HIV treatment advocates network: Supporting advocates in the UK | Providing expert training on treatment | Ensuring PLwHIV represented at all levels of our care

Joined February 2013
199 Photos and videos
Pinned Tweet
Mar 19
Join UK-CAB to shape the future of HIV care. ukcab.net/about/join/
5
5
244
UK-CAB retweeted
#BHIVABASHH26 @HayleyHolloway a nurses view on gate keeping and how she was able to understand needs, in this case of a trans patient and thereby lead change. Hayley listed to the patient and recognised the need to initiate change. So powerful. With @ukcab
1
3
3
238
UK-CAB retweeted
#BHIVABASHH26 who is listening? Charity Saiwala Peer Support worker for @GeorgeHouseTrst in Liverpool shares how she supports communities and helps support people from different countries and ensure they are heard. With @ukcab
5
8
179
UK-CAB retweeted
“HIV is a social issue, a cultural issue and an issue of power” Powerful presentation from @pank_sethi at @ukcab symposium at #BHIVABASHH2026 highlighting that healthcare that doesn’t listen isn’t healing, it’s controlling.
3
10
126
UK-CAB retweeted
#BHIVABASHH26 @pank_sethi takes us on a journey of stigma associated with HIV in the South Asian community and are services set up to provide access and if not what are the costs. Such a powerful presentation Are we listening? Are we involved? @ukcab
4
8
193
UK-CAB retweeted
#BHIVABASHH26 Gatekeeping, accessibility and silencing in healthcare @BothwellChikomba leads this important session from @ukcab Are we really listening and let’s understand the challenges to those who are seen at invisible.
1
5
4
147
Apr 27
If you are attending to #BHIVABASHH26 in Liverpool, come and visit us in the exhibition hall! @Positively_UK @angelina_namiba @HarunTulunay @NAT_AIDS_Trust @BritishHIVAssoc @BASHH_UK @4Mproject
7
10
346
UK-CAB retweeted
24 Dec 2025
Congratulations to @GarryBrough on becoming Chair of the @ukcab and grateful thanks to Dr @nicopolicek for her many contributions as she steps down.  BHIVA looks forward to working with Garry as he takes advocacy for people living with HIV into 2026 and beyond.
1
1
2
275
6 Dec 2025
The HIV Action Plan has promise — but real progress needs action and accountability. Prisons, women, trans people marginalised groups must not be left behind. You can read our public statement regarding to new HIV Action Plan below.
1
1
157
24 Sep 2025
Recent claims linking autism to Tylenol/vaccines are not supported by science. We stand against misinformation that fuels stigma, fear, and distrust in healthcare. Our community values evidence-based information, respect for lived experience, and the right to safe, informed care.
WHO statement on autism-related issues The World Health Organization (WHO) emphasizes that there is currently no conclusive scientific evidence confirming a possible link between autism and use of acetaminophen (also known as paracetamol) during pregnancy. Globally, nearly 62 million people (1 in 127) have autism spectrum disorder, a diverse group of conditions related to development of the brain. Although awareness and diagnosis have improved in recent years, the exact causes of #autism have not been established, and it is understood there are multiple factors that can be involved. Extensive research has been undertaken over the past decade, including large-scale studies, looking into links between acetaminophen use during pregnancy and autism. At this time, no consistent association has been established. WHO recommends that all women continue to follow advice of their doctors or health workers, who can help assess individual circumstances and recommend necessary medicines. Any medicine should be used with caution during pregnancy, especially in the first three months, and in line with advice from health professionals. Also, a robust, extensive evidence base exists showing childhood vaccines do not cause autism. Large, high-quality  studies from many countries have all reached the same conclusion. Original studies suggesting a link were flawed and have been discredited.  Since 1999, independent experts advising WHO have repeatedly confirmed that vaccines - including those with thiomersal or aluminum - do not cause autism or other developmental disorders. Childhood vaccine schedules are developed through a careful, extensive and evidence-based process involving global experts and country input. The childhood immunization schedule, carefully guided by WHO, has been adopted by all countries, and has saved at least 154 million lives over the past 50 years. The schedule remains essential for the health and wellbeing of every child and every community. These schedules have continually evolved with science and now safeguard children, adolescents and adults against 30 infectious diseases. Every vaccine recommendation by the Strategic Advisory Group of Experts on Immunization (SAGE), an independent advisory group to WHO, is grounded in rigorous review of evidence and carefully designed to offer the best protection against serious diseases and to be delivered when most needed. When immunization schedules are delayed or disrupted, or altered without evidence review, there is a sharp increase in the risk of infection not only for the child, but also for the wider community. Infants too young to be vaccinated and people with weakened immune systems or underlying health conditions are at greatest risk. Autism and neurodevelopmental disorders are among priority mental health and neurological conditions being discussed at the 4th UN High-Level Meeting on NCDs and mental health this Thursday, 25 September. As a global community, we need to do more to understand the causes of autism and how best to care for and support the needs of autistic people and their families. WHO is committed to advancing this goal working together with partners including autistic-led organizations and other organizations representing persons with lived experience. WHO also stands with people who are living with autism and their families, a dignified community entitled to evidence-based considerations free of stigma. Full statement: bit.ly/47YsgwI
2
1
343
UK-CAB retweeted
15 Aug 2025
24-week phase 2 results of once-weekly oral ART with #ulonivirine #islatravir, plus other studies on this combination at #IAS2025: i-base.info/htb/51965 Good efficacy & safety – with a larger phase 2b study already ongoing using 200mg ULO and 2 mg ISL doses. #HIVtreatment
1
4
8
679
UK-CAB retweeted
9 Aug 2025
Major updates to @WHO #guidelines will help improve #HIV care. They cover: - injectable #lenacapavir as #PrEP - supporting the right to breastfeed - #HIVprevention for infants - use of CD4 testing for #AHD - integration of care - peer support And more… i-base.info/htb/52185
5
7
702
6 Aug 2025
We encourage all people living with HIV in Europe to join this short study run by @ShareEastLondon team to share their experiences with new HIV treatments and their conversations with their clinical team about their treatment choices. Please visit the page & complete the survey.
Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART! Please share widely across your networks in Europe and the UK. 👇🏽👇🏽👇🏽 bit.ly/4m5ktRm /1
1
121
UK-CAB retweeted
6 Aug 2025
#IAS2025: Reduced #ARVs dosing could be a crisis response to #HIV meds stock-outs. French #guidelines already include this option for some adults. But the African BREATHER Plus study reported that daily dosing was significantly better in adolescents: i-base.info/htb/51845
5
7
584
UK-CAB retweeted
6 Jul 2025
Over 30 #HIV orgs sign statement declaring unconditional support for #trans and #nonbinary communities: i-base.info/htb/51403 “You are needed. You are valued. You are always welcome in our services.” Your org can sign too. #TransRights #TransHealth #GUM #EHRC #SupremeCourt
7
9
629
UK-CAB retweeted
1 Jul 2025
Long-acting #injectablePrEP approved in the US – at $28,000 a year, despite modelling showing generic price could be just $25 per person: i-base.info/htb/51357 It would be cheaper to become #HIVpositive & take ART than use #Yeztugo #lenacapavir as #PrEP. #Gilead #HIV #LMICs
3
4
468
24 Jun 2025
🚨 @GileadSciences lenacapavir could be a game-changer for #HIV -but at $28K/year, it’s priced out of reach for most. Generics could cost <$50. We’re calling on @GileadHIV to make it affordable for all, not just the privileged few. Please find UK-CAB public response below.
2
7
231
24 Jun 2025
After a long time and problems with X support, we are back! However, if you would like to follow us on BlueSky, you can find us here: bsky.app/profile/ukcab.bsky.…

ALT Caraa GIF

55
UK-CAB retweeted
25 Jun 2024
i-Base calls on @GileadSciences to agree to generic licences for amazingly effective #lenacapavir for #PrEP. Essential to ensure access in low- and middle-income countries: i-base.info/htb/47979 #HIV #HIVPrevent #SexualHealth #STIprevention #Purpose1 #SouthAfrica #Uganda
1
8
18
3,621
UK-CAB retweeted
12 Jun 2024
BHIVA celebrates the outstanding contributions of eleven professionals in the HIV sector with the new "Unsung Heroes" award. Read more: 🔗bhiva.org/unsung-heroes-cele…
1
11
21
5,570