Bereaved Father to Jessie, Husband. Strategy Director @Sport_England. Trustee at @WFCTrust. Hate cancer. All views my own.
Joined July 2012
- Tweets 532
- Following 911
- Followers 499
- Likes 2,612
49 Photos and videos
Pinned Tweet
19 Oct 2019
Our beautiful princess has passed away after her short battle with cancer. We are devastated and our lives shattered. She lived as long and strong as she did, due to her unbelievable strength and also the amazing support from @GreatOrmondSt. She will be forever loved and missed.
50
79
18 Oct 2022
Can’t believe it is 3 years since we lost Jess. The support we’ve had, including from @HolyRood, has been a lifeline for our family. Laying flowers at & tidying up the grave of your child is where no parent should spend their day. Every day is a tough but these days are tougher x
2
14
8 Oct 2022
Alongside @Chaz0114Taylor and 10 other people connected to @HolyRood I’ll be running the @RoyalParksHalf tomorrow.
Its on behalf of @AlicesArc and memory of my amazing daughter Jessie. Not a day goes by that we don’t miss her. Pls donate if you can. justgiving.com/fundraising/k…
8 Oct 2022
1 MORE SLEEP 😬😳😬 😳😱😬
I am honoured (and also a BIG bit nervous now!)to be running the Royal Parks Half Marathon in memory of such a special girl. Please donate if you can. Thinking of you always Jess
justgiving.com/fundraising/k…
@jessicasarc @AlicesArc
#readyasilleverbe
1
5
Simon Macqueen retweeted
8 Oct 2022
1 MORE SLEEP 😬😳😬 😳😱😬
I am honoured (and also a BIG bit nervous now!)to be running the Royal Parks Half Marathon in memory of such a special girl. Please donate if you can. Thinking of you always Jess
justgiving.com/fundraising/k…
@jessicasarc @AlicesArc
#readyasilleverbe
1
1
4
23 Sep 2022
The reason why we push every day for more investment, more support and more awareness. Nothing is being done to address this. Nothing. Regardless of what is said. Young children die everyday from a disease that, given research and funding, could be saved. @ChildhoodCancer
23 Sep 2022
The why behind @LushLtd gold bath bomb - DEXTER. Too many children taken. Lack of progress. Lets change the story. #rhabdomyosarcoma #ChildhoodCancerAwarenessMonth
metro.co.uk/2022/09/23/the-h…
1
23 Sep 2022
Meet Jess. My daughter. Ripped from our family’s life - her absence a constant and devastating impact on every single day that we live. Fantastic work and efforts from @PassTheSmileOrg to promote and raise awareness of this dreadful disease. Miss you every day Jessie 💔
23 Sep 2022
Meet Jessica. She was diagnosed with #rhabdomyosarcoma and is forever 9.
"Jess has many drawings but the one I sent I keep next to me in my study which is where it’s been since the day she gave it to me."
Jessica is one of our Art in the Park artists @CentreRussells for #CCAM
1
2
9
Simon Macqueen retweeted
20 Sep 2022
ROYAL PARKS HALF - SUNDAY 9TH OCTOBER 2022. Big shout out to our 17 runners, teams from Jessica's Arc, Mollie's Arc and Ebony's Arc participating in this iconic London half marathon. Runners have been touched by Jess, Mollie and Ebony's rhabdomyosarcoma stories. #ChildhoodCancer
1
4
Simon Macqueen retweeted
13 Sep 2022
Really proud to be part of the Jessica’s Arc Royal Parks Half Marathon team!
In less than 4 weeks we will be running in memory of Jessica Macqueen but to raise funds for research into finding a cure for children’s cancer.
Every penny helps,thank you
justgiving.com/fundraising/k…
1
3
1 Sep 2022
Sept is Childhood Cancer awareness month. It’s also the month of Jess’ Birthday.
We should be celebrating her being 12 yrs old instead of facing the agony of another day without her. Woeful levels of research & support-all left to small charities to give families any hope. #CCAM
6
33
7 Aug 2022
Extremely grateful to @atriaWatford for their support on raising crucial funds for @AlicesArc through #Jessica’s arc. A combination of excited and devastated to be opening this fantastic experience in Watford tomorrow morning. @ChildhoodCancer @childrenscancer @Observer_Owl
2
11
29 Jul 2022
Never the greatest time to tweet something during the open ceremony of home Commonwealth Games - so retweeting especially for those based in and around Watford for this fantastic experience plus the opportunity to raise money for a great charity.
28 Jul 2022
1/2. Excited to announce the launch of this amazing event ‘Love Your Selfie’ in Watford Atria. It’s Watford’s first #selfieexperience which will run from 8th-30th August. bit.ly/3oUiTGJ Tickets are £5 each (free for U5’s with a paying adult).
28 Jul 2022
1/2. Excited to announce the launch of this amazing event ‘Love Your Selfie’ in Watford Atria. It’s Watford’s first #selfieexperience which will run from 8th-30th August. bit.ly/3oUiTGJ Tickets are £5 each (free for U5’s with a paying adult).
1
1
28 Jul 2022
2/2 All ticket sales go to Alice’s Arc via Jessica’s Arc. Thank you so much to atria Watford for choosing Alice's Arc as the charity for this event. Please help spread the word by sharing this incredible event 🙏🏻 #atriaselfierooms #alicesarc #TheArcs #jessicasarc #watford
1
Simon Macqueen retweeted
8 Jul 2022
Delighted to be working alongside @CCLG_UK on this important project designed to improve the decision-making experience at the point of relapse/refractory rhabdomyosarcoma. #togetherwearestronger
8 Jul 2022
More partnership working in action to fund more #ChildhoodCancer #research more quickly. Delighted to be working with @AlicesArc to fund this important work
4
9
Simon Macqueen retweeted
4 May 2022
We've launched a national consultation on physical literacy as part of a @Sport_England project
Educators, professionals, practitioners, researchers in England - we want to hear from you/your organisation
Take part & share your views by Sunday 5th June
ljmu.onlinesurveys.ac.uk/spo…
2
71
98
26 Apr 2022
Today sees the first ever debate in the HoC on Childhood Cancer. One of the most challenging aspects after diagnosis is the sheer futility. ’She’s a fighter’ counts for sod all if so little is spent on research and treatment. Thank you @cj_dinenage. For Jess x #ChildhoodCancer
1
8
37
Simon Macqueen retweeted
23 Apr 2022
22nd April 2022 marks two years since Beanie Evans passed away from fusion negative rhabdomyosarcoma. Beanie's parents, family, friends and supporters have donated a massive £26,700 on the second anniversary of Beanie's passing. An astounding sum inspired by Beanie and his Arc.
1
6
Simon Macqueen retweeted
28 Feb 2022
ICYMI: Our newly launched Storm Relief fund allows organisations to apply for up to £15,000 of grant funding.
30
32
Simon Macqueen retweeted
3 Feb 2022
Delighted to invest a further £130K in another work package being undertaken at the ICR as part of the research relating to the development of a new rhabdomyosarcoma CAR T-cell therapy. Read more on our new website launching next week.
2
11