Supporting the Scleroderma Community in Victoria
Joined November 2015
- Tweets 1,364
- Following 156
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947 Photos and videos
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JOIN US for our June #VirtualEducationSession with guest speaker Dr Charmaine Jones!
WHEN: Saturday, 13 June at 10:30 AM AEST
WHERE: Online via Google Meet
COST: It's FREE!
TOPIC: Scleroderma: My Pain Assessment Communication
Register here: eventbrite.com.au/e/ves-scle…
#Scleroderma
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June is #SclerodermaAwarenessMonth! As winter begins, many of the 6,000 Australians living with scleroderma face worsening symptoms like Raynaud’s, joint stiffness & breathing challenges.
This month, let’s raise awareness, share stories & support the community.
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Winter is here, and so is #SnuggleUpForScleroderma 💛❄️
This June, host a cosy fundraiser and help support specialist scleroderma nurses.
🛌 PJ Day
🎬 Movie Night
🧣 Afternoon Tea
👕 Comfy Clothes Day
🌻 World Scleroderma Day | 29 June
➡️sclerodermaaustralia.org.au/…
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Living with scleroderma can feel uncertain, but knowledge helps empower. At our April Virtual Education Session, Dr Laura Hummers shared insights into monitoring scleroderma progression, assessing risks, and the importance of early detection and screening.
sclerodermavictoria.com.au/s…
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JOIN US this May for our #VirtualEducationSession with guest speaker Fay Calderone, a leading employment lawyer & author.
WHEN: Saturday, 09 May | 10:30AM AEST
WHERE: Online via Google Meet
TOPIC: Psychosocial Safety & the Modern Workplace
Register here: eventbrite.com.au/e/ves-psyc…
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Living with Scleroderma can feel overwhelming - but movement doesn’t have to be.
In our March Virtual Education Session, Dr Stephanie Frade shared safe, gentle tips to help people with #scleroderma move with confidence.
Check out the full blog post here:
sclerodermavictoria.com.au/d…
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Living with #scleroderma can feel overwhelming - but you don’t have to do it alone.
At our Feb Virtual Education Session, Dr Claire Adams (SPIN) shared practical tips to help you work with your healthcare team:
Read the full blog post here: sclerodermavictoria.com.au/w…
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Meet Mabel Fowler, a young artist turning her experience with #scleroderma into powerful storytelling through art.
She’ll join the Shine Bright Gala panel as we launch Scleroderma Victoria’s Youth Program.
Watch her inspiring story here:
youtube.com/watch?v=vwukQZv8…
#ArtWithPurpose
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📅 Mark your calendars!
JOIN US this April for our #VirtualEducationSession with guest speaker Dr Laura Hummers!
WHEN: Saturday, 11 April at 10:30 AM AEST
WHERE: Online via Google Meet
TOPIC: Scleroderma: Disease Progression
Register today!
eventbrite.com.au/e/ves-scle…
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Today is National Sunflower Day 🌻
150 landmarks are lighting up yellow to raise awareness for scleroderma ✨
Wear yellow, snap a photo, and help spread the word 📸
Donate today to help fund scleroderma specialist nurses:
sclerodermaaustralia.com.au/…
#SunflowerDay2026
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Victoria is going gold✨
22 landmarks across the state will light up for #NationalSunflowerDay - raising awareness for scleroderma.
Each glow represents hope and support.💛
See which landmarks are shining:
sclerodermaaustralia.com.au/…
#SunflowerDay2026 #VictoriaLandmarks
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Scleroderma Victoria retweeted
Meet our new Scleroderma Australia ambassador 🌻
Desiree Miller is shining a light on scleroderma - a rare autoimmune condition with no cure.
🌻 This March 23, support #NationalSunflowerDay: wear yellow, share a post, or donate.
Every action helps make scleroderma visible.
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Mark your calendars! ✨
Join us for the Scleroderma Victoria's #ShineBrightGala2026 supporting young people living with scleroderma.
📅 2 May 2026
📍 San Remo Ballroom, Carlton North VIC
🎟️Early Bird tickets open until 15 March.
events.humanitix.com/shine-b…
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JOIN US for our March #VirtualEducationSession with guest speaker Dr Stephanie Frade!
WHEN: Saturday, 14 March at 10:30 AM AEDT
WHERE: Online | Google Meet
TOPIC: Exercise and #Scleroderma: Practical Strategies for Moving Safely and Confidently
eventbrite.com/e/ves-exercis…
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You’re not alone. Join our March Scleroderma Victoria #SupportGroup meetings. Whether you’re newly diagnosed, a carer, or part of the community, you’ll find connection and understanding here.
New attendees are always welcome!
sclerodermavictoria.com.au/e…
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Did you know Raynaud’s phenomenon is often the earliest sign of scleroderma? It affects around 90% of people with the condition.
With it being #RaynaudsAwarenessMonth, now’s the perfect time to learn the signs. Early diagnosis and treatment can lead to better outcomes.
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🌻 Ever wondered why we celebrate National Sunflower Day?
Grab the Sunflower Day fact sheet to find out why Australia is turning yellow, the story behind Sunflower Day, and how you can get involved to make a real difference!
👉drive.google.com/drive/folde…
#SunflowerDay2026
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On 23 March, we’re lighting up Australia yellow for Scleroderma Australia's Sunflower Day! 🌻
Wear yellow, spread the word, and help fund vital scleroderma nurses. Every donation makes a difference 💛
Donate today: sclerodermaaustralia.com.au/…
#SunflowerDay2026
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JOIN US for our first #VirtualEducationSession of 2026 with guest speaker Dr Claire Adams!
WHEN: Saturday, 14 February at 10:30 AM AEDT
WHERE: Online | Google Meet
TOPIC: Working with Your Doctor to Optimise Your Health and Well-Being
eventbrite.com.au/e/ves-work…
#Scleroderma
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There’s no cure for #scleroderma and the cause is still unknown – that’s why your support matters.
Early diagnosis can save lives, and every donation helps fund vital research, better treatments and hope.
Together, we can make a difference. Donate today!
sclerodermavictoria.com.au/j…
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