Developing a data quality and utility label for the European Health Data Space (#EHDS) | Horizon Europe-Funded project

Joined February 2024
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🦋 We have moved from X to @bluesky — follow us there for all news, events, and updates! bsky.app/profile/quantumproj…
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🏷️#Healthdata labelling supports faster research, better care, & stronger trust in #publichealth policy. Hear real patient stories on how it makes a difference. 📅 6 May | 14:00–15:00 CET 📝 Register: sciensano.webex.com/weblink/… #PatientVoices #EHDS #DataQuality
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#QUANTUM : vers un #label européen de qualité des données de santé ! 🚀 Grâce au financement du programme #EU4Health, le projet @quantumCSA livre ses premiers travaux pour la création d’un label de qualité et d’utilité des données de #santé🔎 📖 Découvrez les deux premiers rapports, rédigés par le @HealthDataHub et la Gesundheit Österreich GmbH (GÖG), sur les spécifications techniques du label, la qualité et la maturité des #données : health-data-hub.fr/actualite…
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🇮🇹 QUANTUM event in Rome gathering project's partners, key stakeholders and experts to discuss on how to build a High-Quality Health Data Ecosystem was officially opened by @FideliaCascini (@Unicatt); Serena Battilomo (Italian Ministry of Health) and @jdebarros28 (@EU_Commission)
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Interesting panel discussion on the value of #dataquality labels in #healthdata systems at QUANTUM event, with: Ignacio Blanquer (EOSC), Peija Haaramo (@FindataFi), Riccardo Bellazzi (@unipv), and Ana Cochino (@EMA_News). The panel was moderated by Petra Hoogendoorn (@Label2E)!
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🇮🇹2nd panel led by Monica Jones (@HDR_UK), discussing on the future of #DataQuality in the #EHDS, with @FideliaCascini; Truls Korsgaard; Pamela Dobay (@EFPIA); @giambric (@eurims); @juanarenasmarqz (@ELIXIREurope); Claudio Saccavini (@IHE_Catalyst), Giuseppe D’Avenio (@istsupsan)
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🇮🇹 Another intense day in Rome for the QUANTUM General Assembly, presenting and reflecting on our latest outcomes on developing the health #DataQuality label for the European Health Data Space (#EHDS). Big thanks to all project partners for their commitment! 👏
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This morning’s General Assembly brought together partners to review progress, align on next steps & share expert insights. We’re keeping momentum strong for improved #healthata quality! A special thank to the QUANTUM Advisory Board for their insightful feedback and suggestions.
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🇮🇹 QUANTUM family reunited in Rome for 3 days with projects partners and stakeholders, to highlight our latest outcomes and next steps towards the development of a robust labelling system for #dataquality within the European Health Data Space. #EHDS 👉 quantumproject.eu
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QUANTUM at #HealthDataSummit2025! 💬 Enrique Bernal-Delgado (@iacs_aragon) highlighted our work on a #dataquality & utility label for #EHDS. 🛠️ Hands-on workshop by Claudio Proietti Mercuri & Yaëlle Assous on our pilot tool to assess data quality, utility & data holders' maturity
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👥 2 great speakers on the agenda: 🔹 @FideliaCascini (@Unicatt) will give an overview of the #EHDS legislation and of the distinction between primary/secondary use of #healthdata; 🔹 Beatriz Barros (@sciensano) will analyse and reflect on the data categories covered by the EHDS.
😊 Join us for the first session of the QUANTUM Patients & Citizens Forum online series! 📅 March 25, 2025 🕑 14:00–15:00 CET 💬 Session 1: What kind of #healthdata do we have? 🔗 Interested? Register now! quantumproject.eu/event/quan… #PatientEngagement #EHDS #DataQuality
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📭 Missed the latest QUANTUM newsletter? 📰 Catch up here: quantumproject.eu/the-3rd-qu… ✅ And make sure you don’t miss the next one — subscribe here! preview.mailerlite.io/previe…
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😊 Join us for the first session of the QUANTUM Patients & Citizens Forum online series! 📅 March 25, 2025 🕑 14:00–15:00 CET 💬 Session 1: What kind of #healthdata do we have? 🔗 Interested? Register now! quantumproject.eu/event/quan… #PatientEngagement #EHDS #DataQuality
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Our coordinator, Enrique Bernal Delgado was presenting the first outcomes of QUANTUM today at the General Assembly of the #EHDS Community of Practice for secondary use, taking place in Malta. 🔎 Discover the QUANTUM outcomes, now accessible online! quantumproject.eu/deliverabl…
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🙋‍♂️ Meet us at the #HealthDataSummit in Brussels! The event is organised by our partner @iHD_HealthDat with a strong focus on #healthdata quality. 📌 The event includes a keynote from our coordinator Enrique Bernal Delgado, as well as a QUANTUM workshop! ℹ️ i-hd.eu/hds2025
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📹 Watch the recording of the first meeting of the QUANTUM Consortium’s “Data Label Supporters” patients and citizen community. 💡 QUANTUM aims to enhance the quality and trustworthiness of health data in Europe by developing a ‘Data Quality Label’. youtu.be/fLC07QDKKQs?feature…
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The objectives of this first meeting were to: 🔹Start getting in touch with a patients and citizen community, open to anyone interested in improving #healthdata quality, and to know more about QUANTUM. 🔹Meet the team behind QUANTUM and connect with like-minded stakeholders.
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✨New year, stronger #healthdata! Let’s continue driving health and research innovation across Europe! 🎉Wishing everyone a happy and impactful 2025! 🎯 This year, we’ll publish the first project results, which will also be showcased at several events. Stay tuned!
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🔬 #Healthdata isn’t just numbers—it’s knowledge to be unlocked. When reused for #research, high-quality data powers impactful discoveries and better care for all! 🗓️ Join our event tomorrow to explore the future of #dataquality in the #EHDS! 👉 quantumproject.eu/event/join…
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💡 Reusing #healthdata for #research drives medical breakthroughs: better treatments, diagnostics, and disease prevention. 🩺 High-quality data can transforms patient care! 🗓️ Join the QUANTUM patient & citizen community event on Dec 10 to learn more! 👉 quantumproject.eu/event/join…
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