Facilitator, democracy & innovation @InvolveUK @Sciencewise @Nuffbioethics @WWF_UK Learning to live with #MS everephemeral.net @sburall@mastodon.social
Joined July 2009
- Tweets 34,524
- Following 2,907
- Followers 4,766
- Likes 5,785
1,101 Photos and videos
Pinned Tweet
16 Oct 2023
1 year ago, I left for Mastodon; a low cost decision because I was ill and not posting. I'm coming back slowly now.
My network is largely still here, I need to keep contact. So I'll post on Mastodon first and here three days later. The sooner we can stop enabling Musk the better
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Simon Burall retweeted
12 Apr 2024
Checkout @BylineTimes . Their Editor @Hardeep_Matharu grwat speaker @unisouthampton today chaired by @JYDenham
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Simon Burall retweeted
27 Feb 2024
Send me the reference or a link for my newsletter? inhealthassociates.co.uk/pat…
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Simon Burall retweeted
27 Feb 2024
23 years since the Kennedy Inquiry that said engagement must be embedded in the NHS.
Yet still patients have no real say in policy or influence across systems or commissioning or within providers.
We are still in the dark ages when it comes to patient power.
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Simon Burall retweeted
27 Feb 2024
Perhaps an argument is re digital creating silos that limit ‘true visibility’ of whole patient. Digital essential but not at the expense of yes/no decision trees that limit real visibility. Things get missed. Resources wasted. Time taken allows patient deteriorate. Worse outcomes
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Simon Burall retweeted
19 Feb 2024
Really exciting set of masterclasses being coordinated by @_rmhart on public engagement, facilitation skills and equitable engagement
16 Feb 2024
📝Sign up for the first series of our new online training masterclasses, running in February and March 2024!
🧵👇
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14 Feb 2024
Advice:If you’re going to use awhtsap broadcast to update friends about health developments Ina stark way; remember yourchildren are in th group
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13 Feb 2024
Eltofo in episode2 of disenchanted series6-captures where where I am”it’s not The-loss of the my past memories” I’m mourning but the future I won’t see Dakota cartoon got there before me
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13 Feb 2024
1/It’s been a while since the last update, apologies. We’ve had some bad news to absorb; though I’m recovering slowly from the stroke, the oncologists think the #cancer isn’t treatable
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13 Feb 2024
2/ So we’re having end of life conversations. I’m not ready to give up, and we are seeking further advice, but don’t seem to be any proven treatments.
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Simon Burall retweeted
4 Feb 2024
#WorldCancerDay2024
Close the Cancer Gap
Together we challenge those in Power
Equal care for all
Equal funding and research for all
Rare cancers need more
Stage 4 needs more
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Simon Burall retweeted
19 Jan 2024
Wandered along to the buffet car early evening and was struck, as I always am, but just how convivial this method of travelling is 😊
People stood up chatting, having a drink, enjoying themselves. You just can’t do this on a plane in the same way! 🍷
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16 Jan 2024
The view post the largely sucesful tumour debunking surgery I’d good but doesn’t make up for th post op stroke
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11 Jan 2024
I posted this about a @demparadox episode on Mastodon. It's a great episode and worth a listen buff.ly/47sMlak
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Simon Burall retweeted
8 Jan 2024
Chief AI scientist at Meta basically like: "Here, let me set fire to your home, fire fighters and the insurance company will surely help later, it's not really my problem, I just do the fire part."
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Simon Burall retweeted
8 Jan 2024
We need council committees to be open and transparent by default. How might decisions be different if they were made in full view of the public?
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8 Jan 2024
I posted about the latest leg of my #cancer journey on Mastodon last week. Follow me there for up-to-date news! buff.ly/3NOReDY
"A short post on the next leg of my #Cancer journey, there's some clarity and I'm feeling more positive. buff.ly/41McdNk "
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Simon Burall retweeted
7 Jan 2024
There’s a timeline of Computer Weekly coverage here, going back almost 15 years: computerweekly.com/news/2525…
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