primary Sclerosing Cholangitis (PSC) Journey
youtube.com
30 Oct 2018
Such an important issue for every Australian to discuss with their family.
@DonateLifeToday #makeitcount
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